Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reliv? (a Nutritional Food)

nettiebeads

Recommended Posts

nettiebeads Apprentice
nettiebeads
Posted

My brother and his wife and distributers of Reliv - a supplement that is to better your life. I'm kind of toying with the idea of trying the Reliv Now and an energy booster. Has any one with celiac had experience with the product? I was at the sales pitch last night - there are different products by this company. The Reliv classic had oat bran - so I said that product was out for me. Another product had pearl barley - again, that's out for me. So my db and sil are telling me that there are celiacs who are involved with Reliv who have been "cured" and that after I've been on the Now product I'll be able to tolerate the other products that I won't touch at this point in time. Once you have celiac, you have celiac. Period. I know that. But to be told by people I thought who cared that I'll be able to ingest things that my body currently reacts to very negatively kinda got to me.

A young man was there who's been healed of allergies and called celiac an allergy. I corrected him and said "autoimmune disease". Got sort of a whatever from him. But he agreed w/my db and sil that the pearl barley wouldn't bother me!!! I don't doubt that the stuff helps people - but I'm not going to ingest anything that I'm not sure of. When in doubt, do without.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

You are right and there are very wrong. That kind of stuff is annoying!

skbird Contributor
skbird
Posted

OK, I'm trying to put this tactfully, but remember they are distributors, which means they make money off selling it. Please be careful there. You can't have barley, you know that, and you also know it's autoimmune so it's not going to go away.

I'm sorry, that must be awkward.

Take care

Stephanie

confusedaunt Newbie
confusedaunt
Posted

I don't know all the ins & outs, but my parents also bought into Reliv. There are some amazing testimonials with that company. I know that my father (who was diagnosed with prostate cancer in 02) definitely feels better when he uses it. Not that it will ever cure him, but I think it definitely makes him feel better. I would ask your brother for a list of ingredients & ask your doc.

julie5914 Contributor
julie5914
Posted

I doubt that they would knowingly lie to you just to sell their product - they probably believe what they are saying both because of testimonials about the product and little knowledge about celiac as an autoimmune disease and not an allergy. It may very well make people feel better, but I would check and see what studies may have been done on it by skeptics to get the full spectrum. People could be getting a good mix of vitamins and minerals that works and makes them feel better, but they could be having the placebo affect and simply need to believe that it works because they have already spent their money.

nettiebeads Apprentice
nettiebeads
Posted
  • Author
I doubt that they would knowingly lie to you just to sell their product - they probably believe what they are saying both because of testimonials about the product and little knowledge about celiac as an autoimmune disease and not an allergy. It may very well make people feel better, but I would check and see what studies may have been done on it by skeptics to get the full spectrum. People could be getting a good mix of vitamins and minerals that works and makes them feel better, but they could be having the placebo affect and simply need to believe that it works because they have already spent their money.

<{POST_SNAPBACK}>

You are right, there is a big difference between empirical evidence and anecdotal stories. We had dinner out Fri with the families and I sat next to my brother. As I handed my dining card to the waiter my brother is saying under his breath 'if you were on reliv, you wouldn't need the cards'. I didn't respond to that. And at this restaurant the serve fresh baked bread sticks while you wait for the entrees to come out. So he's waving the basket of bread at me chanting 'wheat....wheat....wheat'. I found that juvenile, but I ignored that also; but it did hurt - my own brother :( . I get that from a coworker but he's a pain all the time so him I can tune out. So I've decided that next time db brings up reliv and celiac I will ask for empirical evidence and also tell him that I don't want to hear reliv and celiac again in the same sentence. End of subject.

And thanks to everyone for your responses and caring. This is the greatest group of people anyone could ever wish for - disease or no disease! :wub:

Guest nini
Guest nini
Posted

OK, I've been WAITING for this one... Two and 1/2 years ago when I was first dx, I had a client that was selling Reliv and she sold me on it... I tried it and boy oh boy did it not only NOT HELP but it was expensive.

and it made my symptoms much worse because it IS NOT gluten free. All that about it curing Celiac is just a bunch of crap made up by the inventor/investor in this product line. Claims that it can cure are just bogus.

Tell your BIL that there is not enough scientific evidence about Reliv, BY REPUTABLE SOURCES that confirms their claims and that you PERSONALLY know a celiac that tried it (me) and it DID NOT help.

Stuff like that makes me really angry when they say "under their breath" that if you were doing such and such you wouldn't need blah blah blah...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
  • Author
OK, I've been WAITING for this one... Two and 1/2 years ago when I was first dx, I had a client that was selling Reliv and she sold me on it... I tried it and boy oh boy did it not only NOT HELP but it was expensive. 

and it made my symptoms much worse because it IS NOT gluten free. All that about it curing Celiac is just a bunch of crap made up by the inventor/investor in this product line. Claims that it can cure are just bogus.

Tell your BIL that there is not enough scientific evidence about Reliv, BY REPUTABLE SOURCES that confirms their claims and that you PERSONALLY know a celiac that tried it (me) and it DID NOT help.

Stuff like that makes me really angry when they say "under their breath" that if you were doing such and such you wouldn't need blah blah blah...

