At What Age Were You Diagnosed?

[prinsessa]

Self diagnosed at 27 (about 6 months ago). My blood test came back negative, but I decided to try the diet anyway. I feel so much better now.

[Debbie65]

Debbie, I am so glad you joined. So many have so many results from various tests - I do plan to go and make sure my blood levels look ok. Also I have been eliminating dairy and soy and most corn just in case. I still feel like I eat all the time. Guess the empty feeling will go away after a while. I don't think I am underweight though- 5'3 - 108. Also I am trying not to eat sugar. Wishing you good health...

I guess from your time difference you

[jesscarmel]

diagnosed 5 months ago at age 27 after being hospitizlied for pancreatitis caused by the undiagnosed celiac. years of being told i had ibs

also because of my diagnosis my dad got diagnosed 2 months ago at 60

[lindalee]

I guess from your time difference you?re from the US. You guys have it so tough over there with isurance and everything. I know the state of the national health in the UK is probably at an all time low at the moment(don?t know for sure as I haven?t lived there for ten years) but at least everyone has access to medical treatment whether they can afford it or not even though there are waiting lists and they can pre pay a certificate that makes prescription costs more bearable.

When I was a child( children under 16 don?t pay for medical necessities on prescription) I used to get a prescription for 6 cans of Rite diet gluten-free bread(anybody remember that?) & 6 pkts Rite diet gluten-free bics every week. At Xmas my mum used to buy me fruit cake. The pasta & stuff was gross and has put me off even trying these things to this day. My mother didn?t have to pay for the every day stuff and that was 35 -40 yrs ago.

My heart really goes out to the people in the Us- especially the ones with children who are Coeliac.

To get to what you were saying, the hungry feeling is another thing that seems to have gone from me very quickly, my eating intervals are much more civilised now. I used to spend in between meals dreaming about the next one.

Take care.

No I am not familiar with those foods. According to my baby book, I was eating bananas. I am so glad my mother journaled in the book since she has passed away. Since I'm self-employed I chose the high deductible insurance route. I am searching for a doctor who isn't a pill pusher more nutrition oriented.

Maybe since you aren't hungry all the time it means that you are absorbing your food well. Not sure about that. Well, I'm hungry(giggle) better eat - going to the James Taylor Concert tonight.

[Debbie65]

No I am not familiar with those foods. According to my baby book, I was eating bananas. I am so glad my mother journaled in the book since she has passed away. Since I'm self-employed I chose the high deductible insurance route. I am searching for a doctor who isn't a pill pusher more nutrition oriented.

Maybe since you aren't hungry all the time it means that you are absorbing your food well. Not sure about that. Well, I'm hungry(giggle) better eat - going to the James Taylor Concert tonight.

I´m cringing as I write this but my curiosity is getting the better of me( picture me getting lower & lower in my chair and when you answer, picture me under it with my face screwed up saying " ohhh!!!!, I can´t believe I asked that but..........)

Who´s James Taylor?

[lindalee]

I must be older than you. He is a singer - songwriter - lots of 70's hits...Fire and Rain, Something in the way she moves, Don't let me be lonely tonight, Long ago and Far Away, Carolina on my mind and my favorite is You've Got a Friend.. I'm really looking forward to it. I love 70's Music.

[Debbie65]

Yeah,

I know most of those songs but couldn´t put a name to them so I´m guessing you might be around the same age as my hubbie who was born in ´57 and is 9 years my senior. We have that sort of conversation all the time, not just because of the age gap but also because I´m a person who has a talent for remembering half of everything.

This drives my friends crazy because I can never tell them a full news item or gossip story or recipe or anything come to think of it.

Can I blame Ceoliac for that?

[lindalee]

Yeah,

I know most of those songs but couldn´t put a name to them so I´m guessing you might be around the same age as my hubbie who was born in ´57 and is 9 years my senior. We have that sort of conversation all the time, not just because of the age gap but also because I´m a person who has a talent for remembering half of everything.

This drives my friends crazy because I can never tell them a full news item or gossip story or recipe or anything come to think of it.

Can I blame Ceoliac for that?

Absolutely, We can blame alot on it!!

[Debbie65]

Absolutely, We can blame alot on it!! Ha

Have a great time at the concert!!!!!!!!!

[Ashley]

I was 14 when I was Dxed and now I'll be 16 in a month.

-Ash

[Kaycee]

Good question, this interests me.

I was dianosed with this at 48. Probably has been around for years and years, just slowly eating away at me.

I can't remember being a sickly child, I was always a bit overweight. I did have episodes of diahrhoea as a child, but who doesn't. I had a bit of a nervous breakdown when very young, and had been a nervous child. So maybe I did have this as a child, but quite mildly.

I have given up thinking on that. This is now, and this is when I am feeling my worst. Especially after eating something, don't know what, that made me ill yesterday. Just wanted to curl up at work and sleep!

Cathy

[utdan]

I diagnosed myself 2 years ago at 29 and was probably born with it. My mother gave me some homemade whole wheat bread at around 11 months old and got a dangerous fever from it. Interestingly, nothing dramatic ever happened again. Then I started noticing heavy anxiety issues at around 3rd grade and doubly intense at 6th grade and continued on but gradually got better ever since sixth grade.

