Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post Here To Join Celiac.com's Online Support Group With Live Chat Meetings! (Free)

Scott Adams

Recommended Posts

Clare123 Newbie
Clare123
Posted

hello, I was diagnosed with celiac disease 14 months ago I have been gluten free for about 12 months what I find hardest is cross contamination I try my best to be gluten free. when I'm glutened I find my mood totally changes and the littlest things can set me off I have four children who suffer the effects of gluten

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 81
  • Created
  • Last Reply
kareng Grand Master
kareng
Posted

hello, I was diagnosed with celiac disease 14 months ago I have been gluten free for about 12 months what I find hardest is cross contamination I try my best to be gluten free. when I'm glutened I find my mood totally changes and the littlest things can set me off I have four children who suffer the effects of gluten

 

 

Welcome. Are you just suggesting a topic for the chats?  Or did you have a question?  If you have some specific questions, you might want to make a new thread - maybe the post-dx section?

trish56 Newbie
trish56
Posted

Hi, I would like to join this support group. I was told by my doctor that I was gluten sensitive. I have fibromyalgia and ibs and other medical issues and really would like to get healthy and need the help and support.

IHateSpiders Newbie
IHateSpiders
Posted

I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

kareng Grand Master
kareng
Posted

I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

I have never seen a bacon with gluten. Just read the ingredients.

Cincin47 Newbie
Cincin47
Posted

I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

She can eat bacon.  Unless she has another reason like sodium nitrates.

justneguy Newbie
justneguy
Posted

I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

Bacon is fine.  Having recently been diagnosed, I'm learning all this, too - as is my wife.  One of the things you may want to consider is to eliminate gluten altogether - for both of you.  It becomes easier (if it is just the two of you, that is).  Because the other thing you need to worry about is cross-contamination.  That is, she'll need to have her own peanut butter jar, butter/margarine stick or tub, etc . . . this is because if you were to dip into, let's say, a peanut butter jar - spread that on wheat toast (or white toast), and then re-dip the knife - BOOM - that jar is now contaminated because even trace amounts (crumbs) can cause problems.  This has been the hardest part of adherence for me (or I should say - for my wife).  I know - ugh!  Also - worth considering - my GI guy told me that everyone would be better off not eating gluten - because the human body does not do a good job digesting modern wheat / gluten / gliadin.  You may find that you'll feel better, too.  Just my 2 cents.  Good Luck (Boars Head Deli Meat is ok, too . . . but, again, it's the dreaded cross-contamination that you need to worry about (e.g., did they clean the meat slicer from use with other non-gluten meats?) 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Alrighty..... I think we have established that bacon is gluten free. Back to the purpose of this thread - joining an on- line chat.

moosemalibu Collaborator
moosemalibu
Posted

 

Just a quick reminder to everyone who wants to participate in the live chat - there are 3 articles and lovely recipe to try before the meeting. Be sure to check the link above! Hope to see you all there!

HMB Newbie
HMB
Posted

I would like to join this support group.  Is it still meeting?

 

HMB Newbie
HMB
Posted

I'm in the eastern standard time zone.  I am 34 and was diagnosed with Celiac a few months ago.  I've also been diagnosed with Candida and Small Intestine Bacterial Overgrowth by my holistic physician.  Finally, got the answers to the the root cause of my many health issues that I had for most of my life that all traditional doctors missed.  I am struggling everyday and need all the support I can get!

moosemalibu Collaborator
moosemalibu
Posted

I would like to join this support group.  Is it still meeting?

 

yes - Our first meeting is March 15th at 2pm pacific.

justneguy Newbie
justneguy
Posted

I'm in the eastern standard time zone.  I am 34 and was diagnosed with Celiac a few months ago.  I've also been diagnosed with Candida and Small Intestine Bacterial Overgrowth by my holistic physician.  Finally, got the answers to the the root cause of my many health issues that I had for most of my life that all traditional doctors missed.  I am struggling everyday and need all the support I can get!

Hi - me too.  Just 2 months ago - ugh!  A bit older than you - I'm 48.  Probably had Celiac (I bet) for 15 years, easy.  Never even heard of it.  But was taking probiotics during that time.  Interested to hear about your candida and batercial overgrowth.  I've wondered about that myself - reading so much on Celiac in the last 2 months.  It seems so much of functional medicine is so far out in front of this issue, but traditional medicine trails behind (and my doctor is a traditional internist).  Testing, etc . . .

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Just a quick reminder which I'll post again before the meeting: Our first live chat Celiac.com Online Support Group meeting will be held on 03/15/2014 at 2 PM Pacific.

HMB Newbie
HMB
Posted

Hi - me too.  Just 2 months ago - ugh!  A bit older than you - I'm 48.  Probably had Celiac (I bet) for 15 years, easy.  Never even heard of it.  But was taking probiotics during that time.  Interested to hear about your candida and batercial overgrowth.  I've wondered about that myself - reading so much on Celiac in the last 2 months.  It seems so much of functional medicine is so far out in front of this issue, but traditional medicine trails behind (and my doctor is a traditional internist).  Testing, etc . . .

