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Celiac It Is

ArPlasma

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ArPlasma Rookie
ArPlasma
Posted

After the longest wait, we have the results of the biopsy for DS1 and it is positive and confirmed the Celiac diagnosis. We got a note from the doctor for the school which hopefully is going to help us keep him a bit safer from gluten at school.

It's been almost 4 weeks since the biopsy and he has been already feeling much better( started the gluten-free diet right after biopsy). No more tummy aches or headaches and his teacher sent me a note yesterday about his increased focus and responsiveness in class. I am hoping this lasts and we can keep him from being glutened as much as possible.

Is it Okay to be happy for finally getting a diagnosis? This just feel like a relief somehow. It is a very strange feeling.

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GottaSki Mentor
GottaSki
Posted

Absolutely...we were extremely happy to finally have a diagnosis.  It is a very good feeling to realize we can improve our health by changing the foods we eat rather than more invasive medical treatments or medications!

 

Congratulations on the completion of a tough process...glad to hear your little one is improving...keep up the great work :)

StephanieL Enthusiast
StephanieL
Posted

I'm glad you have answers! Now onto working with the school to get the accommodations he needs!  And YES, it's okay to be glad you have answers!!

1desperateladysaved Proficient
1desperateladysaved
Posted

Glad you got definitive answers.  Happy to hear that it seems to be helping!

 

D

africanqueen99 Contributor
africanqueen99
Posted

Great job, Mom! Look, he's already healing and starting his journey. :)

Keep it up and stay on top of the school!

ArPlasma Rookie
ArPlasma
Posted
  • Author

Thanks everyone! Next on the list is working on the 504 plan for school.

WinterSong Community Regular
WinterSong
Posted

It is AMAZING to have a diagnosis. I considered it a huge blessing to finally have found out what was wrong and that there was something I could do about it. And so many people struggle with getting a diagnosis in the first place. So yes, be happy! Congratulations! You are now ready to help change his life for the better :)

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africanqueen99 Contributor
africanqueen99
Posted

:)

 

I just went through the 504 process and it was SO MUCH EASIER than I expected.  Man, I was expecting a fight and going all "mama bear" on them and it was really an easy and engaging process.

nvsmom Community Regular
nvsmom
Posted

:) I hope he continues to feel better.  Good catch on that, Mom!

ArPlasma Rookie
ArPlasma
Posted
  • Author

Thanks everyone! The school has been great so far, they had already passed a note to the teachers before diagnostic but now the nurse made it known to everyone that it is official. We are still writing the 504. We took a break this week- end, I finally gottorelax a bit and of course I got sick. I always catch something( cold), after being stressed out for too long. :)

DS's school teachers as well as karate instructor have been commenting on his increased responsiveness.

Cara in Boston Enthusiast
Cara in Boston
Posted

Glad you have answers.  Be sure to get everyone else in the family tested.

ArPlasma Rookie
ArPlasma
Posted
  • Author

Glad you have answers.  Be sure to get everyone else in the family tested.

We did. DD tested negative on all. DS2 tested negative on all as well( very close to positive on TTG- IgA and has a skin rash similar to what DS1 at the same age), DH tested positive on ttgs and just had his endo, waiting for results. His GI told him that given blood tests and family history, even if the biopsy is negative for him it most likely means that they have not found damage yet. So everyone is going gluten-free in the house! DD can eat gluten at school and outside, DS2 not at school yet so he will be gluten-free for now.

  • 2 weeks later...
cmc811 Apprentice
cmc811
Posted

After the longest wait, we have the results of the biopsy for DS1 and it is positive and confirmed the Celiac diagnosis. We got a note from the doctor for the school which hopefully is going to help us keep him a bit safer from gluten at school.

It's been almost 4 weeks since the biopsy and he has been already feeling much better( started the gluten-free diet right after biopsy). No more tummy aches or headaches and his teacher sent me a note yesterday about his increased focus and responsiveness in class. I am hoping this lasts and we can keep him from being glutened as much as possible.

Is it Okay to be happy for finally getting a diagnosis? This just feel like a relief somehow. It is a very strange feeling.

Having an official diagnosis is something I would be thrilled about! No one ever wants to hear something wrong with their child but you can't help them if you don't know. Making them better is the ultimate goal so celebrate all you want :)

 

If you don't mind me asking, how old is he and what bloodwork results did he have before biopsy?

ArPlasma Rookie
ArPlasma
Posted
  • Author

Having an official diagnosis is something I would be thrilled about! No one ever wants to hear something wrong with their child but you can't help them if you don't know. Making them better is the ultimate goal so celebrate all you want :)

 

If you don't mind me asking, how old is he and what bloodwork results did he have before biopsy?

Nope don't mind, everything was positive:

tTG- IgG:46, tTG-IgA >100, EMA 1:160

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