Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Do...

Chefjen

Recommended Posts

Chefjen Newbie
Chefjen
Posted

I know you probably hear the same questions day in and day out. But here is my story and my questions, I hope to find some good information here. :)

My name is Jennifer and I am a pastry chef. Yes you read that right. A pastry chef. I make wedding cakes, sculpted cakes and anything else that you can possibly make with flour. I am a small business owner.

I have always had pretty severe joint pain, psoriasis, hives, and IBS. My mother has arthritis and so I figured it went with the heritage. About 6 months ago it all started to get much worse, I had an arthritis panel done, got referred to see a dermatologist, and an allergist (I thought my allergies has gotten worse). Started dealing with insomnia, severe fatigue, couldn't sleep due to pain in my legs and hips. Would wake up itching. It was awful. Not to mention more and more I looked pregnant. (I am not)

Went out to a Chinese food restaurant with my husband and ended up having to leave in the middle of the meal, thought someone around me must have a cat and my allergies are acting horrendous. Couldn't breathe, nose and whole face itched terrible, went home and had Benadryl. Found out later, soy sauce is made of wheat... So why isn't it called wheat sauce.......

Then about 1-2 months ago I come across a friend who is celiac positive and we began talking and she said "omg you have to stop eating wheat" .... Fast forward and I am almost a month wheat free.. I have lost 10lbs, I am pain free, my skin is almost cleared up, and I have no headaches, no gut pain, vertigo, or fogginess. One day about a week ago I had a food item I didn't check the ingredients to and it had wheat in it, I was up all night in a rash my stomach was like I ate glass and I was miserable. I got up and checked the ingredients and low and behold it contained wheat.

So here is my issue.. I read if I am gluten free the testing will not come back celiac. Also is celiac the same as being allergic to wheat or is there a difference.

I have a call in to get an appointment with my general dr. Or do I switch to a GI?

Thank you for all the help.

Chef Jen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

I know you probably hear the same questions day in and day out. But here is my story and my questions, I hope to find some good information here. :)

My name is Jennifer and I am a pastry chef. Yes you read that right. A pastry chef. I make wedding cakes, sculpted cakes and anything else that you can possibly make with flour. I am a small business owner.

I have always had pretty severe joint pain, psoriasis, hives, and IBS. My mother has arthritis and so I figured it went with the heritage. About 6 months ago it all started to get much worse, I had an arthritis panel done, got referred to see a dermatologist, and an allergist (I thought my allergies has gotten worse). Started dealing with insomnia, severe fatigue, couldn't sleep due to pain in my legs and hips. Would wake up itching. It was awful. Not to mention more and more I looked pregnant. (I am not)

Went out to a Chinese food restaurant with my husband and ended up having to leave in the middle of the meal, thought someone around me must have a cat and my allergies are acting horrendous. Couldn't breathe, nose and whole face itched terrible, went home and had Benadryl. Found out later, soy sauce is made of wheat... So why isn't it called wheat sauce.......

Then about 1-2 months ago I come across a friend who is celiac positive and we began talking and she said "omg you have to stop eating wheat" .... Fast forward and I am almost a month wheat free.. I have lost 10lbs, I am pain free, my skin is almost cleared up, and I have no headaches, no gut pain, vertigo, or fogginess. One day about a week ago I had a food item I didn't check the ingredients to and it had wheat in it, I was up all night in a rash my stomach was like I ate glass and I was miserable. I got up and checked the ingredients and low and behold it contained wheat.

So here is my issue.. I read if I am gluten free the testing will not come back celiac. Also is celiac the same as being allergic to wheat or is there a difference.

I have a call in to get an appointment with my general dr. Or do I switch to a GI?

Thank you for all the help.

Chef Jen

In regards to testing, you are right. You have been gluten free too long for the blood tests to come back. You would have to do a gluten challenge for a while.

 

No, celiac is an AI disease in which the body attacks the small intestine in response to gluten (which includes wheat, barley, and rye).

 

Open Original Shared Link

 

Poke around that site a bit. It has a lot of useful information.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.