Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying Gluten-Free Oats


greenbeanie

Recommended Posts

greenbeanie Enthusiast

My four-year-old daughter was diagnosed with celiac three months ago, and she is doing great. So far we've avoided gluten-free oats too. However, her preschool just revised their snack menu to make everything gluten free for the whole class, which is wonderful of them, and they've added gluten-free oats to their proposed menu once a week. Their plan is to serve actual oatmeal, not processed oat-containing foods. They know about cc issues with normal oats and plan to use dedicated brands.

 

Is it too soon to try oats? How long did you wait before trying them? She rarely ate oats before so she doesn't miss them, but her preschool has an excellent nutrition program with requirements to serve a variety of whole grains. They are already serving lots of brown rice and quinoa. I am so appreciative of all their efforts and don't want to be unnecessarily fearful about oats, but my daughter is doing so well that I'm scared to mess up her recovery. Any thoughts? Should we try oats at home first and then go along with the menu as long as she doesn't have any obvious reaction? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommy2krj Explorer

I haven't tried them yet either. Having just started in July with all of this....they make me nervous. But.....my little guy is still having issues with his stomach. :( I think I may have to remove dairy from his diet for a bit and see if that helps. *sigh*

I was hoping to try the oats soon since we're going into fall now and winter will be here and we used to eat oatmeal all the time in the winter. Guess we shall see what happens.

I would do a trial at home (I really, REALLY wish they'd all have small sample packs!) and see if she reacts or not before doing the trial at school. How awesome that they're doing that! Good luck!

cyclinglady Grand Master

I haven't tried them since I reacted shortly after my diagnosis in March.  Does she react to quinoa?  I wasn't able to tolerate quinoa or oatmeal.  So, if she's okay with quinoa, I'd try the oatmeal.  

greenbeanie Enthusiast

Thanks for your responses. My daughter is fine with quinoa and has been eating it since she was a toddler (long before her diagnosis), so that's encouraging. She sometimes gets a tummy ache from buckwheat.

 

It turns out that another parent had a concern about the oatmeal snack too, so it sounds like they may just replace that menu item anyhow. That would be a relief - I'd really rather wait a few more months before testing it. When I do, we'll definitely try them at home first. 

Fourmonkeysjumping Rookie

My husband and son (and now daughter, as of today) have been eating Bob's Red Mill gluten-free oats and Trader Joes gluten-free oats with no reactions for some time.  I make loads of granola bars and oatmeal cookies and we haven't had a single reaction from any of them.  Maybe the oats have gotten safer since some of you tried them?  My DH was very hesitant to try them at first, but now he has no issue.

cyclinglady Grand Master

Could be, but I have both those brands in my house.  My husband can eat them without a reaction.  It appears to be just me.   :(

I'm hoping to try them soon.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,801
    • Most Online (within 30 mins)
      7,748

    b r i t t a n y. g r i f f
    Newest Member
    b r i t t a n y. g r i f f
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.