Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Adjusting The Changes In Socializing


Wheatie NOT

Recommended Posts

Wheatie NOT Newbie

Hello,

 

I was just diagnosed with celiac.  Does anyone have suggestions about how to cope with dinner invitations or requests to dine out?  People will tell me that a given resteraunt advertises a gluten free menu, but should I trust that?  How do I know it is really gluten free?

 

Also, how do you handle dinner invitations to somebody's house?  I started to say "thank you, I will be happy to come and share a beverage, but please don't be offended if I don't eat anything, as I was just diagnosed with celiac and can't have wheat."  As I also have another rare allergic condition, my diet is pretty darned restricted and I find that I feel "left out" at parties or work functions where everybody else is sitting there eating and there is nothing for me to eat.  It makes me feel really "different" like I don't fit in anymore.

 

Any advice on how to cope with that uncomfortable situation?

 

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

It is uncomfortable at first, and that's exactly when you need to really be on top of your food game, because you're trying to heal.  Here's a couple of thing's I've done for dinner parties, probably from advice on the forum. 

 

You can ask if you can bring a salad.  Package your own portion separately, toss it on a plate and eat while everybody is eating.

 

Eat ahead of time and say you aren't hungry, or bring a portion of something you can eat so that you can join everybody at the dinner table.  I usually take a little cooler I can carry over my shoulder and slip into the kitchen to make my own plate.

 

Bring your own food and if anybody questions it, just mention that you have dietary restrictions or severe food allergies, then change the subject if you're uncomfortable discussing it.  I think the hostess is more uncomfortable if you don't eat at all, it generally works out better to eat something while everybody is eating.  Everybody makes a bigger deal out of it if you don't eat. 

 

I personally have had bad experiences with supposed gluten-free restaurant menus with the exception of one seafood restaurant, one Cuban restaurant and an Indian restaurant.  I generally decline on invitations to go out to eat, because the whole drill just exhausts me, and I don't like being the grand inquisitor at dinner.  You can call ahead of time, but you still need to rely on the wait & kitchen staff not to poison you.

gilligan Enthusiast

I'm new at this also, but I think I'm going to find out what they are serving and bring my own.  You can always transfer it to one of their plates.

NoGlutenCooties Contributor

I'm new at the gluten free diet too - just passed the one month mark.  I went out to a restaurant for the first time since my diagnosis this last Friday night - it was a Halloween party and they had a buffet.  The wait staff could not have been nicer.  I spoke to one of the waitresses on the side, told her I was gluten intolerant (people seem to be more familiar with that than Celiac Disease - and assume they're the same thing) - anyhow... she actually knew what that was and quizzed the chef about what had been thickened with flour, etc.  She even brought me out the jar of BBQ sauce they had put on the ribs so I could read the label and make sure I could eat it.  I had gone prepared with some of my own food in case there wasn't anything there that I could eat but my point in all of this is that it IS possible to have a decent experience at a restaurant.

 

As far as social occasions at friends' houses, so far my friends have been very supportive.  If they weren't... I probably wouldn't consider them to be real friends.  But I agee with the other suggestions - take some food with you - eat what they have that you know is safe and add your own food to it.  If you're sensitive to cross-contamination, then only eat your own food.  Don't feel self-conscious about it - you're doing the right thing for you and your health.  I have found that most people wish they had the will-power to eat as healthy as I do.

GF Lover Rising Star

I won't go within 50 feet of a buffet...just sayin. 

 

Colleen 

Marilyn R Community Regular

I won't go within 50 feet of a buffet...just sayin. 

 

Colleen 

I concur...just sayin.

M

Wheatie NOT Newbie

Thanks so much everybody, I really appreciate your input.  Actually, two of my friends also have celiac or gluten intolerance, and luckily, they are the one's who give the most dinner parties!

 

Ironically, there are only four people at my worksite that have it, and three of them are in my workgroup.  So when I bring cookies to meetings or things for holidays, all the "no wheaties" get a little bag from me.

 

Might as well have fun with it I say!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carebear Apprentice

I'm new at the gluten free diet too - just passed the one month mark.  I went out to a restaurant for the first time since my diagnosis this last Friday night - it was a Halloween party and they had a buffet.  The wait staff could not have been nicer.  I spoke to one of the waitresses on the side, told her I was gluten intolerant (people seem to be more familiar with that than Celiac Disease - and assume they're the same thing) - anyhow... she actually knew what that was and quizzed the chef about what had been thickened with flour, etc.  She even brought me out the jar of BBQ sauce they had put on the ribs so I could read the label and make sure I could eat it.  I had gone prepared with some of my own food in case there wasn't anything there that I could eat but my point in all of this is that it IS possible to have a decent experience at a restaurant.

 

 

 

 

A friendly warning - when I was at the one month mark, I could handle all kinds of CC and gluten traces.  As my diet became cleaner, however, I became much more sensitive.  Please be careful!

NoGlutenCooties Contributor

 

A friendly warning - when I was at the one month mark, I could handle all kinds of CC and gluten traces.  As my diet became cleaner, however, I became much more sensitive.  Please be careful!

 

 

I hear you.  I really do.  My uncle is extremely sensitive to cross-contamination issues, so I know exactly what you're talking about.  I'm taking it one step at a time.  I know I don't get any gluten at all at home - I live alone and cook for myself.  Very few, if any processed foods, etc.  I only eat out a couple times a month.  So while I'm being very careful not to eat anything with purposeful gluten in it, I have not had to be too concerned with the accidental CC issues.  At least not yet.  I know it can - and often - happens (meaning getting worse over time).  I'll cross that bridge when I get there.

 

I also go back in about 5 months to get my bloodwork checked again - the doc. says that will also be an indication as to whether or not I need to worry about CC issues.

 

All that said... I do appreciate the head's up and the reminder.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,977
    • Most Online (within 30 mins)
      7,748

    Riley.
    Newest Member
    Riley.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.