Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Response From Enterolab


alanalynch

Recommended Posts

alanalynch Rookie

I emailed the thread 'wary of Dr Fine' Phyliss at Enterolab as she has always been interested in what people have had to say. I thought all those involved in that thread might be interested in her response.

Dear Alana,

Thank you so much for this information. I read it from top to bottom.

Though I would love to provide my own response to many questions on

that

message board, I feel it would be unethical of me to do so (kind of

like

ambulance chasing).

However, if you are supportive of Dr. Fine's research and testing

methods

and would like to direct visitors of that message board to my email

address

with questions, I would be more than happy to answer them. My direct

email

is <enterolab@earthlink.net>. This is the same address that is accessed

from our web site. You may even give out our phone number if you wish,

which is 972-686-6869.

Incidentally, Dr. Fine is extremely spiritual in every aspect of his

life.

He began singing in his synagogue when he was younger, then directed

his

musical talents to uplifting messages of hope and thanks in his two

previous CDs (hence, the Kenny Jude name). More recently, he has

recorded 3

new CDs to help launch a new program called "Get On a Mission of

Nutrition"

aimed at improving nutrition and the overall health in children.

Because of

this and other ventures to further improve society's health, he has not

written for the peer review journals until now. He plans on publishing

EnteroLab's findings early in 2006, which will be a wonderful

accomplishment.

Since I came to the lab full time, after leaving a good position as the

RN

to a certified allergist/immunologist at Baylor, I have increased the

accessibility of the lab to patients and physicians both by phone and

email. Because we are operating under the umbrella of the Intestinal

Health

Institute, a non profit organization for Dr. Fine's research and

education,

we try to keep our operating costs down and do not have a large staff.

We

do work hard, however, to answer all the calls we can and return

messages

as soon as possible. Also, many people do not know that EnteroLab's

proceeds are donated back to the Intestinal Health Institute to help

fund

more research, education, and programs. We are definitely not in it for

the

money!

I'm sorry if this sounds like a lecture, but we are all very proud of

Dr.

Fine's work and the work that EnteroLab does for patients who have been

searching for answers for years only to be ignored by their physicians.

We

pray that more physicians will soon see the value and practicality of

EnteroLab's tests so that more people can be helped earlier in the

manifestation of the disease process.

Thank you, again, for providing me with this information. Please let me

know if I can be of any further assistance to you.

Most sincerely,

Phyllis Zermeno, RN, BSN

Clinical Manager, EnteroLab

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Thanks for sharing that. :)

What a great idea to email that thread to her...now I've learned some things about Enterolab and Dr. Fine that I wasnt aware of before. All good stuff. :)

Bette Explorer

Can you guys post a link to the thread "Wary of Dr Fine". I am so confused at this point, and was considering doing some of his test.But concerned, since A) my insurance will not cover it and B) his work is controversial.

I have been gluten-free now going on 6 months. Not officially diagnosed, only had some elevated antigliadin antibodies, but decided to go gluten free since my daughters diagnoses. She is 11 and has been gluten free since July. GI symptoms have improved dramaticaly for her, but she still has sinus and chronic tonsilitis issues. Some of her other symptoms have disappeared (yeah) I am beginning to question if there is another problem (namely dairy).

I am torn between just removing dairy 100 percent and see how she does (makes sense to me), but I had to fight tooth and nail to get her the proper diagnoses regarding gluten, put her through biopsy and all- not because I wanted to but because of an uncooperative ex who would not go along with a trial of gluten free diet unless the doctors said it was necessary. Now same with removing dairy, it will be a challenge to get him to help with that one too!!!

And as far as I go, I got good results intitialy, but at the 6 month mark, I am really struggling. Is it too late to get a diagnoses from Dr. Fine? I refuse to go back on gluten.Will his test help you to pin a problem with Dairy? Casein intolerance? Lactose intolerance? The more I have read up on intolerances, the more confusing it seems, and there seems to be misunderstandings among the doctors themselves. I also thought about York Labs, but from talking to another person from another message board, her advice was no. She had a bad experience and considered them very unproffesional. :huh:

Rachel--24 Collaborator

Here's the link :)

Open Original Shared Link

alanalynch Rookie
. Is it too late to get a diagnoses from Dr. Fine?

<{POST_SNAPBACK}>

If you access the Enterolab website you will see that 6 months gluten-free is definately not too late to test for intolerance. In regards to the controversy of using Enterolab, the post I put on today mentions their position on the previous 'wary' thread.

Personally I think Dr. Fine is a pioneer in gluten intolerance, and as all the medical pioneers before him experienced he is going to encounter resistance to his ideas. I believe he gives accurate results, (I was diagnosed with gluten intolerance before I went through Enterolab and his results certainly gave me a whole lot more info than my regular doctor). Dr. Fines tests also showed that I have a reaction to casein, which in my case turns out to be quite important because I sometimes feel worse after ingesting casein than gluten!

But its a personal choice as to how much testing you need in order to feel okay about not eating gluten anymore. My sister has Crohns (and almost undoubtledly Celiacs), yet she tells her doctors not to test for Celiacs because she just couldn't stand to eat food without gluten. Thats her choice. I choose, or at least I'm trying, to be gluten free and healthy again. So doctor or no doctor I say, do whatever makes you feel better!! :)

Guest barbara3675

Remember that if you decide to go with Enterolab, you can have some gene testing done and that will give you more clues to your situation. My granddaughter has celiac disease and her dear mother suggested that I get tested. The doctor came up with negatives so I decided to go with Enterolab and they came up with postives for gluten intolerance and I also have the gene. I also tested casein intolerant, however after some time, that went away as it often does when the healing process is complete. I just feel so much better (no tummy pains or diarreah) so I know I am on the right track. This was all found out at the age of 59 so you just never know when it will come about.

Barbara

skbird Contributor

My two cents - I think Enterolab is great for what they are doing. But I got tested at 5 months and was just under the normal cutoff (9, when 10 is positive). When corresponding with Phyllis and Dr. Fine, they both inferred I was likely over the normal limit before going gluten-free, but who knows? Anyway, it is possible your levels will have gone down by 6 months. Then again I think I read here about someone who tested over a year after gluten-free and was still positive so who knows?

Stephanie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    3. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    Suelle
    Newest Member
    Suelle
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.