Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long On A Wheat Free Diet?

poppet

By poppet
in Coping with Celiac Disease

Recommended Posts

poppet Rookie
poppet
Posted

Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?

Hope you can advise, love Poppet x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?

Hope you can advise, love Poppet x

<{POST_SNAPBACK}>

The healing rate depends on how long you were sick before dx, your own healing rate, total damage done before dx, and how strictly you are adhering to the gluten-free diet. Please note that wheat free doesn't mean gluten free! Rye products, barley (and items containing malt which is almost always made from barley) have gluten and must be avoided. And if you are stateside, oat products are severly cross contaminated here. And watch out for cross-contamination in the home, at restaurants and everywhere else. And also there is that pesky hidden gluten - items flavored with soy or terriyaki sauce almost always have wheat added. And check health and beauty aids also. Have you mastered the art of constant label reading? But the fact that you are now seeing improvement is good. By being totally gluten free you will regain your health and life. :)

Carriefaith Enthusiast
Carriefaith
Posted
Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?
Have you been diagnosed or tested for celiac disease?
VydorScope Proficient
VydorScope
Posted
The healing rate depends on how long you were sick before dx, your own healing rate, total damage done before dx, and how strictly you are adhering to the gluten-free diet.  Please note that wheat free doesn't mean gluten free!  Rye products, barley (and items containing malt which is almost always made from barley) have gluten and must be avoided.  And if you are stateside, oat products are severly cross contaminated here.  And watch out for cross-contamination in the home, at restaurants and everywhere else.  And also there is that pesky hidden gluten - items flavored with soy or terriyaki sauce almost always have wheat added.  And check health and beauty aids also.  Have you mastered the art of constant label reading?  But the fact that you are now seeing improvement is good.  By being totally gluten free you will regain your health and life. :)

<{POST_SNAPBACK}>

Inaddtion, You might find this list helpfull...

https://www.celiac.com/st_prod.html?p_prodi...-16105308941.a7

Billygoat Apprentice
Billygoat
Posted
Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?

Hope you can advise, love Poppet x

<{POST_SNAPBACK}>

Poppet,

I fear you are making the same mistake that I made. I thought wheat-free meant gluten-free. It does not. Gluten is in other grains, as someone else mentioned. It is also in other ingredients in foods that you don't typically associate grains with. I've been wheat-free for years. Couldn't figure out why I felt a little better, but would have days, sometimes months of feeling like before. It wasn't until this past summer that I went Gluten-free. Since then I've felt better than I have in ages. My biggest pitfalls were eating oats, spelt, and all the gluten in dressings, sauces, marinades, eating out, etc. You might consider doing a little more research, eliminating gluten (not just wheat) out of your system and see how you feel in a month or so. That's what it took for me. A good month going VERY Gluten-free and I felt like a new girl.

Good luck!

Andi

poppet Rookie
poppet
Posted
  • Author

Hi there and thanks for your replies, i have yet to be diagnosed, my gp is on at the hospital for my results as the specialist refused to give them to me and i am on yearly appointments, he said i need to know for definate...

I have ulcerative colitis that wasnt changing despite being on heaps of meds, i came of the med after a year as they were making me bleed and then got told to go on this diet...

I have been on it since march, the specialist did a stool and blood tests in march but not got any results yet, i did see an improvement within 2 days with the toileting business and i had a couple of things with wheat/gluten in them and imediatly had terrible cramps like i had been puched in the tummy and then i needed the loo...

I dont even know what i should be looking for to see any improvements, but i have always had exema and spots and greasy skin and hair but this has inproved greatly the only real thing i am concerned about is my weight since march i have lost 5 stone i seem to have evened out now and i am stuck at 9 stone, does this normally happen??..

I have so many question and no answers, so sorry if i appear a bit thick or trying at times...

Poppet x x x

nettiebeads Apprentice
nettiebeads
Posted
Hi there and thanks for your replies, i have yet to be diagnosed, my gp is on at the hospital for my results as the specialist refused to give them to me and i am on yearly appointments, he said i need to know for definate...

I have ulcerative colitis that wasnt changing despite being on heaps of meds, i came of the med after a year as they were making me bleed and then got told to go on this diet...

I have been on it since march, the specialist did a stool and blood tests in march but not got any results yet, i did see an improvement within 2 days with the toileting business and i had a couple of things with wheat/gluten in them and imediatly had terrible cramps like i had been puched in the tummy and then i needed the loo...

I dont even know what i should be looking for to see any improvements, but i have always had exema and spots and greasy skin and hair but this has inproved greatly the only real thing i am concerned about is my weight since march i have lost 5 stone i seem to have evened out now and i am stuck at 9 stone, does this normally happen??..

I have so many question and no answers, so sorry if i appear a bit thick or trying at times...

Poppet x x x

<{POST_SNAPBACK}>

How can you be thick or trying? We're here for each other. Celiac is a complicated disease with a very simple treatment. The gluten-free diet is very simple in principal, but hard at times to execute. And if medicos, dietitians and nutritionists don't understand it, how can we as lay people get our minds to grasp it? And since I'm from across the pond, what's a stone?

And since you've shown such a marked improvement on the gluten-free diet, that in itself would give you a dx - if not full blown celiac, then definitely gluten intolerant.

Keep on taking care of yourself.

Annette

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,109
    • Most Online (within 30 mins)
      7,748
    AbbyGh
    Newest Member
    AbbyGh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      High DGP-A with normal IGA

      By Wheatwacked · Posted

      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.