Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vaccinations?


designerstubble

Recommended Posts

designerstubble Enthusiast

Any advice regarding vaccinations... Celiac UK recommends vaccinations for flu, meningitis and a few others! I'm not a great fan of injecting myself with foreign rubbish but I have had a lot of colds/infections this year...

Apparently vaccinations are imperative if your hyposplenic. How would you know if your hyposplenic?!!

Any thoughts on vaccinations for celiacs welcome thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No Celiac reason not to have the vaccinations you need.

Is it okay to get a flu shot if I have celiac disease?

Yes, it’s fine to get a flu shot. The immune system of those with celiac disease has not been compromised. You should receive the same immunizations as healthy individuals.

Open Original Shared Link

Here is the only issue they have found:

Open Original Shared Link

Do persons with celiac diseases struggle with receiving a Hepatitis B vaccine that sticks?

It’s well known that persons with celiac disease have a higher rate of non-response to the Hepatitis B vaccine. Most of them, however, typically respond to repeat injections.

nvsmom Community Regular

I don't have a spleen and I don't vaccinate myself except for the pneumonia one every five years or so. Meningitis  is also recommended.

 

My doctors do like to push that I get the flu vaccine but I stopped doing it over a decade ago, and frankly I've been much healthier since I did that. I tended to "coincidentally" get the flu immediately following the shot with fevers, aches and headaches. Now I only get the flu every few years... But that's just me. I'm not a fan of vaccinating for common diseases like the flu of chicken pox.

 

Some celiacs getan enlarged spleen which was affected by the prediagnosis autoimmune attack. When the spleen is enlarged and under attack, it tends not to works as well but that usually resolves. This is only an issue because your white bloods cells attach to things like germs, and your spleen kilss off whatever is marked when your blood passes through it.  I don't have a spleen because it was killing off parts of my blood so they took it out - one of those autoimmune diseases related to celiac disease.   :rolleyes:

 

Flu season will be ending soon. Most who do flu vaccinations tend to do it in the fall when people start going indoors again.  If you've had the flu this year, I wouldn't worry about it now.  

 

I use homeopathy to treat flus and colds and to "vaccinate" against them in the fall. We've had great success with it over the past few years and it could be something to look into, although the medical establishment is not knowledgeable in that field and tend not to be supportive of it. A homeopath would be your best bet for help with it, with a naturopath an okay second choice.

 

Best wishes.

designerstubble Enthusiast

No Celiac reason not to have the vaccinations you need.

Is it okay to get a flu shot if I have celiac disease?

Yes, it’s fine to get a flu shot. The immune system of those with celiac disease has not been compromised. You should receive the same immunizations as healthy individuals.

Open Original Shared Link

Here is the only issue they have found:

Open Original Shared Link

Do persons with celiac diseases struggle with receiving a Hepatitis B vaccine that sticks?

It’s well known that persons with celiac disease have a higher rate of non-response to the Hepatitis B vaccine. Most of them, however, typically respond to repeat injections.

Thanks for that, that's interesting stuff, I will check the links out. I didn't know that about Hep B. I wonder why that is then? It's interesting also generally because on the UK website it seems as though they are insinuating that a celiacs immunity IS compromised therefore we need to protect against via vaccination.

I guess all of my colds/flu could just be because I have caught them off my 7yr old boy?! Thanks again :-)

designerstubble Enthusiast

I don't have a spleen and I don't vaccinate myself except for the pneumonia one every five years or so. Meningitis is also recommended.

My doctors do like to push that I get the flu vaccine but I stopped doing it over a decade ago, and frankly I've been much healthier since I did that. I tended to "coincidentally" get the flu immediately following the shot with fevers, aches and headaches. Now I only get the flu every few years... But that's just me. I'm not a fan of vaccinating for common diseases like the flu of chicken pox.

