Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Between Health And Religion (Rituals, Retreats, And Other "unsafe" Situations)


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi all

 

There's been occasional discussion here about the difficulty some Christians (particularly Catholics) have when trying to participate safely in religious/spiritual rituals that involve food. This could mean communion, but also potlucks, ritual feasts, and during group retreats.

 

I'm Buddhist (Tibetan mahayana), and while food isn't the first think that comes to mind, it actually plays a pretty important role in the community. There is tea and cookies after meditation sessions, receptions after programs, potlucks, etc. These I can choose to not anything or bring my own. Day programs in my own city are no problem since I can bring my own lunch and such.

 

However, I've been hesitant to go on longer retreats (a week or month) partly because I might not have control over my food. Of course, they would do their best to accomodate dietary needs, the LAST thing I'd want is to be accidentally glutened and suffering through it for days when I'm supposed to be meditating, which I really can't do when I'm sick. I'm not sure if I'm being paranoid and trying to avoid doing it (a retreat is not an easy thing to do regardless!), or if I'm legitimately concerned for my health. But by not taking that risk, I'm holding myself back on the path, so to speak. It's been a hard thing to deal with for me, and something I still need to discuss more with my teachers.

 

Anyway, I was wondering if anyone else out there has been in a similar situation or had any advice? Of course, whether or not I can do a group retreat will not lessen my faith, but I do feel left out of one of the more important experiences for a Buddhist meditator. Would I be able to/brave enough to do a solitary retreat instead?

 

I'd also like to hear of any other non-Christian religious situations where one might have to balance their health and their faith.

(please be respectful of others' beliefs)

 

Thanks!

Peg

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissHaberdasher Apprentice

To be honest, I'm no expert on any religion, so my advice may not be too useful. I tried to go to a Hare Krishna temple when I was newly diagnosed, and they provided such wonderful food. There were a lot of people there that were on a gluten free diet, but I was still so full of anxiety (mainly because I was so new to this and hadn't lost that symptom yet) that I was hesitant to eat anything. I can't remember if I got glutened or not. If I did, it was because I felt so guilty asking "is this safe" every time someone handed me food that they made. I haven't gone back since, sadly, because I feel a lot of shame for having to turn away food. I was also raised as a Christian but have turned away from that. For some reason, I worry too much that I'm not able to fit in anywhere, despite how much they welcome me, but that's my own self delusion. I just feel ignorant, and I want to defeat that. 

 

My best advice is pretty cliche. Ask if you can bring your own food, provide money for special food to be made on the side, or ask if you can take charge of preparing your own meal. I honestly don't know how that works in the Buddhist community, but in my eyes, any religion or spiritual organization should be understanding of the human body and its limitations. Like you said :)

 

I'd actually recommend asking Forrest, this wonderful, wonderful Buddhist that I've been following for some time. He is incredibly helpful and answers questions with patience. Look up the Purple Buddha Project, and send him an ask. I follow him on Tumblr, but he has a facebook as well. He has really helped so many people through so many different situations and may be able to guide you through this. 

 

I'd say though, go for it. A retreat of this nature is what I dream of, and I'd love to participate in something like this. It would probably take a lot of careful planning before hand, but, if this is an important journey for you spiritually speaking, then it is a journey worth taking. If you don't feel good about it, follow your intuition and stay home, but dedicate time for your own personal journey anyway.

 

The best of luck to you, let me know if you're able to go!! 

GF Lover Rising Star

Hi Peg,

 

I think you should consider the week long one.  Talk to your teachers about a menu and what you can bring to suppliment yours with what they have scheduled.  You can do something like taking a hugh batch of a soup or rice dish in case you find it is not safe for you.  You also can ask to be part of the Kitchen prep staff so you can have some control in the kitchen. And take your toaster and colandar and cutting mat.

 

This would be a great thing to do, I wouldn't want you to miss it at all, it is too important.  I think it is very doable.

 

Colleen

surviormom Rookie

My son has a retreat with our church, and I plan to discuss the menu in advance and see if I need to send food or money for special food.

Pegleg84 Collaborator

I guess it's just one more thing to worry about, when you're supposed to be trying to not worry about stuff. Of course, I meditate to help deal with life as it is, and part of that for me has been accepting that there's going to be certain things I just can't/won't do and shouldn't feel guilty about that. However, I can't use my dietary needs as an excuse. There are a couple other people with Celiac in my community who go on retreats and help out with food and etc etc, so I do still feel awkward about deciding not to take those risks so lightly.

 

So when I finally have time to do a proper retreat (probably only a week at a time, since I can't see myself having enough time to do more than that) I'll have to figure out the kitchen stuff with the staff. I'd be traveling to Vermont, or maybe even Colorado. Thankfully though there's a couple who run a lovely retreat centre out of their home not far from Toronto, so might be able to go there instead (I went for a weekend once. Very very accommodating and amazing cooks!) So there are definitely options.

 

Anyway, all part of stopping making excuses and getting back "on the cushion"

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.