Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Needed

eeyor-fan

Recommended Posts

eeyor-fan Contributor
eeyor-fan
Posted

I'm newly diagnosed as Celiac in the last couple months and I'm, on the most part, getting the hang of the whole thing; even contacted 2 of my favorite companies and found out that "Clean and Clear" is gluten-free as well as the "Healing Garden Mint Therapy" bath and body products is gluten-free (not sure about the rest of their products. I've learned alot by reading all your messages but really need help. What would you recommend for pain relievers since I read Tylenol has gluten and I really need help on shampoo, gel, hairspray etc. I know you say Pantene is gluten-free but does that include the new line with amino acids ( I tried to call the company but the rep I got just fell off the turnip truck and her answer was "If it gives tou a rash then do not use it)? I'm looking for something along the line of the biosilk with the sik protein that I cannot use anymore (due to the darn wheat in it) and need something with volume due to the thinning problem I've had. My nutritionist ( who admitted she knew nothing about Celiac and ended up getting fired by me and my doctor for giving me misinformation on my diet) pointed me in the direction of the "Back to Basics shampoo" but that made my scalp a million times worse. I'm in awe of all of you people on this message board because sometimes I'm so lost in all this I'm just not sure if I will ever get it! :(;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

hey there! take a deep breath... it does take some time to replace all of our products. there is a lot! go here to read all of the products i use: Open Original Shared Link

i have thin hair with lots of scalp issues... my favorite shampoo is listed (the rosa mosqueta). i swear my hair looks awesome when i use it--tons of body and lift. i was shocked--it works better than anything else i used before.

where did you read tylenol is not gluten-free? because it is gluten-free--you can go ahead and take it. that goes for canada too. just be aware of generic versions. go here to ck it out: Open Original Shared Link (this is a helpful resource)...

eeyor-fan Contributor
eeyor-fan
Posted
  • Author

Your a life saver. I can not thank you enough. The tylenol thing I think I read on another site and had some bad times with no tylenol. I assume the ones with the gel caps are off limits wouldn't they be? Someimes I don't think my entire body (5 feet tall) is big enough for all this info I'm learning...LOL :P THANK YOU, THANK YOU, THANK YOU!

jrom987 Apprentice
jrom987
Posted

Eeyor - I posted a thing on Paul Mitchell Products. If you can't find it, let me know and I will email a copy of what the company sent to me. I am new too so I share in your fears and concerns. :D Jo Ann

jenvan Collaborator
jenvan
Posted

happy to help!!

eeyor-fan Contributor
eeyor-fan
Posted
  • Author

I found it. Thanks I'll check them out too. My name is Bridget by the way...another user already used my name. :huh:

darlindeb25 Collaborator
darlindeb25
Posted

I only use Pantene and mine has amino proteins in it and I am fine, also very sensitive--so, I know Pantene is ok. I also take Tylenol--dont know that I have had gel tabs--I do take Advil Gel and they are gluten-free. Deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eeyor-fan Contributor
eeyor-fan
Posted
  • Author
I only use Pantene and mine has amino proteins in it and I am fine, also very sensitive--so, I know Pantene is ok.  I also take Tylenol--dont know that I have had gel tabs--I do take Advil Gel and they are gluten-free.  Deb

<{POST_SNAPBACK}>

:D Thanks that helps. I started out in all this with so much misinformation from my former nutrishionist and other uneducated sourced that I ended up so confused and now I'm just trying to sort through it all, forget the wrong stuff, and just get it all straight. I'm really confused and you all could never under stand how deeply I appreciate all your help!

Hugs

Bridget ;)

jenvan Collaborator
jenvan
Posted

bridget-- if i was you, i would also read 'wheat free, worry free' by danna korn. it will educate you on all the aspects of celiac and living gluten free. i ordered mine from amazon but you could get it in a bookstore too.

eeyor-fan Contributor
eeyor-fan
Posted
  • Author
bridget--  if i was you, i would also read 'wheat free, worry free' by danna korn.  it will educate you on all the aspects of celiac and living gluten free.  i ordered mine from amazon but you could get it in a bookstore too.

<{POST_SNAPBACK}>

Ok I'll check it out at my local Barnes and Noble, I just got my own copy of the "Gluten Free Bible" there. B)

jenvan Collaborator
jenvan
Posted

be cautious of the 'gluten free bible'. there have been quite a few discussions on the boards here about that book. many feel that there is misinformation given in it. i've never heard a complaint about danna's book though...

hthorvald Rookie
hthorvald
Posted
be cautious of the 'gluten free bible'.  there have been quite a few discussions on the boards here about that book.  many feel that there is misinformation given in it.  i've never heard a complaint about danna's book though...

<{POST_SNAPBACK}>

Two other books that I live by are: Gluten-Free 101 by Carol Fenster and Gluten-Free Diet by Shelly Case. Both books describe in layman's terms the disease, what to avoid, what to embrace. Both books are very positive, too. And, for the most part, the information seems very accurate.

Check 'em out.

Helen.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.