Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gained Over 60Lbs And Cant Loose It.

Cindy Anderson

By Cindy Anderson
in Related Issues & Disorders

Recommended Posts

Cindy Anderson Newbie
Cindy Anderson
Posted

I was diagnosed 7 months ago at the age of 40 and I have gained 60 lbs. Little more complicated. I also was diagnosed with anorexia because I did not like food this is how they found out that I was celiac. I am eating more. Very diligent on the no gluten. Working on gluten in bandaids and make up and such now. But I am so frustrated and depressed about the weight. I have been added on iron for low iron, I have been put on a multi due to low nutrients, I have been put on vit d 5000 a day, I have been put on fiber and a stool softener because I am constipated all day. They have checked me for my thyroid it is just fine. They are now also checking my heart because I have developed an arrhythmia and either have signs of just had a small heart attach or on the verge of one. How long does it take a body to heal before I can start leveling off on the weight and feeling better. ANy thoughts. Oh I just had double food surgery in Feb. so the exercise has been a slow process but I move more than I did when I did not have the foot surgery.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gary'sgirl Explorer
gary'sgirl
Posted

Hey there Cindy, :)

 

I really think that with the weight issue it's just depends on the person and what all is going on inside the body. I have gained a lot of weight and it has all been mostly over the last two years when I have barely been able to eat. Just to try to understand what my body was doing, I weighed myself several times when I was so sick that all I could tolerate was broth to eat, and on two separate occasions of only eating (well, I guess it's actually drinking :) ) broth I gained 7 to 10 pounds. Now if that doesn't prove that it's not all about caloric intake then I don't know what does! :blink:

 

My doctor told me that when your body is so damaged and trying to heal itself in an effort to protect your cells it will surround each cell with fluid, and that can make you "gain" weight really fast, but it's not true weight in the same way that, say, gaining "fat" is.

I don't completely understand it, but my sister who has had some really bad health problems had this happen to her and she gained a lot of weight, but over the past couple of years she slowly has been getting better, and she is smaller that she has ever been. I think when she really gets well completely she probably should gain a little bit back. 

 

All that to say, just don't give up, and don't let the weight gain get you down if you can help it. :) I try to look at it as just a part of this process to my body healing and I try, though hard at times, to not put any time constraint on myself. I don't know if that helps you at all, but I hope you can find some encouragement in it. :) But if not know that your not the only one. ;)

 

Hang in there and don't lose hope!

cyclinglady Grand Master
cyclinglady
Posted

As long as your are eating healthy and not getting even a tiny bit of gluten into your diet, your body weight should eventually level off.  Now, you should not be consuming more (or even less) that the recommended calorie amounts for your height and age (google for calorie count for you).  

 

You didn't mention how damaged your intestines were.  If you were a Marsh Stage III or IV, that can explain the constipation issues (no villi to push that food through!)  It takes time to heal villi!

 

Think about gentle swimming or water aerobics for exercise, provided your doctor approves it (e.g. current heart issues).  

 

It took you years to get sick and it will take a few years to get better.  Please be patient and embrace the new healthier you!  

  • 2 months later...
disham Newbie
disham
Posted

I have been diagnosed with Celiac for a little over a year now, and I also have gained more weight being on a Gluten Free diet. It's EXTREAMLY FUSTRATING. I have always been over weight due to a Thyroid issue but with meds I have been able to keep it somewhat under control and have stayed healthy other then the weight issue. Now I feel like its a bigger battle and I hate it so much. This weight gain is really scaring me.

 

If you too, have experienced weight gain what have you done with the diet to help it? Could really use some insight.

 

Dawna

w8in4dave Community Regular
w8in4dave
Posted

Try eating a more natural diet like eating Fresh veggies and Meat instead of a bunch of gluten-free pre packaged foods. Alot of gluten-free pre packaged foods have alot of corn in it. If we eat to much of it. Guess what it does? It makes us gain weight. Since I have been corn intolerant it makes it so much easier to eat. Fresh fresh fresh! :) Just a suggestion.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...