Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Anyone Meet With A Dietician?


GFAnnie

Recommended Posts

GFAnnie Explorer

My doctor recommeded that I make an appointment with the dietician in their office when she gave me the diagnosis.  I went ahead and did so, but I'm wondering how helpful it will actually be. It seems like all the research and answers are online.  I'm not sure how helpful this person can actually be.  It's a ninety minute appointment so she certainly has a lot of time to talk! But I was just wondering who did this and if they felt like they got much out of it.
Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I've seen a few folks on this board that have had good meetings with dieticians and many that have not.  That said, when I was diagnosed I did go to the dietician three weeks post diagnosis at the recommendation of my celiac doc.  This woman was the dietician for the UCSD's Celiac Center....so although it was not covered by insurance I went....and it was a big waste of time and money....I knew everything she offered me after three weeks living gluten-free and hanging around celiac.com and that was before we had the "Newbie 101" thread:

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

I'd say if your insurance covers it go ahead and see if there is helpful info.   If not, decide for yourself if you are becoming confident living gluten-free or if you'd like more help/answers to questions you may have.

greenbeanie Enthusiast

We went a few weeks after my daughter was diagnosed, and by that time I already knew all the important stuff. However, it was very helpful to get the inside story on local restaurants, and also to get specific vitamin brand recommendations. It was worth going for that alone. But having said that, I probably wouldn't have found it worth the money if our insurance hadn't covered it.

cahill Collaborator

I have seen a dietitian twice once for celiacs and once for  diabetes.

When I saw her for my diabetes she was helpful,, not so  for celiacs

powerofpositivethinking Community Regular

I did not see a dietician, but I would suggest visiting eatright.org to make sure the person you are seeing has a specialization in gluten intolerance/celiac disease and is a registered dietician.  90 minutes is a long time to spend with someone who is clueless :)   At this link click "search by expertise" and then select gluten intolerance:  Open Original Shared Link  if you can't find the dietician you are supposed to see on this website, I would suggest canceling the appointment and making an appointment with a RD that specializes in celiac disease.  good luck!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,507
    • Most Online (within 30 mins)
      7,748

    Teachermom
    Newest Member
    Teachermom
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.