Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am In A Funk


ItchyAbby

Recommended Posts

ItchyAbby Enthusiast

I have been feeling bad in the afternoons - shaky, nauseous, really tired, irritable. I feel marginally better when I eat something, so maybe it's a blood sugar thingy. But it's hard to eat when I am queasy.

 

And the #&$%ing rash - just ebbs and flows as it pleases, disrupting my sleep, my work, everything.

 

I am paranoid lately, totally convinced that something in my kitchen is contaminating me. I keep finding things that I am uncertain about - did I get this out of the bulk bins? Was this certified gluten free? I am loathe to throw them out - this gets expensive! But, I am not using it anyway, so....

 

I also got a flu shot yesterday and I think it is making me feel even more awful. I am super tired today.

 

And the anxiety - not as bad as it was before going gluten free, but still there and oh-so-tiresome.

 

*sigh*

 

I want my life back. I want to just have one day without itching, anxiety, sleeplessness, irritability, crying, fear and/or just not feeling so great. Just one day. Please.

 

Sorry for the pity party rant. And thanks for being here to hear me rant. I'm going to go cry now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Oh, I am sorry to hear you are having such a rough time. I have no medical advice or recommendations but just know I am thinking of you. There is always hope. ALWAYS. Hang in there, ok? Maybe have a hot cup of tea and a nice long bath with a good book.

w8in4dave Community Regular

I know how you feel!! I have been in a Funk also ... I know when your first Dx'd you do question everything!! The things I got out of the big bins, I wasn't sure about ,I gave to friends who can use it. I cannot take the chance. But lately something has been bothering me and I am not 100% what it is!! I think tonight I figured it out! I am hoping it isn't what I think it is, but I will check it tomorrow. I get a bit depressed and then I shut down. I close out my friends, I don't answer the phone. I even had quit posting in here then one of the Mods emailed me and I said I was in a funk. When I seen your post I thought , I don't remember posting that!! Lol I hope you feel better soon!! Make a log of everything you put in your mouth! It may help... Good luck

GF Lover Rising Star

Listen up you two Funky girls.  Healing is a process and can be a dreadfully long, aggravating and painful process. 

 

Abster,  re-read the DH threads and what Squirmy has has told you and concentrate on being as comfortable as you can.  Get as much rest as you can.  No iodine, no wheat products on skin and clean diet.  You have to get through this part to get well.  

 

Waitin,  there are no quick cures out there.  Only time will help.  You've drastically changed your diet.  Your body needs to catch up to your thinking.   I use the 15 minute rule.  For every 15 minutes of activity, follow with 15 minutes of rest.  Your body can't heal it if is stressed out.

 

About a year ago my life changed.  I had to accept that I now have certain restrictions.  I fought it like hell but only hurt myself by not accepting my new level of abilities.  It takes a lot of patience to get to the place where you don't feel completely overwhelmed by what life has thrown at you.

 

You guys are going to be alright.  Keep your eye on the goal.  Keep things in your life simple for now.  Listen to some music, gaze out a window, take a long walk.  Savor each day for what it is... LIFE

 

Colleen 

ItchyAbby Enthusiast

Thanks, you guys. It helps to have you all here. I really am doing better than I was, but some days...I just don't got it, you know? I try so hard and work so hard to keep my head up and for the most part I am succeeding. But today, it just fell apart. And I get so scared. This thing scares me so much. I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

And I am pissed that I had to miss my sewing class tonight. I love my sewing classes, they are important to me. But I was feeling so not good (probably from the flu shot) that I just did not think it was a good idea to go. And that just sucks.

 

I took a bath, drank tea and then my sweetheart hugged me while I cried, then rubbed my feet and we watched a show together. He's a treasure.

