Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recovery Time?


ElenaMadrid

Recommended Posts

ElenaMadrid Newbie

Hello friends!

 

I've just adopted a gluten-free diet at the advice of my doctor in order to help with IBS-type symptoms.  I had not been eating much gluten before, but he encouraged me to go 100% off.  I've not had any official celiac testing, but I know that gluten exacerbates my issues (joint pain, eczema, diarrhea, migraine headaches, etc.) 

 

It's been about three weeks.  At first, I noticed a major improvement.  But this week I've had a few days of digestive complaints.  I imagine that if I have some kind of intestinal damage, it might take time to heal. 

 

Can you give me some idea of how long it took for some of you to have remission of symptoms, especially digestive symptoms?  What can I do to help my intestines heal?

 

Thank you for your help! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

It can take several weeks to three years depending on how badly your intestinal tract was damaged.  

 

It was a shame that he didn't run a Celiac blood panel.  I'm officially diagnosed (blood test and biopsy) but my husband was not.  He too, went off gluten at the advice of his doctor 12 years ago.  He's doing great, but it was hard getting support from family and friends compared to when I was diagnosed.  It also made it much easier for me to adhere to the diet.  I had proof of damage, along with anemia, thyroid issues, and osteopenia (vertebrae fracture last June).  

 

Best wishes and welcome to the board!

1desperateladysaved Proficient

Welcome Elena,

 

If you have a gluten problem, it will take less time to get better on the gluten free diet than off.

 

How long were you sick?

How nutritious is your food?

Do you know where to look for gluten?

Do you take supplements?

Do you have other intolerances?

Are you willing to stick to the gluten free diet 100%?

Do you share your kitchen, and if so will people watch out for you?

Are you committed to get well regardless of social pressure and obstacles?

 

The answers to these questions will help determine if and when you will get better.  You asked about healing the gut.  First off avoid gluten.  I also think one should take digestive enzymes and probiotics.  I used an IGG product to help heal my gut and it seemed to help me.  Also try to discover all of your intolerances and stop eating them, for a while, to give your body a break.  Don't cut out everything or more than you have to.  You can use a food diary, food elimination plan, or rotational diet to try to figure this out.  For now you may just want to give it more time to heal.

 

I once tried to get rid of my eczema by cutting out everything but peanut butter and rice cakes.  Now, I know that I don't tolerate either of those!  The eczema got worse.

 

I had symptoms over 30 years.  I am currently 18 months gluten free and am feeling much better.  Your on the path, keep walking.

 

D

ElenaMadrid Newbie

Thank you so much for your responses!  I'm absolutely committed to being 100% gluten-free.  I only share my kitchen with my boyfriend, and he knows how serious this is.  As far as seeking out hidden gluten, I think I'm pretty good at it, as I've had to seek out hidden MSG for so long in order to avoid migraines.  I know most of the sneaky names they use to mask ingredients.  Anyway, we do most of our own cooking from scratch anyway. 

 

At first I had what I assume were detox symptoms:  nausea, hangover-type headaches, severe crankiness!  I'm happy to say that's all passed.  I wonder if some of my continuing digestive symptoms might be detox as well. 

 

I think I eat a very nutritious diet in general:  lots of fresh fruits and vegetables, soaked non-gluten grains (rice, quinoa, millet), meat/fish/poultry, soaked nuts, eggs.  I don't eat much cheese because it doesn't agree with me, but I do eat organic goat's milk yogurt.  I get acupuncture regularly and the acupuncturist is really helpful for suggesting specific foods that are especially healing and nourishing. 

 

As I said, I've only been fully gluten-free for about three weeks, so I'm looking forward to seeing more and more improvement! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.