Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Extra Medical Care I Should Receive?


upwitht21

Recommended Posts

upwitht21 Rookie

I was diagnosed 2 years ago (this week actually) and I recently read an article that someone with celiacs ahold receive more medical follow up (in a nut shell)

I haven't had any follow up since my blood test diagnosis (my son had a positive biopsy so I opted out being as I had a positive blood test and was super symptomatic), I'm wondering if there are things I should be following up on?

I am fairly confident my diet is on track, still struggling with finding soaps and things I can use without breaking out but other than that I feel okay.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Every year, you should be getting follow up blood work to make sure you aren't making antibodies.  I have to print this page I linked to off every year and show my doctor.  It can be done by your regular doctor  or your OB/GYN.  If it is high, you will want to re-evaluate your diet and cc.

 

 

Open Original Shared Link

nvsmom Community Regular

Checking nutrient levels could be helpful: calcium, iron, potassium, magnesium, B12,D, A, zinc, copper, ferritin are sometimes low.

Hypothyroidism is common in celiacs. TSH, TPO Ab, free T3 and free T4 can check that.

Liver, and adrenal function appears to be impacted in some celiacs. If you have symptoms you could get them checked too.

Retesting celiac tests can be helpful although it did't help me. DGP tests are the best for this but the tTG or EMA tests can help too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,703
    • Most Online (within 30 mins)
      7,748

    Shenaz
    Newest Member
    Shenaz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @nanny marley, Have you been taking any vitamins or mineral supplements besides Vitamin D? What are you eating?  Do you eat processed gluten free foods?   You said your symptoms included fatigue, body hair loss, low vitamin d,  Restless Leg Syndrome, Raynaud's Syndrome, contact dermatitis, rhinitis, body aches, TMJ, heart palpitations, sleep issues, vomiting,  dizziness, frequent bowel movements. There's eight B vitamins and Vitamin C that are water soluble.  When one has diarrhea for extended periods of time, those water soluble essential vitamins are flushed out of the body easily, and there's little time to absorb any more water soluble vitamins or fat soluble vitamins from food moving through that fast.   It's easy to become vitamin deficient with diarrhea.   Deficiency in Vitamin B1, Thiamine, can result in Gastrointestinal BeriBeri which can also cause diarrhea, fatigue, and abdominal pain.  Deficiency in Vitamin B3, Niacin, can cause diarrhea as well as skin rashes, and sleep issues.  Deficiency in Vitamin B12, Cobalamine, can cause diarrhea and Restless Leg Syndrome.  Deficiency in Vitamin C can cause diarrhea and skin rashes. Thiamine deficiency can also cause heart palpitations, sleep issues, and vomiting.  Have you had your thyroid checked?  Hypothyroidism can cause body hair loss, as can iron deficiency.   I've experienced serious nutritional deficiencies which my doctors did not recognize as such and blamed me for making stuff up.  I've experienced these nutritional deficiencies.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins were doing inside the body.  Vitamins are special organic compounds that our bodies cannot make, so we must get them from food or supplements.  Without these vitamins, our bodies cannot function well. Talk to your doctor and nutritionist about supplementing with vitamins and minerals that are lacking on the gluten free diet.  Blood tests for deficiencies in the B vitamins are not accurate.  Taking a B Complex and looking for health improvement is best.   I've got serious vision problems and would really appreciate punctuation.  Thanks P.S.  I take a combination of Thiamine, Cobalamine B12 and Pyridoxine B6 for back pain from crushed vertebrae.  I understand back pain.  These vitamins together relieve pain. 
    • nanny marley
      I ment nan not van 🤗
    • nanny marley
      Ii wasn't asked about that she just said if you can't tk the gluten diet have colonoscopy to check for cancer has my van had it and because I'd had naproxen for stomach ulcers but I stopped that a  while back but I've been very ill this week with the back issues so I can't have the colonoscopy too someone said ask for the virtual one it's much easier for people who have body issues too but I'm not sure I can request that if she doesn't think I need that she was basically saying IBS because Ive suffered since age 25 but that's Wen the back started too and I'm sure high calprotein isn't with IBS I've been low in iron Wen I was jounger and I'm always low in vitamin d I take my own supplement for that now there is definitely something going off its been too long a drawn out problem with added symptoms so I i will keep investigating 
    • Sanna King
      King Arthur Gluten-free bread flour contains wheat starch, but has had the gluten removed. According to the FDA, it meets the FDA's gluten-free standard of less than 20 parts per million (ppm) of gluten. Has anyone here tried to bake bread from this? If yes, did you have a reaction? Thank you in advance for your time and attention. 
    • Gliadingoaway
×
×
  • Create New...