Marilyn R Community Regular

Thanks, you guys. It helps to have you all here. I really am doing better than I was, but some days...I just don't got it, you know? I try so hard and work so hard to keep my head up and for the most part I am succeeding. But today, it just fell apart. And I get so scared. This thing scares me so much. I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

And I am pissed that I had to miss my sewing class tonight. I love my sewing classes, they are important to me. But I was feeling so not good (probably from the flu shot) that I just did not think it was a good idea to go. And that just sucks.

 

I took a bath, drank tea and my sweetheart hugged my while I cried, then rubbed my feet and we watched a show together. He's a treasure.

At  end of the day, your time spent with your sweetheart was way more important than your sewing class IMHO.  There's always next week...

NoGlutenCooties Contributor

 I am so afraid of missing something, that I will suddenly get worse and not know why and have to go through the hell with doctors that I went through in the first half of this year. It really messes with my head sometimes.

 

 

I know this can be easier said than done sometimes, but try not to get twisted over what MIGHT happen.  If something bad happens, freak out about it WHEN it happens.  Because whether or not you freak out about it BEFORE it happens, you're going to freak out when it happens anyways... and there's just no sense in freaking out about it twice.  And if it never happens... you saved yourself from an unnecessary stressful, twisted, freak-out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ItchyAbby Enthusiast

At  end of the day, your time spent with your sweetheart was way more important than your sewing class IMHO.  There's always next week...

True that. It was no hardship staying home, cozy by the fire with him.

 

I know this can be easier said than done sometimes, but try not to get twisted over what MIGHT happen.  If something bad happens, freak out about it WHEN it happens.  Because whether or not you freak out about it BEFORE it happens, you're going to freak out when it happens anyways... and there's just no sense in freaking out about it twice.  And if it never happens... you saved yourself from an unnecessary stressful, twisted, freak-out.

You are right, I know this. I do so well at this sometimes, but this week...eck. I am worn down a bit, I think. I am in the middle of a flare that has been non-stop for almost three weeks. Again, not as bad as it was back in the spring, but it is disruptive nonetheless. It's almost like I have PTSD - my reactions to anything feeling even slightly off in my body go way overboard.

 

But really, freaking about about the unknowns does me no good. Thank you for the reminder

w8in4dave Community Regular

Listen up you two Funky girls.  Healing is a process and can be a dreadfully long, aggravating and painful process. 

 

Abster,  re-read the DH threads and what Squirmy has has told you and concentrate on being as comfortable as you can.  Get as much rest as you can.  No iodine, no wheat products on skin and clean diet.  You have to get through this part to get well.  

 

Waitin,  there are no quick cures out there.  Only time will help.  You've drastically changed your diet.  Your body needs to catch up to your thinking.   I use the 15 minute rule.  For every 15 minutes of activity, follow with 15 minutes of rest.  Your body can't heal it if is stressed out.

 

About a year ago my life changed.  I had to accept that I now have certain restrictions.  I fought it like hell but only hurt myself by not accepting my new level of abilities.  It takes a lot of patience to get to the place where you don't feel completely overwhelmed by what life has thrown at you.

 

You guys are going to be alright.  Keep your eye on the goal.  Keep things in your life simple for now.  Listen to some music, gaze out a window, take a long walk.  Savor each day for what it is... LIFE

 

Colleen

 

TY Colleen, 

I know I am feeling a lil better and I needed that lil "Talk" I actually think bootin Corn out of my diet is helping me also. I just keep needing a boot I guess!! Funny one of my biggest sayings when my kids were small was "Patients is a Virtue" I don't have patients. But I will really try to be patient! It is hard but I will try my darndest! What other option do I have really? I will be ok!! I am taking care of me!! I just hate this tho! I can do the diet! I can restrict eating what ever they tell me to! It is just the feeling like I do.. But I will push thru it! I will make it!! Thanks for the pep talk!  :)

w8in4dave Community Regular

Something happened up there lol you get the jest! TY! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,977
    • Most Online (within 30 mins)
      7,748

    Riley.
    Newest Member
    Riley.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.