<{POST_SNAPBACK}>

THANKS nini!!!! I really appreciate your response. What I hate is that for nearly a decade my brother and his wife had been very understanding and very careful whenever there was a family get together at their house. Now they've changed and make me feel that since I still have celiac it's MY fault. Autoimmune is forever! Sheesh! Thank goodness my other in-laws aren't so judgmental. (well, all but one and her special diet is very important - post bariatric surgery. She doesn't mind inconveniencing everyone else for her needs, but reverse the role and....) I figured that the next time Reliv is brought up I'll ask for the published article in JAMA (I know there isn't one :P )

Guest nini
Guest nini
Posted

Yeah! You go ask for that published article in JAMA! Sheesh... I'm sorry they are being so pushy about this product...

I'm sure it's helped a lot of people, but it is extremely dangerous for them to make a claim that a GLUTEN CONTAINING product can CURE CELIAC???!!!!! WTF?????!!!!!

Good luck with that.

tarnalberry Community Regular
tarnalberry
Posted

Have you tried telling him "Reliv will not change my genetic code. Hence, it will not sure celiac disease." Saying it's autoimmune may not be enough for him to make the connection on his own. Other than that, I think your approach of ignoring it is exactly the right way to go at this point.

  • 4 years later...
gf4422j Newbie
gf4422j
Posted

I know Reliv's Fibrestore has Oatbran in it. I'm gluten intolerant and cannot take the Fibrestore but have no symptoms on the Classic. The soy they use comes from a source that is NOT genetically engineered. It is a higher grade than you would find in the market place.

THIS WAS ON THE LABEL:

Reliv Classic Other Ingredients: Soy Protein Isolate, Soy Flour, Brewer

psawyer Proficient
psawyer
Posted

Reliv Classic Other Ingredients: Soy Protein Isolate, Soy Flour, Brewer

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,708
    • Most Online (within 30 mins)
      7,748
    coachnitro
    Newest Member
    coachnitro
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      SSRI stopped working after gluten free diet due to Celiac diag

      By cristiana · Posted

      Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12.  At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when I started to get diarrhea and was losing weight.  That then led another GP to do more tests and coeliac disease was the culprit. Clinical anxiety can be very scary indeed and I suffered with a horrible, irrational phobia at that time, too.  I could hardly think straight.  My GP put me onto citalopram but also, thankfully, I found a couple of books that helped me to get through this time and I always mention them on this forum, at the risk of repetition, because they were a huge help to me. Paul David's 'At Last a Life' book (and his forum), as well as Dr Steve Llardi's 'The Depression Cure' book which looks at things which we neglect in modern life, such as physical exercise, omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness and  meaningful, engaging activity.  These things can really make a difference.   At the same time, my vitamin and mineral deficiencies were addressed.  Have you had your levels checked, particularly B12 and iron?  These are particularly important as deficiencies can really affect people's mental health.  If they are low or low normal, get your doctor to prescribe some supplements, but at the same s/he needs to keep an eye on iron going forward, as too much in the blood is dangerous.  I found B12 incredibly helpful in feeling better in the early stages of my recovery - sometimes, it was almost like night and day just a few hours after taking it.  (Someone on this forum recommended Solgar sublingual tablets, they are great.) My anxiety started to get a lot better after a few weeks but there were setbacks which made me at times think I'd not recovered, or perhaps ever would.  But like a jagged line on a chart, which has ups and downs but over all has an upward trajectory, I did get better in the end.  I hope that you will find the same, and that perhaps some of this story has helped.  
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      So after  a long time in which I got my zinc and folic acid levels back on track I will now start with taking Thiamine to see if that does anything. According to my blood levels I'm not low on Thiamine but, if I understand correctly, blood works are not the best way to find out if there is a Thiamine shortage. How much Thiamine should I take to start with? 100 mg? 
    • Scott Adams
      Curious if I should quit my job

      By Scott Adams · Posted

      I'm in the "never reveal your plans to the enemy" camp on this one--it's none of their business if you're looking for another job, so I would leave that out of any conversation. Also, retaliation can be common with some employers, especially if you bring up the ADA and claim a disability because of celiac disease. I was a corporate paralegal for 5 years and handled employment claims against some major USA companies, and I've seen it all--even by huge companies that contract with the government and should know better. I say keep your cards close to your vest, wear an N95 mask if you handle wheat flour, and quietly look for another job if you feel you can't continue there.  Oh, and when I say "enemy," I mean that unscrupulous managers may quickly become your enemy, even if the law is on your side, and they could find trivial reasons to give you the 3 quick warnings that may be necessary to fire you. Very few lawyers would take such a case on a contingency basis, so unless you have a stockpile of money, you'd have no recourse. 
    • trents
      Curious if I should quit my job

      By trents · Posted

      @ohmichael doesn't have an official diagnosis of celiac disease yet. That would need to happen if he were to pursue a disability claim.
    • Scott Adams
      Biopsy confirmed no celiac, low gliadin igg but high gliadin iga?

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. According to this article your two positive DGP-IgA tests mean:  
×
×
  • Create New...