Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treating Celiac Related Anemia While Taking A Ppi - Prevacid

HavaneseMom

Recommended Posts

HavaneseMom Explorer
HavaneseMom
Posted

Hi Everyone,

 

I am wondering if anyone has had success treating their Celiac related Iron Deficiency Anemia while taking a Proton Pump Inhibitor such as Prilosec or Prevacid?

 

I am currently taking Prevacid for GERD and have been taking various PPI's for about 3 years now. I was just recently diagnosed with Celiac Disease and am hoping that as my body begins to heal that I will be able to stop taking PPI's completely, but I have only been gluten free for a few weeks and still have lots of GERD issues.

 

I also have moderate anemia and my doctor has recommended that I take either 325 mg of iron, or 65 mg of elemental iron, three times a day. Everything I have read says that PPI's reduce stomach acid and inhibit absorption of iron. My doctor kind of blew me off when I asked him about this and said we could test in a few months to see if I am absorbing the iron. I am wondering if iron supplements will even work in correcting the anemia while I am taking the PPI? I would dive right in and start taking them, but when I have taken iron supplements in the past it has made me very nauseous along with constipation. I'm not sure if I should put my body through taking such high doses of iron if it won't be absorbed anyway?

 

If anyone here has any experience with the situation I would so appreciate any advice or suggestions. The fatigue and brain fog the anemia is causing me is pretty extreme and I want to work at correcting it as quickly as possible.

 

For reference my iron blood test numbers are:

Ferritin: 2 , Iron: 11 , Iron Binding Capacity: 466 , Iron Saturation: 2 , Hemoglobin: 9.2 , Hematocrit: 30.7

They are all out of ideal range, but I don't think they are bad enough for IV iron.

 

Thanks in advance!

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I had iron deficiency anemia.  My last ferritin check came back at 55 (started at 2).  Anemia was how I was diagnosed back at the end of March 2013 for celiac disease  My doc recommended iron taken twice a day.  I took a cautious approach.  I took nothing -- no supplements for a month.  Then I added in the iron taking only one a day with Vit. C at night prior to going to bed and started all the other supplements recommended on this forum for the various deficiencies I had.  That's it.  After another month I haphazardly began taking two (65 mg.) a day.  I'd reduce my dosage if I felt that it was causing constipation.  

 

I'm doing great now.  Back to running after a fractured vertebrae in June doing nothing!  (Get a bone scan!)  My hemoglobin is the best it's ever been (I also have Thalassemia another anemia that does not respond to iron).  I declined several blood transfusions by several doctors.  I decided to be patient.

 

Hopefully, you'll feel more relief in a few weeks and will be able to get off the GERD meds.  

 

Welcome to the board!

 

 

 

Think about slowly adding iron.  You won't absorb all, but at least a little.   Iron is a cheap supplement (esp. at Costco).  Add into your gluten-free diet, iron rich foods (like molasses, I ate it by the spoonful) and cook in cast iron.

HavaneseMom Explorer
HavaneseMom
Posted
  • Author

I had iron deficiency anemia.  My last ferritin check came back at 55 (started at 2).  Anemia was how I was diagnosed back at the end of March 2013 for celiac disease  My doc recommended iron taken twice a day.  I took a cautious approach.  I took nothing -- no supplements for a month.  Then I added in the iron taking only one a day with Vit. C at night prior to going to bed and started all the other supplements recommended on this forum for the various deficiencies I had.  That's it.  After another month I haphazardly began taking two (65 mg.) a day.  I'd reduce my dosage if I felt that it was causing constipation.  

 

I'm doing great now.  Back to running after a fractured vertebrae in June doing nothing!  (Get a bone scan!)  My hemoglobin is the best it's ever been (I also have Thalassemia another anemia that does not respond to iron).  I declined several blood transfusions by several doctors.  I decided to be patient.

 

Hopefully, you'll feel more relief in a few weeks and will be able to get off the GERD meds.  

 

Welcome to the board!

