Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow... How Long For Results?

appletree729

Recommended Posts

appletree729 Apprentice
appletree729
Posted

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

GF Lover Rising Star
GF Lover
Posted

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!

Just settle down :lol:  Everything will be right with the world when you finish your procedures.  Just think, after tomorrow you can start feeling better regardless of the results.  The Doctor may or may not say anything after the procedure.  Biopsies usually take around 1 - 2 weeks for results.  Let us know how it all goes. :)

 

Colleen

Renaye Contributor
Renaye
Posted

I am having an upper and lower gi procedure on Wednesday.  Eating bland stuff today.   I am also having gi trouble but have already had a negative biopsy before.  Good luck!

 

Renaye

appletree729 Apprentice
appletree729
Posted
  • Author

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

shadowicewolf Proficient
shadowicewolf
Posted

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

 

The small intestine is about 15 to 32 feet in length. It is very possible to miss damage.

GF Lover Rising Star
GF Lover
Posted

Glad everything went well.  :D

 

Colleen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


appletree729 Apprentice
appletree729
Posted
  • Author

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!  

appletree729 Apprentice
appletree729
Posted
  • Author

Well, got the results today and everything came back normal..  so no celiac disease.  I should be happy, right?!  But oddly, I'm actually disappointed.  This would have been a manageable, not so serious diagnosis with an easy solution that didn't require medication.

 

Oh well.  Mystery still remains as to the cause of my abdominal pain, brain fog and all the other complaints. Or maybe this is just the way I'm supposed to feel and it's 'normal'.  That would suck!

moosemalibu Collaborator
moosemalibu
Posted

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

 

I haven't gotten my biopsy results back but just wanted to add that my endoscopy showed gross abnormality of mucosal atrophy. So sometimes there is visible damage. But I am assuming my biopsy will be consistent with my serology test results and be positive for celiacs.

love2travel Mentor
love2travel
Posted

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!

Actually, a celiac doctor in Canada said at a lecture I attended to request 11+ biopsies and even at this seemingly high number it could still be missed. She looks at biopsy reports completed by other physicians herself and said a low percentage are done and/or read correctly. But at least yours took 8, rather than a paltry 2 or 3.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.