Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ode To Celiac

NoGlutenCooties

Recommended Posts

NoGlutenCooties Contributor
NoGlutenCooties
Posted
  • Author

Feelin really blue today

I wish this thing would go away

Thinkin’ of Celiac every day

Just tired of Celiac.

 

My friends all talk about it

My fam all talk about it

I just want to forget it

Just tired of Celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

A few years after DX

you'll see it's all just BS

it's no big deal to be us...

You're just a celiac.

 

 

Just stay the course and eat well

You'll heal and all will be well

it's not the be-all/ end-all

To be a celiac.

 

 

Okay...listen to me, now  I can't come up with any rhymes when I know you're hurtin.  So I am going to speak honestly.

 

It's not who you are, hon. It's just something we live with. It doesn't define you, confine you or make you "different" unless you let it.

 

Why are you blue today? Something causes that. Tell us. Maybe we can help.

 

 

NoGlutenCooties Contributor
NoGlutenCooties
Posted
  • Author

Okay...listen to me, now  I can't come up with any rhymes when I know you're hurtin.  So I am going to speak honestly.

 

It's not who you are, hon. It's just something we live with. It doesn't define you, confine you or make you "different" unless you let it.

 

Why are you blue today? Something causes that. Tell us. Maybe we can help.

 

Thanks Irish - just tired of talking about it, thinking about it, explaining it, shopping for it, planning around it, etc. etc.  It's become the usual topic of idle conversation with people... kinda like talking about the weather used to be.

I'll shake it.  It actually helped just to add it to the ongoing "Ode".  :)

IrishHeart Veteran
IrishHeart
Posted

Then, stop talking about it with people. Even us, if it is too much. It's okay.

 

We all take vacations from it.

 

In my "real life", I never talk about celiac. :D  I just live.

 

I talk about it on here because I am helping. Otherwise, it's just "normal" life.

 

Time. Heals. All.

moosemalibu Collaborator
moosemalibu
Posted

Then, stop talking about it with people. Even us, if it is too much. It's okay.

 

We all take vacations from it.

 

In my "real life", I never talk about celiac. :D  I just live.

 

I talk about it on here because I am helping. Otherwise, it's just "normal" life.

 

Time. Heals. All.

 

Yes.. sometimes you need a break from talking about it. Just live. I needed this reminder, too. Thanks Irish.

NoGlutenCooties Contributor
NoGlutenCooties
Posted
  • Author

I think because it is so new for people that know me they're still thinking about it a lot... which is actually pretty sweet.  I've already gotten 3 gluten-free cookbooks for XMas and my boyfriend keeps spotting gluten-free options on various menus, etc. that he never noticed before.  It's just part of me is like...  Enough.  Already.  I took it in stride... why can't you?  (How about those Green Bay Packers??)  :)

(And if my mother leaves me one more voicemail about food, or nutrition, or Celiac, or symptoms... I'm gonna scream.  Either that or the phone is getting launched out the window...)

GFinDC Veteran
GFinDC
Posted

Hi GC,

 

It sounds like you have  some people in your life who want to help in some way.  That's pretty neat really.  No need to shut them down right away IMHO.  Maybe you can get some free gluten-free cookies out of the deal! :)

 

I hope you don't mind some additions to your ode of love...

 

The newbies are confus-ed
They don't know what whole foods is
They feed their gut bugs sugar
and call it gas attack!

The oldsters try and tell 'em
Don't feed those nasty villians
Stick to the plain and simple
Food for us celiacs.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGlutenCooties Contributor
NoGlutenCooties
Posted
  • Author

Hi GC,

 

It sounds like you have  some people in your life who want to help in some way.  That's pretty neat really.  No need to shut them down right away IMHO.  Maybe you can get some free gluten-free cookies out of the deal! :)

 

I hope you don't mind some additions to your ode of love...

 

The newbies are confus-ed

They don't know what whole foods is

They feed their gut bugs sugar

and call it gas attack!

The oldsters try and tell 'em

Don't feed those nasty villians

Stick to the plain and simple

Food for us celiacs.

 

:)  Love it!

 

and you're right... they're only trying to be supportive and helpful... just needed to vent - better to vent to you guys than tear someone's head off for trying to be nice  :ph34r:

IrishHeart Veteran
IrishHeart
Posted

:)  Love it!

 

and you're right... they're only trying to be supportive and helpful... just needed to vent - better to vent to you guys than tear someone's head off for trying to be nice  :ph34r:

 

There are more celiacs and NGCSers who get NO support than those who have family and friends who give a shyte enough to

take it seriously and want to show support, so

yes, consider yourself blessed. :) My best peep gets it and there's no gluten being served during her 4 course dinner tomorrow.

I helped making some of the dishes and all the desserts and none of the guests even care it's all G F.

 

Some family members make this very, very difficult for celiacs and Christmas is going be a pain in the butt for those poor peeps.

 

(Thank the heavens booze is gluten free).

 

Merry Christmas and God Bless Us, Everyone. ;)

NoGlutenCooties Contributor
NoGlutenCooties
Posted
  • Author

Merry Christmas all you Celiacs

Safe eats, drinks, and healthy snacks

No D, no C, and no Yaks

Merry Christmas Celiacs!

 

:P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease. It will not show if you have active Celiac disease. Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies. The...
    2. trents
      - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases...
    3. McKinleyWY
      - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast. All my life I have avoided bread and most products containing enriched flour as they contain yeast (when making the man made vitamins to add back in to the flour). Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat...
    4. trents
      - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you...
    5. Peace lily
      - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748
    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.