Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Haven't Posted In A Long While, But Wanted To Give An Update.......


rami

Recommended Posts

rami Apprentice

We started our gluten free journey in August 2012 when my now 9 year old son was diagnosed with celiac disease. I was thankful for this board and all of the support I received at a time when I was feeling overwhelmed and depressed thinking about my son's future. I thought our family would never be able to adjust to our new lifestyle and everyone here reassured me and helped me to understand test results and also helped me traverse the complicated gluten free food world! He was also diagnosed with growth hormone deficiency, so we had that to deal with as well........

 

I must say that 14 months later I am astonished and amazed at the changes my son has undergone since his diagnosis.  He has gained over 13 pounds in a year and has grown 3 inches since starting his gluten free lifestyle and growth hormone therapy. He is much happier, less moody, and most of his ADD symptoms have disappeared. He excels in school and we don't have nearly the attention and emotional issues we had last year. We have had so many friends comment on how great he looks and some that we haven't seen in awhile don't even recognize him.  He has had two blood tests since his diagnosis to monitor his antibody levels and both have been normal. He eats like there is no tomorrow and he is growing out of clothes faster than I can buy them! He was well below the growth charts and his is now in the 5th percentile in height and 3rd percentile in weight which is a huge accomplishment for us!

 

I just wanted to say thank you to all of you and to give hope to the newbies that might have some of the same trepidations about celiac that I had. I can happily say that gluten free living is a normal part of our life. We have two other children that tested negative and my husband and myself also tested negative but he decided to go gluten free and he feels great. Our house is mostly gluten free, and my other two children never complain and most of the time don't even notice a difference when they eat a gluten free substitute. I am in a very happy place and at peace, something that I didn't think was possible 14 months ago!  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Wow that is awesome!  I'm so glad you came back to share. :D

1desperateladysaved Proficient

So happy for you and your family!

mommy2krj Explorer

That is wonderful! Thank you for sharing that. Sometimes, just knowing that someone has been there and through it can help. :) We've been gluten free since July and that first month was insanely overwhelming. To the point of tears at the grocery store. I still get frustrated sometimes but seeing the difference in both my boys makes it worth it.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,594
    • Most Online (within 30 mins)
      7,748

    Deborah Walker
    Newest Member
    Deborah Walker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • amantelchi
      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.