 

 

 

Think about slowly adding iron.  You won't absorb all, but at least a little.   Iron is a cheap supplement (esp. at Costco).  Add into your gluten-free diet, iron rich foods (like molasses, I ate it by the spoonful) and cook in cast iron.

Thank you for the great advice cyclinglady!

My anemia was what led to my Celiac diagnosis also. I am more comfortable taking the cautious approach you suggested - and I will try to be patient too. I have been so tired for so long that I want to see instant results, but it sounds like that is not realistic.

I am glad to hear you are doing so great! It is very encouraging. I actually have a Bone Density Scan scheduled for tomorrow. My Vitamin D level came back at 19, so I guess they want to look in to that too. Hopefully all will go well.

I will try the molasses and cast iron too. 

Thanks Again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,037
    • Most Online (within 30 mins)
      7,748
    Celiac mimi
    Newest Member
    Celiac mimi
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rjane
      Gluten Sensitivity

      By rjane · Posted

      my husband who is 67 has just been diagnosed with CELIAC'S and I am finding it very difficult to make meals for him, I have a new bread maker and finding it hard to make something edible from it, I am 81 and find now I have to eat the same as him ,as making meals is hard work and making 2 different meals even harder, he has been on the gluten free food for over a month and today he had a bad bout of the runs I am wondering if its my fault, I thought I was being so careful , I am finding it like a minefield trying to sort out what to give him when he has a bad day , any idea's would be welcome thank you  
    • knitty kitty
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By knitty kitty · Posted

      Welcome to the forum, @mytype1diabetes, Your statement that your daughter has become itchy and has hair loss made me think of iron deficiency.  Those were the same symptoms i had when I was iron deficient.  Was she tested for iron deficiency anemia at the time of her diabetes diagnosis?   Seems in the early stages of iron deficiency anemia, blood glucose levels can be falsely elevated.  Treating Vitamin D deficiency can also help immensely.  Vitamin D deficiency, iron deficiency, and deficiencies in the eight B vitamins, especially thiamine, can occur in Celiac disease.  Changes in stool can be caused by iron or thiamine deficiency. I was diagnosed with type two diabetes and had the same deficiencies.  I would not feel comfortable waiting three to six months for a recheck.  I would get the iron deficiency checked right away.   Hope this helps!  Sending prayers! References: The Effect of Iron Deficiency Anemia on Hemoglobin Glycation in Diabetics and Non-diabetics https://pmc.ncbi.nlm.nih.gov/articles/PMC11513211/#:~:text=noted increased HbA1c in IDA individuals%2C which,IDA before adjusting diabetes treatment [ 11]. Effects of iron deficiency anemia on hemoglobin A1c in type 1 diabetes mellitus https://pubmed.ncbi.nlm.nih.gov/10453183/ Impact of vitamin D deficiency on iron status in children with type I diabetes https://www.nature.com/articles/s41598-024-61559-5#:~:text=Iron-deficiency anemia is the,both clinical conditions that coexist. Thiamine Level in Type I and Type II Diabetes Mellitus Patients: A Comparative Study Focusing on Hematological and Biochemical Evaluations https://pmc.ncbi.nlm.nih.gov/articles/PMC7282352/
    • Wends
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By Wends · Posted

