Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Tests Are In


SimonSez0721

Recommended Posts

SimonSez0721 Rookie

Ok, so, I have an advance copy of my blood work from last weeks celiac panel but do not have an appointment to go back to have a consultation until December 2. I'm hoping some of you will be able to help me interpret these numbers.

In addition to gas, bloating, and cramps, I am also currently suffering with the following:

Fibromyalgia, CFS, migraines, myofacial pain syndrome, degenerative disc disease, patellofemoral syndrome, benign hyper-mobility, insomnia, anxiety and depression secondary to living with chronic pain for 25 years, kidneystones, and a recent gallbladder removal secondary to pancreatitis.

It appears to me, however, that Celiac might not be the cause of all that ails me?

tTG. 19. 19 or less = normal

Endomysial <1:10

Reticulin Antibody negative

A few non-celiac but interesting numbers:

ESR Sed rate 8

Lipase 16

Basophil% Reference range 0.0-5.0%. Mine is 0.6. They've never checked this before for me. Hm, that's of some interest...

Does anybody have any thoughts?

thank you in advance, your input to my previous post was so amazing. I am so grateful for everyone's insight!

Thank you,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I'm guessing that your doctor will probably declare you normal because your results are technically in range, but I don't know if I agree. With your symptoms, and a borderline tTG IgA, I think celiac disease could be a possibility for you. An EMA titre of 1:10 is sometimes sonsidered positive as well (depends on the lab). If that is the case with you, then I think celiac disease is pretty much a sure thing. An EMA test is only positive when the damage to the villi is pretty extensive and the disease is well established - it's very specific to celiac disease.

 

Good luck with your appointment. Are staying on gluten until then?

SimonSez0721 Rookie

Thank you for your reply,

Yes, I am staying on gluten until after my doctor reviews my labs and decides whether or not to request an endoscopy. He did say that he felt the lab work was not super reliable, so maybe he will feel like following up with additional studies it they are close enough to being weak positive.

I was remembering, that my daughter, was having daily stomach aches at the age of 8. Her doctors were never able to find a cause but casually mentioned once, "Oh, by the way, we tested you for food allergies. You are allergic to peanuts, egg whites, and wheat."

Hm. Curious.

nvsmom Community Regular

Allergies are a different part of the immune system than what is affected by celiac disease,although celiacs do seem to have many allergies. Allergies are through the immunoglobulin E (IgE) system whereas celiac disease is in the IgA (mucosal linings) and IgG (system wide dealing with pathogens). There could be a link, but I personally don't know of it.

JustCricket Newbie

Basophils are one of the white blood cells. I believe they are associated with allergy and correlate with IgE. (Stretching my study of Immunology from a few years ago.) 

 

My neutrophil and C reactive protein (both associated with inflammation) were tested a few years back, so this is just another check on your immune system, to see if there is a possible infection or allergy going on. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.