Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am In A Funk


ItchyAbby

Recommended Posts

ItchyAbby Enthusiast

I have been feeling bad in the afternoons - shaky, nauseous, really tired, irritable. I feel marginally better when I eat something, so maybe it's a blood sugar thingy. But it's hard to eat when I am queasy.

 

And the #&$%ing rash - just ebbs and flows as it pleases, disrupting my sleep, my work, everything.

 

I am paranoid lately, totally convinced that something in my kitchen is contaminating me. I keep finding things that I am uncertain about - did I get this out of the bulk bins? Was this certified gluten free? I am loathe to throw them out - this gets expensive! But, I am not using it anyway, so....

 

I also got a flu shot yesterday and I think it is making me feel even more awful. I am super tired today.

 

And the anxiety - not as bad as it was before going gluten free, but still there and oh-so-tiresome.

 

*sigh*

 

I want my life back. I want to just have one day without itching, anxiety, sleeplessness, irritability, crying, fear and/or just not feeling so great. Just one day. Please.

 

Sorry for the pity party rant. And thanks for being here to hear me rant. I'm going to go cry now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Oh, I am sorry to hear you are having such a rough time. I have no medical advice or recommendations but just know I am thinking of you. There is always hope. ALWAYS. Hang in there, ok? Maybe have a hot cup of tea and a nice long bath with a good book.

w8in4dave Community Regular

I know how you feel!! I have been in a Funk also ... I know when your first Dx'd you do question everything!! The things I got out of the big bins, I wasn't sure about ,I gave to friends who can use it. I cannot take the chance. But lately something has been bothering me and I am not 100% what it is!! I think tonight I figured it out! I am hoping it isn't what I think it is, but I will check it tomorrow. I get a bit depressed and then I shut down. I close out my friends, I don't answer the phone. I even had quit posting in here then one of the Mods emailed me and I said I was in a funk. When I seen your post I thought , I don't remember posting that!! Lol I hope you feel better soon!! Make a log of everything you put in your mouth! It may help... Good luck

GF Lover Rising Star

Listen up you two Funky girls.  Healing is a process and can be a dreadfully long, aggravating and painful process. 

 

Abster,  re-read the DH threads and what Squirmy has has told you and concentrate on being as comfortable as you can.  Get as much rest as you can.  No iodine, no wheat products on skin and clean diet.  You have to get through this part to get well.  

 

Waitin,  there are no quick cures out there.  Only time will help.  You've drastically changed your diet.  Your body needs to catch up to your thinking.   I use the 15 minute rule.  For every 15 minutes of activity, follow with 15 minutes of rest.  Your body can't heal it if is stressed out.

 

About a year ago my life changed.  I had to accept that I now have certain restrictions.  I fought it like hell but only hurt myself by not accepting my new level of abilities.  It takes a lot of patience to get to the place where you don't feel completely overwhelmed by what life has thrown at you.

 

You guys are going to be alright.  Keep your eye on the goal.  Keep things in your life simple for now.  Listen to some music, gaze out a window, take a long walk.  Savor each day for what it is... LIFE

 

Colleen 

ItchyAbby Enthusiast

Thanks, you guys. It helps to have you all here. I really am doing better than I was, but some days...I just don't got it, you know? I try so hard and work so hard to keep my head up and for the most part I am succeeding. But today, it just fell apart. And I get so scared. This thing scares me so much. I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

And I am pissed that I had to miss my sewing class tonight. I love my sewing classes, they are important to me. But I was feeling so not good (probably from the flu shot) that I just did not think it was a good idea to go. And that just sucks.

 

I took a bath, drank tea and then my sweetheart hugged me while I cried, then rubbed my feet and we watched a show together. He's a treasure.

Marilyn R Community Regular

Thanks, you guys. It helps to have you all here. I really am doing better than I was, but some days...I just don't got it, you know? I try so hard and work so hard to keep my head up and for the most part I am succeeding. But today, it just fell apart. And I get so scared. This thing scares me so much. I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

And I am pissed that I had to miss my sewing class tonight. I love my sewing classes, they are important to me. But I was feeling so not good (probably from the flu shot) that I just did not think it was a good idea to go. And that just sucks.

 

I took a bath, drank tea and my sweetheart hugged my while I cried, then rubbed my feet and we watched a show together. He's a treasure.

At  end of the day, your time spent with your sweetheart was way more important than your sewing class IMHO.  There's always next week...

NoGlutenCooties Contributor

 I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

 

I know this can be easier said than done sometimes, but try not to get twisted over what MIGHT happen.  If something bad happens, freak out about it WHEN it happens.  Because whether or not you freak out about it BEFORE it happens, you're going to freak out when it happens anyways... and there's just no sense in freaking out about it twice.  And if it never happens... you saved yourself from an unnecessary stressful, twisted, freak-out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ItchyAbby Enthusiast

At  end of the day, your time spent with your sweetheart was way more important than your sewing class IMHO.  There's always next week...

True that. It was no hardship staying home, cozy by the fire with him.

 

I know this can be easier said than done sometimes, but try not to get twisted over what MIGHT happen.  If something bad happens, freak out about it WHEN it happens.  Because whether or not you freak out about it BEFORE it happens, you're going to freak out when it happens anyways... and there's just no sense in freaking out about it twice.  And if it never happens... you saved yourself from an unnecessary stressful, twisted, freak-out.

You are right, I know this. I do so well at this sometimes, but this week...eck. I am worn down a bit, I think. I am in the middle of a flare that has been non-stop for almost three weeks. Again, not as bad as it was back in the spring, but it is disruptive nonetheless. It's almost like I have PTSD - my reactions to anything feeling even slightly off in my body go way overboard.

 

But really, freaking about about the unknowns does me no good. Thank you for the reminder

w8in4dave Community Regular

Listen up you two Funky girls.  Healing is a process and can be a dreadfully long, aggravating and painful process. 

 

Abster,  re-read the DH threads and what Squirmy has has told you and concentrate on being as comfortable as you can.  Get as much rest as you can.  No iodine, no wheat products on skin and clean diet.  You have to get through this part to get well.  

 

Waitin,  there are no quick cures out there.  Only time will help.  You've drastically changed your diet.  Your body needs to catch up to your thinking.   I use the 15 minute rule.  For every 15 minutes of activity, follow with 15 minutes of rest.  Your body can't heal it if is stressed out.

 

About a year ago my life changed.  I had to accept that I now have certain restrictions.  I fought it like hell but only hurt myself by not accepting my new level of abilities.  It takes a lot of patience to get to the place where you don't feel completely overwhelmed by what life has thrown at you.

 

You guys are going to be alright.  Keep your eye on the goal.  Keep things in your life simple for now.  Listen to some music, gaze out a window, take a long walk.  Savor each day for what it is... LIFE

 

Colleen

 

TY Colleen, 

I know I am feeling a lil better and I needed that lil "Talk" I actually think bootin Corn out of my diet is helping me also. I just keep needing a boot I guess!! Funny one of my biggest sayings when my kids were small was "Patients is a Virtue" I don't have patients. But I will really try to be patient! It is hard but I will try my darndest! What other option do I have really? I will be ok!! I am taking care of me!! I just hate this tho! I can do the diet! I can restrict eating what ever they tell me to! It is just the feeling like I do.. But I will push thru it! I will make it!! Thanks for the pep talk!  :)

w8in4dave Community Regular

Something happened up there lol you get the jest! TY! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.