Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

24 Hour Urine/follow Up Labs


eers03

Recommended Posts

eers03 Explorer

Apparently my creatinine clearance is sky high and my proteinuria is high.  I don't have the numbers yet.  My doc is still waiting on my blood work.  My blood work was completely clean sans my deamidated gliadin as recently as January of this year so I don't my blood work is going to reveal a whole lot.

 

I was referred to a urologist last year and did a pretty full workup for my prostatitis at that time.  Everything was fine from a cyst-retro/PSA perspective.  I have never had a 24 hour urine though and asked for one from my PCP last week.  

 

My PCP is waiting for my blood work to come in and compliment my results.

 

I have a little fat on my liver, Absent IGA, some bone/joint aching, and pinker than my usual for the eyes.  Those are my current symptoms.  No noticeable swollen lymph nodes, no edema, no swelling of my joints, no low back pain...

 

Not sure what to make of this.  Trying to figure out I'm going to incorporate a kidney friendly diet into my gluten-free and still maintain weight.

 

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Is there a reason your looking at a kidney friendly diet?  You said you are still waiting for test results from your PCP.  The prostrate tests look good.  Are you concerned about a fatty liver?  I'm not quite understanding what your asking.  If your willing, give a little more information about your specific concerns.

 

Colleen

surviormom Rookie

I am not sure if this is a good place for this, but this is the third time, that in a check-up, my son, who is now 13, has to give a second sample.  He had keytones? in his urine yesterday.  It happened last year as well and the year before.  So this is becoming routine.  The number was low, so they want to check him again, same thing they said before.  Before the second samples were good.  So, what is going on here, is this a red flag to anyone?  And if so for what?  It is a red flag to me, but I have not a clue to what, just that it should not be ignored, year after year.

GF Lover Rising Star

Here is information on Ketones.

 

Open Original Shared Link

 

You should consult his Doctor with your concerns.

 

Colleen

frieze Community Regular

he is burning fat for energy..

GF Lover Rising Star

he is burning fat for energy..

Frieze,  this occurs in Type1 Diabetes.  There are also other reasons for having Ketones. 

 

Survivormom, I assume the Doctor has ruled out Diabetes?

 

Colleen

frieze Community Regular

if you follow Atkin's you will "spill" ketones, from burning fat for fuel.

Frieze,  this occurs in Type1 Diabetes.  There are also other reasons for having Ketones. 

 

Survivormom, I assume the Doctor has ruled out Diabetes?

 

Colleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



surviormom Rookie

I will check that page out Colleen, but to answer your question, no not yet.  So far he passes on the second urine test.  I think its because it is usually later in the day.  He always has had a good breakfast before we go, but that is all, breakfast.   I like morning appts.  The return visits for the second test have been in the afternoon, works in the schedule better, so I see a pattern.  Just wondering why the doctor has not and if I should point it out or if I just need to let him do his job.  We all know when it comes to what gluten does to our bodies the doctors make mistakes, well, can something be being missed here too?  My house is gluten-free for me and 2 other sons, so for the past year, he only consumes gluten when he is out with friends.

 

Thank you, for the direction.

surviormom Rookie

he is burning fat for energy..

That explains why he has NO fat.  We do not really follow any diet except totally gluten-free in the house.  If he is outside of the house as a party he may eat something gluten-free.  I try to go paleo, but do not force it on the family, just the gluten-free is forced on the whole house.  He eats well, plenty of meat, and veggies at dinner, lunch is 2 PBJs on gluten-free bread (UDI) and breakfast is an egg, I put bacon and gluten-free toast out for all so I am never sure how much he gets of that, but he is a one-two egg eater.  

 

Thanks for the insight, you see the same result over and over and you just wonder should the doctor want to test something else...

eers03 Explorer

Is there a reason your looking at a kidney friendly diet?  You said you are still waiting for test results from your PCP.  The prostrate tests look good.  Are you concerned about a fatty liver?  I'm not quite understanding what your asking.  If your willing, give a little more information about your specific concerns.

 

Colleen

I guess I am curious if anyone else had experience with proteinuria and increased creatinine clearance levels.  Both numbers were high for me on the 24 hour urine test.  I do have a high protein diet and that week I did go on two endurance bicycle rides (relative to me) for the first time in quite awhile.  I've also been highly stressed from work.  From what I can gather those can be potential reasons for the increased creat but the protein is stress on the kidneys.  I didn't know if there is something I can do to get the proteinuria number down.  I think the creat can correct itself.