[natalunia]

I was diagnosed at 29, a few months ago. I had been sick with diarhhea several times a week for over 8 months. I thought I had giardia from my DD (adopted from Russia a little before the chronic D). I was tested for giardia, took meds, and it persisted, so I knew something was up.

I started to watch what I ate and note when I got diarhhea and noticed I got D about 1 hour after eating cake. My mom said maybe I had a wheat allergy (I have lots of other allergies, none food). I started researching wheat allergies and stumbled across celiac disease. I started limiting my wheat intake greatly.

I made an appointment with my general practitioner after a month, told him what I thought I had, and he sent me to a GI (he didn't see enough celiac cases to feel comfortable diagnosing me). The GI insisted on doing a colonoscopy first (family history of colon cancer), and I went gluten free (I was desperate to feel better). My GI agreed that the endoscopy wouldn't show much by the time they could schedule me for it since I had gone gluten free, and he said the dietary response is a better indicator than anything. He said if nothing else, I am gluten intolerant.

I am fairly certain my paternal grandmother has celiac disease (lifelong GI issues, multiple miscarriages & one stillbirth, diabetes, bloating, constantly belching). My brother has started (in the past 3-4 months) to get GI problems (cramping, diarhhea, gas) when he eats cake or something that has a lot of wheat in it (he eats very little pasta, bread, etc). My dad has always seemed to have GI issues, but not as severe as me or his mother. My mother has GI problems, but she doesn't think she has it. I'd like to get the genetic testing done just to see how many (if any) of the genes I have. That way I could possibly determine if it is one or both parents who I inherited this from. I had a lot of diarhhea as a child and threw up easily (still do).

[jayhawkmom]

36. =(

Daughter - 4

Son #2 - 11 months.

Son #1 - no signs, symptoms, tests WAY negative.

[issima]

I'm 55, just found out earlier this month. Have had tremendous job stress for the last 2 years, but it got really insane about 5 months ago. The bloatedness has developed correspondingly. However, I've got diverticulosis (diagnosed in 1990) and was told in the mid-90's I have IBS. Had sporadic bouts of very mild anemia before menopause, and recently I noticed I was having some of the same dizziness upon standing that I'd had with those anemia bouts (which ended in 2000).

This was discovered because I'm about to lose my job and wanted a full checkup. Went to my gastro who ordered CT-scan and then endoscopy when he saw enlarged abdominal lymph nodes and the CT scan showed small intestine inflammation.

Trying to find this in my family tree. Paternal grandmother died of lymphoma in her late 50's. No way to know about any celiac manifestations in her now. Maternal grandmother (and most of her sibs) had diabetes -- she had diverticulosis, alzheimer's, Type 2 diabetes. No one ever talked about wheat/gluten, etc. back then.

Our family doctor back in the 50's wondered out loud if I had celiac -- first time my mother heard of it. Never heard of it again until a few years ago when a friend was tested (tests negative) and told me about it. Now I have it, and from what I have read, my chances for real rebounding at this age are not all that great (hope that's not true) -- wish it had been pursued back then, but I didn't really have many of the more specific manifestations most people seem to have.

[lindalee]

I'm 55, just found out earlier this month. Have had tremendous job stress for the last 2 years, but it got really insane about 5 months ago. The bloatedness has developed correspondingly. However, I've got diverticulosis (diagnosed in 1990) and was told in the mid-90's I have IBS. Had sporadic bouts of very mild anemia before menopause, and recently I noticed I was having some of the same dizziness upon standing that I'd had with those anemia bouts (which ended in 2000).

This was discovered because I'm about to lose my job and wanted a full checkup. Went to my gastro who ordered CT-scan and then endoscopy when he saw enlarged abdominal lymph nodes and the CT scan showed small intestine inflammation.

Trying to find this in my family tree. Paternal grandmother died of lymphoma in her late 50's. No way to know about any celiac manifestations in her now. Maternal grandmother (and most of her sibs) had diabetes -- she had diverticulosis, alzheimer's, Type 2 diabetes. No one ever talked about wheat/gluten, etc. back then.

Our family doctor back in the 50's wondered out loud if I had celiac -- first time my mother heard of it. Never heard of it again until a few years ago when a friend was tested (tests negative) and told me about it. Now I have it, and from what I have read, my chances for real rebounding at this age are not all that great (hope that's not true) -- wish it had been pursued back then, but I didn't really have many of the more specific manifestations most people seem to have.

Gosh, I hope that is not true about the rebounding. What are you reading? I have also just recently gone on the diet and really hope not to much damage has been done to us. I do believe stress is what brought my symptoms on. I really hope that dizziness goes away.

[issima]

Gosh, I hope that is not true about the rebounding. What are you reading? I have also just recently gone on the diet and really hope not to much damage has been done to us. I do believe stress is what brought my symptoms on. I really hope that dizziness goes away.

I read research findings that say recovery is much slower and sometimes ineffective the older one is at diagnosis. Little kids have the best chance of full recovery. I assumed most folks here would have seen it as I first saw it at Celiac.com, though it is a bit new:

https://www.celiac.com/st_prod.html?p_prodi...-34106345417.e7

Whatever. I can't afford NOT to take this seriously -- am the single mother of a 14 year-old boy. But admittedly I'd love to see findings that are more encouraging than this.