Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Grandparents


MominSoCal

Recommended Posts

MominSoCal Apprentice

Hi all-

My 7 yo daughter tested (+) and is awaiting her endoscopy for confirmation.  We (5 of us) share a home with my parents.  I have discussed with my mom about the changes that we will need to take place to keep the home gluten-free.  This news is not popular and she is worried about my dad, since he is older and "likes what he likes"

 

So if anyone can post links to articles or posts on:

1-keeping a kitchen gluten-free  - cross-contamination

2 - Why being 100% gluten-free is so important (they seem to think "a little" is ok)

3 - health consequences of not maintaining gluten-free.  

 

I am already worried, since he brings home donuts every Saturday and takes them out to fast food places several times a month.  they are also my kids caretakers 3 days/week, so I need to really get them to understand this.

 

Thanks

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

First, I don't think the whole house has to be gluten-free. There are ways to have some gluten food in the home and keep things safe. But that assumes that everyone wants and is able to follow the procedures.

There is lots of info at Open Original Shared Link. And there are other national organizations a and celiac medical centers with info. Because celiac is genetic! your other kids or you may test positive! too.

If this is their home, it is up to them what rules they want in their house. In your home, you can make the rules. You definitively make the rules in what your children can eat, even when a grandparent is babysitting. If you think they will not be able to keep your child safe, you may have to make other living or babysitting arrangements. You are the parent, so that is your responsibility. Sometimes, just mentioning that is enough to get them to cooperate.

Adalaide Mentor

It really will be up to them whether or not they want the entire house to be gluten free. That said, there really can not be debate about whether or not your daughter is 100% gluten free. They need to understand that it isn't an upset tummy or a little C or D, it is actual physical harm if she has any.

 

The outings will simply need to be changed to places that are safe for your daughter to eat. If you live where there is an In N Out, it is by far (imo) the single safest place to get a meal. Order a burger with no bun, tell them it is for an allergy and you're set. The burger will come lettuce wrapped, they never use the fryer for anything but fries and the drinks and shakes are safe. If you don't have one near you, you'll have to research what is safe or he'll have to find something else to do with them.

 

Unless you are making your entire family gluten free, I don't see the problem with the donuts... if he is considerate. He needs to think about the fact that it isn't fair to bring home donuts for everyone else and leave a single child out. He should make sure he can find a gluten free treat for her also. Maybe that means buying a box of frozen gluten free donuts. Maybe it means going to a local gluten free bakery and getting her a cupcake. At any rate, if it is a ritual everyone enjoys it can be modified without taking it away from everyone.

 

Remember, you're asking for a big change from your parents. You live in their house. While they do need to be considerate of the health of their grandchildren, they don't need to entirely turn their lives upside down. This is going to be difficult for them, even just learning to live with gluten free people in the house. Asking them to outright give up what are rituals for them with their grandchildren will be emotionally difficult for them, possibly as much as it is difficult for you and your daughter to get this diagnosis. (And I'm not just preaching off a soapbox here... I live with my MIL and did at the time of my diagnosis so I'm somewhat familiar with how difficult this can be for everyone involved. Even when it isn't the person who has to "deal with" the issue.)

MominSoCal Apprentice

I appreciate the feedback. I am feeling that education is the best approach, hence why I am looking for published material.

We share a home, they love their grandkids. If you have any other specific articles, they would be appreciated.

shadowicewolf Proficient

This site should help you a lot Open Original Shared Link

 

The university of chicago has a wealth of information on this.

Adalaide Mentor

University of Chicago is my favorite place to get information. You can get answers to very specific questions that someone has almost certainly answered before. They also have a pamphlet type thing you can print out. Spending some time getting around their site should net you a lot of information to share.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.