 

9 months ago all of my Mayo labs were within the reference ranges with the exception of my deamidated gliadin.  Surely, my blood serums haven't went from normal to tanking in just 8 months?  My creat clearance was 155 for 24 hour urine and my protein was 146.  I don't have any swelling around my ankles.  I have some intermittent bone aches and joint pains but nothing that I am medicated for.  I'm not short of breath.  So, I'm concerned about my kidney health but as far as daily life goes, I'm fully functional and took my bicycle for a 19 miler up and down hills non-stop the other day.  So "I think" I'm healthy overall considering but was taken back by my 24 hour urine metrics.

GF Lover Rising Star

I will check that page out Colleen, but to answer your question, no not yet.  So far he passes on the second urine test.  I think its because it is usually later in the day.  He always has had a good breakfast before we go, but that is all, breakfast.   I like morning appts.  The return visits for the second test have been in the afternoon, works in the schedule better, so I see a pattern.  Just wondering why the doctor has not and if I should point it out or if I just need to let him do his job.  We all know when it comes to what gluten does to our bodies the doctors make mistakes, well, can something be being missed here too?  My house is gluten-free for me and 2 other sons, so for the past year, he only consumes gluten when he is out with friends.

 

Thank you, for the direction.

Surviormom,  because the ketones release in the first drops of urine the morning test is showing it.  It's not surprising that the second test is then clear.  I would follow up with the doctor and point out the difference in tests knowing that the first test in the morning is showing the ketones.  I would want to know why if it were me.

 

Hope you get some answers.

 

Colleen

GF Lover Rising Star

I guess I am curious if anyone else had experience with proteinuria and increased creatinine clearance levels.  Both numbers were high for me on the 24 hour urine test.  I do have a high protein diet and that week I did go on two endurance bicycle rides (relative to me) for the first time in quite awhile.  I've also been highly stressed from work.  From what I can gather those can be potential reasons for the increased creat but the protein is stress on the kidneys.  I didn't know if there is something I can do to get the proteinuria number down.  I think the creat can correct itself.

 

9 months ago all of my Mayo labs were within the reference ranges with the exception of my deamidated gliadin.  Surely, my blood serums haven't went from normal to tanking in just 8 months?  My creat clearance was 155 for 24 hour urine and my protein was 146.  I don't have any swelling around my ankles.  I have some intermittent bone aches and joint pains but nothing that I am medicated for.  I'm not short of breath.  So, I'm concerned about my kidney health but as far as daily life goes, I'm fully functional and took my bicycle for a 19 miler up and down hills non-stop the other day.  So "I think" I'm healthy overall considering but was taken back by my 24 hour urine metrics.

As you probably read, your protein number was very high.  The protein from your blood could be leaking into the urine because the kidney filters may be damaged.  Did your Doctor say he would follow up with a UACR test?  Also, in early kidney disease you may not have any symptoms ie: swelling.  And since your tests 9 months ago were fine, it would be early in the process.  The creatinine number being high would go hand in hand with the high proteninuria number.  I think additional testing would be something to consider.  Here is some good information for you to read:

 

Open Original Shared Link

 

If it is the start of declining kidney function, I don't think a change in diet will suffice.

 

Let us know how this shakes out for you.  I am happy to help you research and you can bounce off your thoughts.

 

Colleen

eers03 Explorer

My blood serum results came back spot on.  My deamidated gliadin plummeted from 83 last time to 15!  My GFR, blood calcium, potassium, creat, etc., were perfect.  

 

I'm going to stick with some of my halftime adjustments to diet and keep plowing forward.

surviormom Rookie

Surviormom,  because the ketones release in the first drops of urine the morning test is showing it.  It's not surprising that the second test is then clear.  I would follow up with the doctor and point out the difference in tests knowing that the first test in the morning is showing the ketones.  I would want to know why if it were me.

 

Hope you get some answers.

 

Colleen

Clear again.  I pointed out that this was the third time this has happened and the time of day as well as his eating habits.  The answers were just little pats on the head, and trust us, answers.  Basically, he had not had enough to drink to flush it out of his system yet.  No explanation as to why it was there in the first place.  Do we all have them there in the morning?  NO.  And it was explained to me that their testing is just simple in office testing its not a serious test, it is to catch a real problem, no problem here.  I am concerned that there is.  I obviously have had health problems my whole life that doctors ignored because it did not look like a serious problem to them.  Where do I take him from here if I want this looked at further?

frieze Community Regular

closest pediatric endocrinologist, renal maybe

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,875
    • Most Online (within 30 mins)
      7,748

    oscarbolduc
    Newest Member
    oscarbolduc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.