Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Between Health And Religion (Rituals, Retreats, And Other "unsafe" Situations)


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi all

 

There's been occasional discussion here about the difficulty some Christians (particularly Catholics) have when trying to participate safely in religious/spiritual rituals that involve food. This could mean communion, but also potlucks, ritual feasts, and during group retreats.

 

I'm Buddhist (Tibetan mahayana), and while food isn't the first think that comes to mind, it actually plays a pretty important role in the community. There is tea and cookies after meditation sessions, receptions after programs, potlucks, etc. These I can choose to not anything or bring my own. Day programs in my own city are no problem since I can bring my own lunch and such.

 

However, I've been hesitant to go on longer retreats (a week or month) partly because I might not have control over my food. Of course, they would do their best to accomodate dietary needs, the LAST thing I'd want is to be accidentally glutened and suffering through it for days when I'm supposed to be meditating, which I really can't do when I'm sick. I'm not sure if I'm being paranoid and trying to avoid doing it (a retreat is not an easy thing to do regardless!), or if I'm legitimately concerned for my health. But by not taking that risk, I'm holding myself back on the path, so to speak. It's been a hard thing to deal with for me, and something I still need to discuss more with my teachers.

 

Anyway, I was wondering if anyone else out there has been in a similar situation or had any advice? Of course, whether or not I can do a group retreat will not lessen my faith, but I do feel left out of one of the more important experiences for a Buddhist meditator. Would I be able to/brave enough to do a solitary retreat instead?

 

I'd also like to hear of any other non-Christian religious situations where one might have to balance their health and their faith.

(please be respectful of others' beliefs)

 

Thanks!

Peg

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissHaberdasher Apprentice

To be honest, I'm no expert on any religion, so my advice may not be too useful. I tried to go to a Hare Krishna temple when I was newly diagnosed, and they provided such wonderful food. There were a lot of people there that were on a gluten free diet, but I was still so full of anxiety (mainly because I was so new to this and hadn't lost that symptom yet) that I was hesitant to eat anything. I can't remember if I got glutened or not. If I did, it was because I felt so guilty asking "is this safe" every time someone handed me food that they made. I haven't gone back since, sadly, because I feel a lot of shame for having to turn away food. I was also raised as a Christian but have turned away from that. For some reason, I worry too much that I'm not able to fit in anywhere, despite how much they welcome me, but that's my own self delusion. I just feel ignorant, and I want to defeat that. 

 

My best advice is pretty cliche. Ask if you can bring your own food, provide money for special food to be made on the side, or ask if you can take charge of preparing your own meal. I honestly don't know how that works in the Buddhist community, but in my eyes, any religion or spiritual organization should be understanding of the human body and its limitations. Like you said :)

 

I'd actually recommend asking Forrest, this wonderful, wonderful Buddhist that I've been following for some time. He is incredibly helpful and answers questions with patience. Look up the Purple Buddha Project, and send him an ask. I follow him on Tumblr, but he has a facebook as well. He has really helped so many people through so many different situations and may be able to guide you through this. 

 

I'd say though, go for it. A retreat of this nature is what I dream of, and I'd love to participate in something like this. It would probably take a lot of careful planning before hand, but, if this is an important journey for you spiritually speaking, then it is a journey worth taking. If you don't feel good about it, follow your intuition and stay home, but dedicate time for your own personal journey anyway.

 

The best of luck to you, let me know if you're able to go!! 

GF Lover Rising Star

Hi Peg,

 

I think you should consider the week long one.  Talk to your teachers about a menu and what you can bring to suppliment yours with what they have scheduled.  You can do something like taking a hugh batch of a soup or rice dish in case you find it is not safe for you.  You also can ask to be part of the Kitchen prep staff so you can have some control in the kitchen. And take your toaster and colandar and cutting mat.

 

This would be a great thing to do, I wouldn't want you to miss it at all, it is too important.  I think it is very doable.

 

Colleen

surviormom Rookie

My son has a retreat with our church, and I plan to discuss the menu in advance and see if I need to send food or money for special food.

Pegleg84 Collaborator

I guess it's just one more thing to worry about, when you're supposed to be trying to not worry about stuff. Of course, I meditate to help deal with life as it is, and part of that for me has been accepting that there's going to be certain things I just can't/won't do and shouldn't feel guilty about that. However, I can't use my dietary needs as an excuse. There are a couple other people with Celiac in my community who go on retreats and help out with food and etc etc, so I do still feel awkward about deciding not to take those risks so lightly.

 

So when I finally have time to do a proper retreat (probably only a week at a time, since I can't see myself having enough time to do more than that) I'll have to figure out the kitchen stuff with the staff. I'd be traveling to Vermont, or maybe even Colorado. Thankfully though there's a couple who run a lovely retreat centre out of their home not far from Toronto, so might be able to go there instead (I went for a weekend once. Very very accommodating and amazing cooks!) So there are definitely options.

 

Anyway, all part of stopping making excuses and getting back "on the cushion"

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.