Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge On Toddler!


mmcc54

Recommended Posts

mmcc54 Contributor

Hi everyone! Went and saw the GI today LO had a pos IgG test and neg biopsy a few months ago shes been gluten free since and feeling great still really slow at gaining weight though but feeling much better and happier! The GI suggested keeping her gluten-free for another month and doing bi weekly weight checks then doing a gluten challenge to see if she gets sick in order to confirm a celiac diagnoses...seems harsh and im so afraid to do that!!!! Is this normal? I cant imagine feeding my baby something that may potentially harm her on purpose just to sit back and watch her get sick!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Seems kind of... dumb to me too. Why doesn't he keep her gluten-free and then, if he is doubting the celiac disease disgnosis - which it appears he is, start looking into other possible causes rather than kicking the same horse over and over.

 

Good luck. If she does the challenge, I hope it isn't too hard on her.

w8in4dave Community Regular

Wow!! Poor baby!! Why not do blood work? Or have they? Hmm seems crazy! to me but I am not a DR. 

mmcc54 Contributor

We had the first blood test done when she lost weight around 12 months her IGG was pos sending us to the GI...what sucks is he is the only pedi GI around us so I cant go local for another opinion! I didn't know if this whole gluten challend was a normal part of the diagnosing process or not! Just seems weird to me exp since shes gaining weight now finally and doing well! Shes still so tiny at 16 months wearing 6 month clothes still I just cant imagine giving her something that could start this whole process of her getting sick over again!

mmcc54 Contributor

Hi everyone my 16 month old had a pos blood test 6 months ago followed by a neg biopsy shes been gluten free for 5 months...she was doing well gaining weight happy ect. Her GI said it would be "interesting" to put her back on a gluten diet but eliminated fructose?! Yesterday I let her have a taste of her sisters apple cider donut last night she had diareah...a rash broke out along her lower back and was up ALL night long crying...idk what to do!!! Calling the dr again when they open but does this sound gluten related to you guys??

kareng Grand Master

I think your doctor is trying a version of the FODMAP diet on her.  There have been recent studies that people who do not test positive for Celiac but have good results on a gluten-free diet were  doing better because they are responding to the low FODMAP foods.  I think the fructose comment is a reference to FODMAP foods.  However, your baby did have a positive blood test which is unusual in small kids. 

 

 

The problem is, unless you do a really good job on the low FODMAP diet, it might be hard to know if that is the issue.  Also, because wheat is one of the highest FODMAP foods, adding it back to her diet .... well, then it is really hard to be low FODMAP.

 

Here's what I think I would do:

 

I would get copies of every lab test, pathology report,  procedure reports then contact The Univ of Chicago Celiac Center.  They will want you to fax or scan the entire report.  They may ask for a donation later, but only donate if or when you can afford it. 

 

 

Open Original Shared Link

w8in4dave Community Regular

really it would happen right away. I don't think you'd have to do it very long to prove his point. But I am with you on this. If she is feeling better and gaining weight then why do it? I think he just wants to eliminate another option. Good luck! I hate to see baby's and children suffer. Bless her lil heart!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I just merged the two topics together because we are talking about the same thing here and on the new topic.

mmcc54 Contributor

Thank you guys! I just gave her some more gluten this morning the rash came right back!!!!! Waiting on a phone call from the drs now :(

w8in4dave Community Regular

Awweee poor baby!! Well I guess you know your answer!! 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.