Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Ingestion Of Gluten?


musiscience

Recommended Posts

musiscience Newbie

Hi everybody, 

 

I am new on this forum and in the gluten free world (It has been 7 months since I started eating gluten free) and it has been going mostly well  :D. But lately, my symptoms have returned and they do not seem to go away. When I stopped eating gluten, I was really depressed and anxious and had been for most of my life. Doctors have prescribed me a lot of different medications including a lot of antidepressants, most of which had close to no effect on me. After a lot of research online, I decided I would give a try to the gluten free diet as a last resort, and, to my surprise, it worked. My depression and anxiety went away for the first time in years, that was a miracle. It lasted until about 2 months ago when the symptoms started coming back. The thing is, I don't know what happened, am I ingesting gluten in one way or another? Have I developed another intolerance and I suffer the consequences of eating said food? I am usually pretty careful about what I eat, but some of it I am not sure (Is it possible that a company change recipe without notice and gluten has been added?).

 

Anyway, sorry for the long rant, I am pretty desperate to retrieve my wellness once again, that is why I am asking for your knowledge. Has anyone else experienced anything similar, like a fairly long relapse in symptoms? If so, have you found the source? How did you find it? 

 

Thank you so much for the help,

 

Musiscience  ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Companies can change their ingredients without notice.  In the Celiac world, you must read every label, every time.  Please keep in mind that Gluten may not be the underlying problem for you since you do not have a diagnosis of Celiac Disease.  I'm not saying it isn't a problem but you should still look at other possibilities.  Many people report improvement of Depression symptoms.  They may wax and wane but still need medication depending on severity and diagnosis.  As far as food intolerances, if you choose to investigate further you should start a food journal. 

 

Good luck to you.

 

Colleen

nvsmom Community Regular

It could be either the celiac lingering or a glutening. Like Colleen said, I would check all of you labels just to be sure you are eating gluten.

 

Arthritis was one of my celaic symptoms and I had a pretty severe backslide after I had been gluten-free for a couple of months. Once again, my hair thinned out, I felt flu-ish, and I could barely use scissors or get my arms above my head. I was pretty convinced that I had other problems like lupus or MCTD but the docs said no, it was the celiac. It passed after a few months and I have been mostly arthritis free for about 10 months - a long time for me so I'm hopeful it was caused by celiac disease and that was the last bout of pain for me.

 

So, my point is that it could be celiac disease still, but check labels and look into other causes (like hypothyroidism) in the meantime.  Good luck!

musiscience Newbie

Thank you for the kind answers.

 

NVSmom, it is really weird that you had that awful weakness for so long on the diet, and that the Doc still pinned it on celiac. I always thought that the diet should take care of the symptoms entirely.

 

It is true that I have not been diagnosed properly, but when I stopped eating gluten it made such a difference (stomach noise, depression, anxiety, fatigue all lifted), I could not believe it. It is to be noted that I was on an SSRI at the time, that was not working, and the depression lifted almost immediately when I stopped gluten. That is why I suspect that I am eating something that mess with my diet to some extent since the symptoms are back. 

 

I think I will double check all my labels from now on and try to eat a lot more raw foods such as fruits and vegetables. Let's wait and see if that make a difference :) . 

dilettantesteph Collaborator

When I first went gluten free, my symptoms resolved when all I did was eliminate my Cheerios and bread.  Then they came back and I had to educate myself about where gluten can be found.  It seemed like I kept getting more and more sensitive to trace gluten and I had to learn more and more about how to avoid it.  This apparent increase in sensitivity seems common from what I have read on forums.  In a way it is a good thing because I was able to know that the gluten free diet works.  It gave me the motivation and determination necessary to really figure out what I had to do.  I do much better with unprocessed foods. 

 

I hope that you feel better soon.

nvsmom Community Regular

Good luck!  :) I hope you find the cause and it is just a "glutening". If you can't find a cause, stay gluten-free and give it time - I still had symptoms improving at one year gluten-free.

  • 4 weeks later...
musiscience Newbie

Good luck!   :) I hope you find the cause and it is just a "glutening". If you can't find a cause, stay gluten-free and give it time - I still had symptoms improving at one year gluten-free.

Thank you for the kind words :)! As an update to my thread, it was indeed gluten that was causing my symptoms. My symptoms improved when I cut gluten, but I (stupidly I must add...) never thought about changing my non-stick pans, my cutting board and using a different sponge for the dishes. Now I completely changed my kitchen appliances and cleared my kitchen of gluten containing food, since my girlfriend agreed to eat gluten free to help me. Result? I am now back to feeling awesome and my symptoms are gone! Who thought such small traces of gluten could cause such damage in my boding  :o.

 

Thank you so much for your answers! You guys are great  :D!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Glad you are feeling better! :). It's tricky to find those tiny amounts of gluten!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,885
    • Most Online (within 30 mins)
      7,748

    KateFC
    Newest Member
    KateFC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.