       So sorry and sending well wishes. Replying from the UK. The NHS Coeliac Screen test is igAttg (including total igA). Your toddler is unlikely igA deficient with a titer of 22, as a positive test. When the igA anti-tissue transglutaminase antibodies are raised above the reference value or positive, the endomysial test is performed. The TTG test is suggestive of coeliac disease BUT it can be transiently raised in type 1 diabetes, milk protein intolerance (common in early childhood. Can also cause malabsorption similar to coeliac disease). Can be slightly raised in other food sensitivity and food allergy and some other conditions. Whilst it is more specific for coeliac disease than the older anti-gliadin test the EMA test gives a high specificity for coeliac, but labour intensive test so is checked when the TTG shows positive as a further confirmation of a likelihood of Coeliac. Sometimes in children the anti-DGP (deaminated gliadin peptide) igA and IgG are performed as more likely positive in childhood coeliac disease. Unfortunately less used test these days in favour of ttg test. Though in research studies still utilised in addition to ttg and EMA. It usually follows that the EMA test will be positive in active coeliac disease later than the TTG shows positive. It may be classic transient antibodies with type 1. Likely what the Dr is counting on to not worry you or put your child through unnecessary testing. it also takes time as in weeks/months for antibodies to build up. The new guidelines by Gastroenterology Society say in children coeliac can be diagnosed without biopsy if the ttg is ten times the upper value. Plus positive EMA. EMA is usually positive after ttg. It’s a good sign it’s negative and the Doctor is doing the right thing to retest in three to six months. It’s the only way for a definite diagnosis and whether further testing is needed (endoscopy and biopsy). The Doctor is taking the wait and see approach as it is common in type 1s for the TTG antibodies to normalise too, and will be following standard practice. Return to your Dr sooner though, if there are signs of malabsorption and sudden deterioration. It wouldn’t be unreasonable to request another blood test sooner with symptoms of coeliac. It’s a tough one. Have you a family history? Re type 1, Dr Bernstein book invaluable, and type 1 grit online. If you’ve not heard of this elderly type 1 Dr (diagnosed as a child) and his story already you need to. Sadly he recently passed in his 90s still practicing and treating type 1s and 2s. Wealth of info on his diabetes university you tube channel. Was the first to start testing blood glucose numbers at home, he was an engineer and retrained as a Dr. He gave the information to the world and diabetics that its possible to have normal blood glucose numbers and prevent the complications. The law of small numbers. Hope this reply is helpful.  
    • trents
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By trents · Posted

      Here is an article that gives an overview of all tests that can be used to detect celiac disease:    As you can see, the different tests vary in their degree of specificity and sensitivity. So, it is to be expected that if someone has celiac disease, not all the tests will be positive. Also notice that the tests break down into two large groups, IGA-based tests and IGG-based tests. There is also the EMA (Endomysial Antibodies) which is an older test and has largely been supplanted by he tTG-IGA which is less expensive to administer. So, when you report that the TTG score from your daughter's bloodwork is 22ku/l, we assume you are referring to the tTG-IGA test, which is the most popular test ordered by physicians when checking for celiac disease and considered to be the centerpiece test. However, you do not mention if there was a "total IGA" test run. Whenever the tTG-IGA is ordered, a total IGA should also be ordered to check for IGA deficiency. IGA deficiency will result in other IGA test scores, such as the tTG-IGA being artificially low, even falsely negative. This is especially true for young children. This is discussed in the article I linked. If your physician did not order total IGA test, this should have been done. Do you have a recourse for requesting such? I should also mention that you must not withdraw gluten from your toddler's diet until all testing for celiac disease is completed. Doing so would invalidate the testing.
    • Scott Adams
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By Scott Adams · Posted

      I’m so sorry to hear about your toddler’s recent Type 1 diabetes diagnosis, and I understand how overwhelming it must feel to now be navigating possible celiac disease as well. The slightly elevated TTG antibodies (22 ku/L) with normal endomysial antibodies could indicate a few things—sometimes, mild elevations can occur due to factors other than celiac disease, such as recent infections or even Type 1 diabetes itself. However, the symptoms you’ve noticed (changes in stools, itching, and hair thinning) could potentially align with celiac disease, so it’s understandable why you’re concerned. Since the consultant wants to retest in 3–6 months, it may be because they’re assessing whether the antibody levels persist or increase, which would strengthen the case for further investigation (like a biopsy). In the meantime, if your daughter’s symptoms worsen or you feel uneasy waiting, it’s completely reasonable to ask for an earlier review or a referral to a pediatric gastroenterologist for further advice. Keeping a symptom diary until the next test might also help track any patterns. You’re doing a great job advocating for your little one—trust your instincts and don’t hesitate to push for more clarity if needed. Sending you lots of support.
×
×
  • Create New...