Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New Celiac


TheLibertarian

Recommended Posts

TheLibertarian Rookie

Hi. I am a brand new poster at this board. I am 25, a nurse aid (soon to be a pharmacy tech,yay!), I live in the beautiful Denver area, and I have suffered from symptoms of Celiac for about 3 long years but have only recently been diagnosed.

I also had a question:About how long after you stop eating gluten do your symptoms start to subside?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jrom987 Apprentice

Hi!

I can't answer your question for sure as I am new too but I have heard everything from weeks to months. I have been gluten free for 2 weeks. I hope I feel better soon!

There is an abundance of information here. I have found it extremely helpful. These wonderful people know more than most of the doctors do.

Good luck!

KaitiUSA Enthusiast

It varies from person to person. Some people see improvement quick and for others it takes alot longer. It depends on damage and so forth.

jenvan Collaborator

hey! welcome--glad you've joined us :) that is a bit of hard question. it can vary person to person. many times is depends on how long you've suffered from the disease. many here felt noticeably better within a few months. as for myself, i am about 9 months gluten-free and am still waiting to feel a great improvement in my energy and muscle pain. i think one of the first things people notice is improvement in their diarrhea or constipation. i had improvement with that within a few months. make sure you are cked out for deficiences etc, to make sure you do improve as quickly as possible. you will feel better though...it just takes longer for some of us. a nurse i am working with (who has celiac) said 2 years is a reasonable time to really feel "normal again." but do be encouraged, you will probably notice some improvements quickly, it just may take longer for a "complete recovery," so to speak. what are your symptoms?

skoki-mom Explorer

Just wanted to say welcome :) I never had symptoms, so I can't answer your question from experience, but it seems to vary from person to person.

Ursa Major Collaborator

I felt I an almost instant improvement, even though I was sick all my life, and severely ill all summer. My diarrhea stopped the day after starting the gluten-free diet, the terrible backpain started getting better the second day, and the awful muscle and joint pains improved so much within two weeks that I could stop the codeine I was on 24 hours a day (I have to take it occasionally now, maybe once a week). The bad stomach ache went away after a week, but comes and goes still. My feet and hands aren't swelling at all any more. My scalp stopped being itchy all the time when I switched from a product containing wheat germ to one that's gluten-free.

After reading how long it took for others here to start feeling better, I guess I am an exception.

jmarie Newbie

Hi there. I have been gluten-free for six months, and I notice that symptoms are a little tiny bit better each month. It's been a long month, and according to my gi, my intestines are still quite extensively damaged. I had been sick for 12 years, though, so I was really quite sick by the time I was diagnosed.

Maybe if you're diagnosed early enough, it will be quicker? It's amazing to me that some people are saying it only took a few weeks. That has certainly not been my experience.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FaithInScienceToo Contributor

Welcome, Newbie!

It took about 3 days before I started to feel better...within 2 weeks I knew I had my answer!

I don't know how long it wil take for my leaky gut to heal, though...

Going gluten-free wasn't enough to erase all digestive problems....although I feel like the spittin' image of health now compared to how I felt pre-gluten-free ...

I am now beginning my journey into trying to COMPLETELY heal my gut...I am now learning about inflammation, probiotics, enzymes, amino acids, etc....

Hope you'll also find here all of the info you'll need along your journey.

Love, Gina

4getgluten Rookie

You will learn so much on this board! I know I did. Everyone is different. I felt better within a few days, but I didn't start to feel REALLY good until 2 months ago (six months into the diet). I don't think I'm back to 100% yet, but I'm almost there. Hang in there. You will probably have good days and bad days.

TheLibertarian Rookie
:D Thank you! I have been gluten-free for about a week and I have noticed some improvements. My stomach pain has been much better but I still have occasional bouts of cramping and diarrhea. The severe fatigue I have been experiencing still comes and goes. I still have a few episodes a day where I just want to lie down and go to sleep.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.