Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Causes Of Gastritis And Changes In The Duodenum


Renaye

Recommended Posts

Renaye Contributor

 I had to get a new gastro and he did an upper and lower gi yesterday.  Everytime someone does these, the results are the same.  I get a handout for h-pylori but my test will end up negative.  It looks like celiac but the biopsy will come back negative too.  I have a positive p anca but my colon is normal.  So I am waiting for this doc to get the results back.  I have a positive ana and have "sicca" now. Not sure what will evolve from that.  What else could be causing the gastritis and inflammation in my duodenum?

 

Scared of answers but wish I had answers.....

 

Renaye


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Well, I recently had a post-DX follow up biopsy and while I am healing, I have evidence of gastritis ( but neg for h.Pylori ) and it is my understanding that gastritis can be caused by a number of things: 

  • Certain medications, such as aspirin, ibuprofen, or naproxen, when taken over a longer period of time
  • Drinking too much alcohol
  • Infection of the stomach  with Helicobacter pylori

Less common causes are:

  • Open Original Shared Link (such as Open Original Shared Link)
  • Backflow of Open Original Shared Link into the stomach (bile reflux)
  • Cocaine abuse
  • Eating or drinking caustic or corrosive substances (such as poisons)
  • Extreme stress
  • Viral infection, such as cytomegalovirus and herpes simplex virus, especially in people with a weak immune system

Trauma or a severe, sudden illness such as major surgery, kidney failure, or being placed on a breathing machine may cause gastritis.

Open Original Shared Link

 

Since I do/have none of those, my guess is I did just sell my house and move 1300 miles away and we're building one right now, so maybe it's stress-related. Not sure, but I quit coffee and wine and took an acid reducer for a week and I feel much better.

 

I hope you can figure out what's going on. 

mommida Enthusiast

On my daughter's report after her endoscopy with biopsy there were still signs of gastritis.  She had the testing done to monitor the Celiac and Eosinophilic Esophagitis damage.  Like I said the main reasons for having the testing done for eosinophil activity and the gastritis was not even mentioned by the doctor.  I read it in the report.

IrishHeart Veteran

yes, my doctor was not even concerned about the gastritis. I read it on the report too and asked him about it.

He was more interested in the intestinal scarring I have from not being

Dxed all my life. He found it "fascinating". 

nutritionguy Rookie

 I had to get a new gastro and he did an upper and lower gi yesterday.  Everytime someone does these, the results are the same.  I get a handout for h-pylori but my test will end up negative.  It looks like celiac but the biopsy will come back negative too.  I have a positive p anca but my colon is normal.  So I am waiting for this doc to get the results back.  I have a positive ana and have "sicca" now. Not sure what will evolve from that.  What else could be causing the gastritis and inflammation in my duodenum?

 

Scared of answers but wish I had answers.....

 

Renaye

Upper GI and lower GI normal--that's good.  The fact that you have positive p anca, ana, and "sicca" suggests to me that some time of autoimmune phenomenon may be involved here.   Are there any autoimmune diseases in any of your relatives?  Whatever the case, take heart because even if it is some type of autoimmune phenomenon, it is my firm belief that it can be significantly improved through exercise and optimal diet--diet that is rich in healthful substances and which minimizes inflammatory substances.  Without optimal diet and exercise, the immune system will not function in the healthiest fashion.  So have you been diagnosed with any diseases for which you are presently on any medications?  Are you overweight?  Do you know what your fasting blood sugar is?  By the way, when you say that your biopsy "looks like celiac but the biopsy will come back negative too", was the biopsy done after you had been eating a gluten-free diet for a long period of time?

Renaye Contributor

I am taking plaquenil due to fatigue and mild joint pain.  Obviously the rhuemmy doctor believes I have something.  Upper GI was done a year prior to fatigue and then 6 months after a gluten-free diet.  I am being tested in February for a whole bunch of things like lupus, sjogren's, mixed connective and scleroderma.  It has been negative in the past.  RA runs in the family on my dad's side and gluten intolerance runs on my mom's side.  I am afraid I have something ugly but it hasn't appeared yet.  I eat healthy and walk a mile 3 times a week. I am under weight.  I stay on the gluten-free diet as I feel that it will help with whatever I have.  I have looked at diets to heal the gut because I feel that this is where the problem begins but have no clue where to start at.  I don't want to drink raw milk or eat fermented foods.  Sounds like it will either make me sick or burn up my esophagus.  Who knows...I get GI results sometime this week and then will wait to see what the rhuemmy doctor comes up with in February.

