Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Insight


my3monkees

Recommended Posts

my3monkees Rookie

Hello,

 

My daughter has been diagnosed for 5 1/2 years, since she was 11. She is great with the diet, that is not a problem. Unfortunately over the years we have had to eliminate many more foods. But each time she accepts it and moves on. She is one of the few people I know who literally eat to live, not live to eat! LOL

She has been having more problems lately. I'm at such a loss, I can't seem to pin it down, possible corn. It is also hard, because she often times hides it from me. She hates being fussed over. She also knows, I think it is time to head back to doctors office to get some insight. Unfortunately she is extremely phobic of needles. Not just scared or nervous, but a true phobia. Just thinking about the doctors office makes her sick, so its hard to distinguish nerves and true illness with her. But one thing I have been thinking about is dishes. My dishwasher broke in July and alot of her problems have been building up since then. My home is largely gluten free, but my husband and middle son both still eat gluten. I would like to make the house totally gluten free. But financially I just can't. Especially feeding a 14 yr. old, who is already 5'9 and growing like a weed!

Neither one of them are as careful as they should be, even after so many years. My husband is the worst offender! He would have a fit, it someone else glutened her, but can be so careless himself!

My point issomething that just hit me today,  I'm often times cleaning crumbs off counter or table then dumping into sink. Which I have always done, clean rag each day. But normally I wouldn't them move on to washing dishes. But now dishes are being washed in the same sink, using same rag. Gluteny dishes and non gluten dishes being washed together. They should all be being rinsed thoroughly, but the kids are doing alot of it, so no guarantee. I wonder if handwashing dishes could be causing problems? With the dishwasher, there are no rags or towels and water is getting heated to very high temp and rinsing thoroughly. Hopefully we can have it fixed within a month or so. Can't decide if this is a good idea, or am I grasping at straws, so I don't have to take her to doctors office! LOL

If you have made it thru entire post, I thank you! Any insights much appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Hand washing dishes isn't a problem. I do it, and in a house with gluten eaters. What I do not do, and would never consider doing, is using a gluten covered rag to wash my dishes. It's possible you're grasping at straws. It's also possible that you're just depositing gluten right back on your dishes if you aren't careful. When I do dishes, because I share a house and kitchen, but none of my "stuff," I use a clean rag to wash the sink out before running water then put that rag in the dirty pile. I use a new clean rag to wash my dishes with.

 

And while it maybe isn't my business to butt in here, I'm going to anyway, you need to have a conversation with your husband. Explain to him that he would have a fit if anyone else treated your kitchen and his own daughter's health as flippantly as he does. If his actions are putting her at risk he needs to stop, no matter how unpleasant the conversation.

 

With so many variables you mentioned it's probably hard to pin down exactly what the problem is but addressing what you can at home may help. It can't hurt. And since your daughter is still a minor you can do one thing for her, as long as it won't turn into a violation of trust thing. Schedule her appointment and don't tell her until the day of the appointment. If stressing about it the entire time leading up to it will make her sick, just eliminate the entire part that makes her sick. And not every appointment leads to needles, so there is possibly some anxiety or something about just doctors in general there. Addressing that now and getting her the help she needs to deal with it instead of letting her face the world as she becomes an adult with a life-altering anxiety/phobia will make a huge difference for her.

my3monkees Rookie

Adalaide-

I am so mad at myself about the dish rag. I have been doing this long enough to know better. I usually do have a dishwasher though. Mine broke in July.

I've talked to my husband many times! He listens for awhile, then gradually starts all over again.

My daughter is a minor but an older one. She is almost 17, graduating this year. So unfortunately trust would play an issue. I have thought of doing exactly that though. What I may do is call her ped and talk to her. I worry about her fear of doctors, I have no idea why she is so paranoid. I know she has held back from telling me she is sick, to avoid the doctor. When I do force hrt in she refuses to talk. This has only developed as she has gotten older and gets worse steadily. So its not something I was able to address when she was younger.

Teenager plus chronic illness, plus fear of doctors, equals a very stressful combination!

w8in4dave Community Regular

My husband is a gluten eater and I am not. I have never had a dishwasher. I do most of the cooking. I do have my designated pans and he has his. When it comes to washing dishes I wash his 1st. Then when I wash mine I get my sponge I don't set my dishes in water I let the water run over my dishes. I wash and rinse with the water running , dry them and put them away. I inspect all the spoons and stuff, I have my favorite spoon and fork I usually use. I don't dry them with the same towel either. If you have a problem get a Pink sponge or a pink towel and tell the boys these are girl towels and not to touch them. They can be deemed gluten-free towels. When it comes to counter tops I have a platter I use, it is my platter when hubbs has had his way in the kitchen I will get my platter out and use that. My dishes, my platter my towels my sponge, and stuff :) Thats how I handle having a messy gluten eater :) Good Luck !! And I think Adalaide had a great idea about the Dr. Apt. 

NoGlutenCooties Contributor

Just wanted to add that if your daughter is developing additional food sensitivities/intolerances you may want to try a rotation diet.  I've never tried it myself - maybe someone more familiar with it will chime in here - but from what I understand of it you rotate through food in the same family every 4 days.  So for example, if you have potatoes on Monday you don't eat potatoes or any other nightshade foods again until at least Friday.  From what I've read on this forum, some people find relief from food sensitivities by doing this.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.