Hey, I'm so sorry I haven't responded sooner.  Life has been crazy and hectic with struggling with all this chronic illness and trying to take care of my very active 13 month old boy!  Yeah, I actually think I've had most of my health issues the majority of my life.  I was very fortunate to find a board certified holistic physician, who is awesome!  I had to go through a lot of testing to get all the answers: standard blood work covered by insurance, ALCAT test (food sensitivities), NutrEval test, and CDSA 2.0 (Comprehensive Digestive Stool Analysis).  The CDSA showed the candida and the SIBO.  I also have a lot of food sensitivities and nutrient deficiencies, which is all common with Celiac.  Hope this info. may help and that you can find a physician to do this testing and get to the root of all your issues.

justneguy Newbie
justneguy
Posted

sounds like you have a great doctor.  I can't get my doctor to even return an email at this point (have only sent him two on the subject).  I wanted to get an MMA and homocysteine test - for B12 - and I get no reply. And my Vitamin D test (that I asked to have done) came back at 28 - which I think is low . . . but he said nothing about it.  OK.  hmm . . . I'm supplementing with D3.

 

 

Hey, I'm so sorry I haven't responded sooner.  Life has been crazy and hectic with struggling with all this chronic illness and trying to take care of my very active 13 month old boy!  Yeah, I actually think I've had most of my health issues the majority of my life.  I was very fortunate to find a board certified holistic physician, who is awesome!  I had to go through a lot of testing to get all the answers: standard blood work covered by insurance, (Company Name Removed - They Spammed This Forum and are Banned) test (food sensitivities), NutrEval test, and CDSA 2.0 (Comprehensive Digestive Stool Analysis).  The CDSA showed the candida and the SIBO.  I also have a lot of food sensitivities and nutrient deficiencies, which is all common with Celiac.  Hope this info. may help and that you can find a physician to do this testing and get to the root of all your issues.

 

dilettantesteph Collaborator
dilettantesteph
Posted

Thanks for organizing this.  I put it on my calendar.

glutenfree4mykid Newbie
glutenfree4mykid
Posted

my 16 year old son was just diagnosed with Celiac. i am so happy to have found this support group! cant wait to get started!

glutenfree4mykid Newbie
glutenfree4mykid
Posted

Just a quick reminder which I'll post again before the meeting: Our first live chat Celiac.com Online Support Group meeting will be held on 03/15/2014 at 2 PM Pacific.

cant wait! will we receive an email reminder?

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Before I forget, I wanted to add an article/topic to our agenda for our meeting on March 15th, it is:

https://www.celiac.com/articles/23589/1/Is-Monsantos-Roundup-Behind-the-Global-Explosion-of-Celiac-Disease/Page1.html

seameruok Rookie
seameruok
Posted

Hello to all the sillyak people.  I have been gluten free since being diagnosed in 2000.  Looking forward to chatting with others.

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Hi Everyone,

 

Just a quick reminder--our first meeting is tomorrow at 2 PM Pacific:

https://www.celiac.com/gluten-free/forum-22/announcement-4-first-celiaccom-online-support-group-meeting-3152014-2-pm-pacific-5-pm-eastern/

 

If you have time please read the articles listed in the meeting announcement, but this is not required to attend the meeting. 

 

Jamie (moosemalibu) will be the meeting's leader, and I'll also attend. I hope to see you all there tomorrow!

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Last reminder:

t_announcement.pngLive Chat Meeting Today! 3/15/2014 @ 2 PM Pacific (5 PM Eastern)
Scott Adams Grand Master
Scott Adams
Posted
  • Author

Hello Everyone, 

 

Our first meeting was on Saturday, and it went very well. Thank you to all of those who attended, and please let me know if you wanted to attend, but could not due to a technical issue, or because of the time the meeting was set. We are now working on the schedule for our 2nd meeting, and we should post it soon.

 

If you did attend and have any questions or comments, please share them here, as we hope to improve our future meetings.

 

For those who could not attend, I have attached a transcript of the meeting below.

 

20140315 - 001 Meeting Transcript.pdf

 
 
SkyBlue4 Apprentice
SkyBlue4
Posted

Darn! Sorry I missed this. Weekends are crazy busy with my kids and all of their activities. 

I can't seem to access the transcript. When I click on the pdf link, I get a message that says I don't have permission to view it.  :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which...
    2. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I had both the genetic genes for celiac. My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report. I also had polyps in 3 places throughout my large...
    3. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
    4. pweidema
      - pweidema commented on Scott Adams's article in Autumn 2025 Issue
      1

      The Unexpected Gluten Traps in International Snacks: What Not to Bring Back From Vacation

      Very informative. Thank you!
    5. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,335
    • Most Online (within 30 mins)
      7,748
    DME
    Newest Member
    DME
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...