Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loaded Question. Helpfull Replies Only Please

Patt

By Patt
in Coping with Celiac Disease

Recommended Posts

Patt Explorer
Patt
Posted

Ok so here goes. Im not even sure if I should be posting since I am feeling rather sad due to contamination

I have several questions and have also posted to other boards to break this down

I went gluten free last spring (its January now).

the brain fog/depression cleared completely.

I feel smart, alive and I have so much energy I had to start running (anywhere from 5-8k) to let it out. Due to the running/exercise I dont have back problems anymore, I have strenghthened my core. I have lost 35lbs through not substituting (eliminating most carbs) and running, taking care of myself

I started noticing things since I can think clearly now. I was unhappy in my marriage so I have separated.

I feel like I know what I want in life now

I joke around and call this my midlife crisis (i am 29 but hey what if I only live to be 60? it happens alot, car accidents, cancer what not)

so Im 29, did not have the luxury of a childhood so now I feel this urgent need to do all that stuff like go to the club (tried the club, didnt like it. Not doing that agian),

find a few guys, get a small cute tattoo,

I have webbed toes so I had them pierced. I always wanted to do that. Its pretty cute actually

(this cant all be glutens fault right?)

I feel like im gonna explode if I dont have fun. I feel robbed because I never had the opertunity to do these things I was supposed to do as a teenager (dont get me wrong I am being responsible about it :)

I just worry because I look at miley cyrus and I see that she was a good kid until she went gluten free? you can attribute her insanity to many things, being a celeb, teen crazies, whatever but I just feel like I see a pattern and it worries me

Surely I cannot blame gluten for all that has happened right?

I have no desire to be married but I know that if I never switched diets id still be there, oblivious to my need for attention/affection, thinking this is the happiest ill ever be.

Is this completely off? am I overthinking this? Am I going off the deep end? this is so completely oposite of pre-gluten me!

maybe it will tapper off after a few months? (its been ~9 months since I ditched gluten)

The truth is I am completely happy (like for real) even through the process of being (recently) separated. Tottaly happy! until I get contaminated.....I cant even shower today, dishes are piling up, Ugh! I feel like I cant trust my thoughts when this happens. I feel like I shouldnt talk to anyone because I will scared ppl away from me (as of now I do not have true Friends that would understand my condition)

like what?

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I hesitate to post, because I'm not sure if this meets the " helpful" criteria. :)

Depression/ anxiety are often part of Celiac disease. Eliminating gluten can make if go away for some people.

Also, with a healed gut, you are able to absorb the nutrients in your food. Maybe you were a bit anemic or b12 deficient before and now you aren't. That can lead to a big energy surge.

Patt Explorer
Patt
Posted
  • Author

I hesitate to post, because I'm not sure if this meets the " helpful" criteria. :)

Depression/ anxiety are often part of Celiac disease. Eliminating gluten can make if go away for some people.

Also, with a healed gut, you are able to absorb the nutrients in your food. Maybe you were a bit anemic or b12 deficient before and now you aren't. That can lead to a big energy surge.

Yeah I dont know why I put Helpful replies only. this place is usually accurate as far as being helpfull. if I could edit that out I would

Adalaide Mentor
Adalaide
Posted

I'm wondering at what age you got married, or why you are saying you never got a childhood. Not that it's any of my business. At any rate, it is "normal" for people to have a point at which something triggers a breaking point for them and they choose to experience everything they feel they missed. It has absolutely nothing to do with gluten.

Patt Explorer
Patt
Posted
  • Author

rough upbringing, married at 21

I was a good girl, never did anything. didnt have a boyfriend. i didnt even leave the house until I went to college. then I married

seems like i wasted my teen years

Adalaide Mentor
Adalaide
Posted

You probably just snapped finally. It happens. I know, it happened to me, which is why I can say with surety that it has nothing to do with gluten. I was still undiagnosed back then, but it is obvious to me now that my symptoms began when I was very small. You did what you were supposed to, what was expected of you, the right thing, and finally one day it's like you wake up and realize that the last whatever space of time has been a complete and utter lie, it isn't you, and you want to fix it. You can't undo it, and maybe you aren't entirely sure who you are because you've never been allowed to completely be you, but you can find out by changing things. Then you suddenly realize you can have back the part of your adult youth that you never had. So you do.

 

It's that whole thing teenagers go through in the process of discovering who they are, etc. We're just late bloomers, which also has the perk of wine. ;)

Patt Explorer
Patt
Posted
  • Author

You probably just snapped finally. It happens. I know, it happened to me, which is why I can say with surety that it has nothing to do with gluten. I was still undiagnosed back then, but it is obvious to me now that my symptoms began when I was very small. You did what you were supposed to, what was expected of you, the right thing, and finally one day it's like you wake up and realize that the last whatever space of time has been a complete and utter lie, it isn't you, and you want to fix it. You can't undo it, and maybe you aren't entirely sure who you are because you've never been allowed to completely be you, but you can find out by changing things. Then you suddenly realize you can have back the part of your adult youth that you never had. So you do.

 

It's that whole thing teenagers go through in the process of discovering who they are, etc. We're just late bloomers, which also has the perk of wine. ;)

Yeah I figured so much I just questionned the timing. its defenetly a 180 degree turn and its kinda scary sometimes considering. and yes i deninetly snapped. ive had enough

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Sounds like you are discovering the world.  I did enough of that and I found it empty.  Trying thing after thing and on to the next thing, because nothing truly satisfies.   I fear you may be making choices outside of your good sense, or outside of what you have always believed.  In my mind you need to be leery of doing all your heart tells you.    I hope you find true long lasting happiness!

 

D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.