 

Renaye 

nutritionguy Rookie

I am taking plaquenil due to fatigue and mild joint pain.  Obviously the rhuemmy doctor believes I have something.  Upper GI was done a year prior to fatigue and then 6 months after a gluten-free diet.  I am being tested in February for a whole bunch of things like lupus, sjogren's, mixed connective and scleroderma.  It has been negative in the past.  RA runs in the family on my dad's side and gluten intolerance runs on my mom's side.  I am afraid I have something ugly but it hasn't appeared yet.  I eat healthy and walk a mile 3 times a week. I am under weight.  I stay on the gluten-free diet as I feel that it will help with whatever I have.  I have looked at diets to heal the gut because I feel that this is where the problem begins but have no clue where to start at.  I don't want to drink raw milk or eat fermented foods.  Sounds like it will either make me sick or burn up my esophagus.  Who knows...I get GI results sometime this week and then will wait to see what the rhuemmy doctor comes up with in February.

 

Renaye 

 

The key here is to optimize the function of your immune system.  And although you think you eat healthy, the fact is that most Americans do not because they are not sufficiently knowledgeable about nutrition and how the foods they eat can help or hinder.  An excellent book that I highly recommend was written by a physician who developed brain cancer (glioblastoma multiforme), went through surgery and chemotherapy, had his brain cancer recur, and subsequently kept the cancer in check for the next 10 years by applying the latest discoveries in nutritional research to guide his diet.  For this type of cancer, this was quite extraordinary.  Unfortunately, he recently passed away from the cancer.  His name was David Servan-Schreiber, M.D, PhD, and the title of the book was Anticancer--A New Way of Life.  (The book can easily be found using Google and entering the word "anticancer"; it will be right at the top of the list of web pages selected.)  In the book, he makes some of the following recommendations:  Eat whole foods and keep away from foods containing added sugars.  Avoid grain fed cattle, chickens, and eggs as these are very high in omega-6 fatty acids which promote growth of cancer cells and promote inflammation, the latter of which is not good for people with autoimmune diseases in my opinion.  In the US, you will not be able to find 100% grass fed chickens or their eggs, and you will have to look around hard to find cows that are 100% grass fed.  Just to give you an illustration of what grain feeding does to chickens, studies have shown that eggs from grass fed chickens have an omega 6 to omega 3 fatty acid ratio of about 1 to 1, whereas eggs from grain fed chickens (even if it is organic) is about 20-30 to 1.  The conclusion is obvious.  As for "farm raised" fish which are also raised on grains (like tilapia), the problem is the same: high in omega 6 fatty acids.  On the other hand, wild caught fish do not have this problem.  As for an ideal diet, most carbohydrate should be complex carbohydrate--not simple sugars that are found in fruits.  I, myself, am a type 1 diabetic for almost 40 years, only on insulin and no other medications, and have absolutely no complications from my diabetes because I diligently control my blood sugars through optimal diet and daily exercise.  I also follow many of the recommendations in Servan-Schreiber's book.  I agree with you that healing the gut is key.  Is your diet high is simple sugars or fruits?  Do you know what your fasting blood sugar is?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I am taking plaquenil due to fatigue and mild joint pain.  Obviously the rhuemmy doctor believes I have something.  Upper GI was done a year prior to fatigue and then 6 months after a gluten-free diet.  I am being tested in February for a whole bunch of things like lupus, sjogren's, mixed connective and scleroderma.  It has been negative in the past.  RA runs in the family on my dad's side and gluten intolerance runs on my mom's side.  I am afraid I have something ugly but it hasn't appeared yet.  I eat healthy and walk a mile 3 times a week. I am under weight.  I stay on the gluten-free diet as I feel that it will help with whatever I have.  I have looked at diets to heal the gut because I feel that this is where the problem begins but have no clue where to start at.  I don't want to drink raw milk or eat fermented foods.  Sounds like it will either make me sick or burn up my esophagus.  Who knows...I get GI results sometime this week and then will wait to see what the rhuemmy doctor comes up with in February.

 

Renaye

Waiting for the GI results sounds wise. Maybe you could see if you could get an appointment with the Rheummy doc sooner?

Renaye Contributor

All biopsies came back negative....good news but it doesn't explain intestinal damage and constipation.  I think my blood sugar is within normal levels.  I don't eat much fruit or sugar. 

 

Renaye

kareng Grand Master

All biopsies came back negative....good news but it doesn't explain intestinal damage and constipation. I think my blood sugar is within normal levels. I don't eat much fruit or sugar.

Renaye

If the biopsies were negative - what intestinal damage? I think I missed something.... Oh...I see..they see inflammation but the biopsies are negative?
GFinDC Veteran

Hi Renaye,

 

Biopsies should come back negative for villi damage if you have been eating gluten-free for a while.  That would be normal.  Testing for celiac disease should always be done before going gluten-free, as the immune response decreases after the gluten is removed.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    VanessaC
    Newest Member
    VanessaC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.