Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suddenly Have Gluten Sensitivity?

lostinpa

By lostinpa
in Related Issues & Disorders

Recommended Posts

lostinpa Newbie
lostinpa
Posted

I have been tested twice for celiac disease and both times my blood work came back negative..I have MS and thyroid problems. I ended up doing the radioactive iodine to kill my thyroid.  I have iron deficient anemia as well.  The anemia only started about a year ago. I had an endoscopy to see if I was bleeding internally.  The only thing that showed up was my stomach lining was red and inflamed.The doctors said that was from my use of Motrin for the last 8yrs.  Never a mention of gluten sensitivity.  Can you all of a sudden be gluten sensitive or was I born with it?  

 

I am so confused about this...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

me too!  why do you think you have gluten sensitivity?  celiac wouldn't show in your stomach, it would show in damage to your small intestine.  have you had an endoscopy?

lostinpa Newbie
lostinpa
Posted
  • Author

Yes I had an endoscopy and a colonoscopy.  The reason I might have a sensitivity to gluten was from the suggestion from my neurologist.I have had stomach issues my entire life.  Nausea, constipation, stomach pain....

mamaw Community Regular
mamaw
Posted

did  they  take  several biopsies  when  you  had the  endo done? I too am  thyroidless  from RAI...plus  several other  autoimmune  disorders...it  appears  once  your  get  one  autoimmune  more  follows.....

You  can develop  sensitivity   at  any  time...

There  are  many  who only  have  anemia  &  docs  put  hem on a gluten-free  diet....

Lost  in pa...... I'm  from  western Pa.....(Pittsburgh area)

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Can you all of a sudden be gluten sensitive or was I born with it?  

 

Welcome to the Forum LostInPA -

 

You're born with a predisposition for Celiac - the predisposition for it is genetic.  But that doesn't mean that you will necessarily get it.  Some develop the disease very early in life - pretty much as soon as they are given solid foods that contain gluten.  Others don't develop it until very late in life.  Some develop it after a traumatic event (i.e a serious illness, pregnancy, etc.).  Some have intense symptoms and some have no symptoms at all.

 

(FYI... about 1/3 of the population has at least one of the genes identified as predisposing you to Celiac.  Only about 1% of the population actually has it.)

mommida Enthusiast
mommida
Posted

A gluten free diet has been shown in some studies to be helpful for auto-immune diseases.  (In basic terms..  the gluten protein chain is more complex,  choosing a simple diet is easier for an already stressed body~ so eliminating extra stress in the gut enables the body to be healthier.  The usual suspects for food intolerance/allergies are well known as the top 8 allergen list) 

 

I have known an MS sufferer who went on the gluten free diet as a last line of defense (she could no longer afford her medications).  She has had an amazing turnaround in her health.  She has also decided to avoid sugar among other allergens.  Her doctor now really stresses to patients that changing their diet is part of treatment plan that works.

 

If you have had testing for Celiac/intolerance completed you can start the diet.  Welcome to the board!  Any questions feel free to ask.  Peruse old posts by all means, but if you need to ask questions, it might be best to start a new thread.

sarahdea Rookie
sarahdea
Posted

Yes. My gluten-insensitivity seems to have been triggered by pregnancy. I am very new to gluten-free lifestyle.  Like you, I have thyroid problems. I have to pay down my existing medical bills before I get the endoscopy test to get more difinative results...  But for me, the bottom line is, how do I FEEL. This gluten thing hit me all of a sudden, and I just felt terrible after eating: I mean debilitating gut pain!   When I cut out gluten, I stopped having excruciating pain! And now that I have cut out dairy, my other GI issues seem to have calmed down as well.  

 

So, IMO, doctors and tests ARE important, but as Celiac and NCGI are only treatable by diet, change your diet and see how you feel. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Yes. My gluten-insensitivity seems to have been triggered by pregnancy. I am very new to gluten-free lifestyle.  Like you, I have thyroid problems. I have to pay down my existing medical bills before I get the endoscopy test to get more difinative results...  But for me, the bottom line is, how do I FEEL. This gluten thing hit me all of a sudden, and I just felt terrible after eating: I mean debilitating gut pain!   When I cut out gluten, I stopped having excruciating pain! And now that I have cut out dairy, my other GI issues seem to have calmed down as well.  

 

So, IMO, doctors and tests ARE important, but as Celiac and NCGI are only treatable by diet, change your diet and see how you feel. :)

If you go gluten-free, there is no point in other celiac tests - blood or endo. You will have to go back on gluten for a few months to get an accurate celiac test. It's best to get tested before you go gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,781
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.