Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Anyone Meet With A Dietician?


GFAnnie

Recommended Posts

GFAnnie Explorer

My doctor recommeded that I make an appointment with the dietician in their office when she gave me the diagnosis.  I went ahead and did so, but I'm wondering how helpful it will actually be. It seems like all the research and answers are online.  I'm not sure how helpful this person can actually be.  It's a ninety minute appointment so she certainly has a lot of time to talk! But I was just wondering who did this and if they felt like they got much out of it.
Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I've seen a few folks on this board that have had good meetings with dieticians and many that have not.  That said, when I was diagnosed I did go to the dietician three weeks post diagnosis at the recommendation of my celiac doc.  This woman was the dietician for the UCSD's Celiac Center....so although it was not covered by insurance I went....and it was a big waste of time and money....I knew everything she offered me after three weeks living gluten-free and hanging around celiac.com and that was before we had the "Newbie 101" thread:

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

I'd say if your insurance covers it go ahead and see if there is helpful info.   If not, decide for yourself if you are becoming confident living gluten-free or if you'd like more help/answers to questions you may have.

greenbeanie Enthusiast

We went a few weeks after my daughter was diagnosed, and by that time I already knew all the important stuff. However, it was very helpful to get the inside story on local restaurants, and also to get specific vitamin brand recommendations. It was worth going for that alone. But having said that, I probably wouldn't have found it worth the money if our insurance hadn't covered it.

cahill Collaborator

I have seen a dietitian twice once for celiacs and once for  diabetes.

When I saw her for my diabetes she was helpful,, not so  for celiacs

powerofpositivethinking Community Regular

I did not see a dietician, but I would suggest visiting eatright.org to make sure the person you are seeing has a specialization in gluten intolerance/celiac disease and is a registered dietician.  90 minutes is a long time to spend with someone who is clueless :)   At this link click "search by expertise" and then select gluten intolerance:  Open Original Shared Link  if you can't find the dietician you are supposed to see on this website, I would suggest canceling the appointment and making an appointment with a RD that specializes in celiac disease.  good luck!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748

    STy
    Newest Member
    STy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.