Some celiacs getan enlarged spleen which was affected by the prediagnosis autoimmune attack. When the spleen is enlarged and under attack, it tends not to works as well but that usually resolves. This is only an issue because your white bloods cells attach to things like germs, and your spleen kilss off whatever is marked when your blood passes through it. I don't have a spleen because it was killing off parts of my blood so they took it out - one of those autoimmune diseases related to celiac disease. :rolleyes:

Flu season will be ending soon. Most who do flu vaccinations tend to do it in the fall when people start going indoors again. If you've had the flu this year, I wouldn't worry about it now.

I use homeopathy to treat flus and colds and to "vaccinate" against them in the fall. We've had great success with it over the past few years and it could be something to look into, although the medical establishment is not knowledgeable in that field and tend not to be supportive of it. A homeopath would be your best bet for help with it, with a naturopath an okay second choice.

Best wishes.

Thank you so much, wow, no spleen. How did you know there were problems with it? Did you have symptoms?

I also am not in favour of vaccinations unless essential. I would never have thought of it until I read this article on the UK website. And then wondered about my own illness this winter. Don't get me wrong I haven't been dreadfully ill, I've had flu and a bad cold back to back. What I have noticed is that I seem to get hit by the germs worse than my son or husband. Colds seem to wipe me out more or hit me harder. But I guess I still have healing to do so think perhaps I just need to get my vit stats up. Interesting about homeopathy, I'm a great 'alternative' medicine follower. I use the term 'alternative' hesitantly as I believe western medicine to be more alternative than natural remedies!!!

I'm so glad that you live sans spleen so successfully, well done!! :-) respect to you for managing your health so well.

Thanks again nvsmom, greatly appreciated, :-)

nvsmom Community Regular

Thank you so much, wow, no spleen. How did you know there were problems with it? Did you have symptoms?

I also am not in favour of vaccinations unless essential. I would never have thought of it until I read this article on the UK website. And then wondered about my own illness this winter. Don't get me wrong I haven't been dreadfully ill, I've had flu and a bad cold back to back. What I have noticed is that I seem to get hit by the germs worse than my son or husband. Colds seem to wipe me out more or hit me harder. But I guess I still have healing to do so think perhaps I just need to get my vit stats up. Interesting about homeopathy, I'm a great 'alternative' medicine follower. I use the term 'alternative' hesitantly as I believe western medicine to be more alternative than natural remedies!!!

I'm so glad that you live sans spleen so successfully, well done!! :-) respect to you for managing your health so well.

Thanks again nvsmom, greatly appreciated, :-)

 

Back to back cold and flu - nasty!

 

When I was about 18, I became really tired, was passing out at work (and on the bus - that was interesting LOL), and had a very heavy period that did not stop for over a cycle.  I had just started birth control pills a month or so before so I gave my symptoms more time than I should have as I thought my symptoms was related to getting used to that. Turned out I had ITP (idiopathic thrombocytopenia purpura) and my spleen was killing off my platelets so I couldn't stop bleeding. I was anemic for blood transfusions and couldn't clot for almost all bleeds. Meds and prednisone could stabalize me but I wouldn't stay stable for long, so they took out my spleen.  Luckily I was one of the 50% who that procedure works for.  :)

 

Over twenty years later, I've never had any serious problems with sickness. I tended to get sicker when I was an undiagnosed celiac, but homeopathic remedies really helped me over the last few years. For instance, When I used to get a cold, my nose would get so plugged I could not breath through it or blow it, I would get so feverish I would faint and walk into walls, and I would cough until I heaved. With remedies, my nose is not nearly as clogged, my fevers stay low or non-existent, and my cough is lessened. My whole family is helped by remedies although it varies from person to person.

 

I like mixing my medicinal styles too. I try to take the best from all worlds of medicine because I think only using one from of medicine (like allopathic) isn't addressing the whole health picture.

 

And thanks for the compliment.  :)

Gemini Experienced

Thanks for that, that's interesting stuff, I will check the links out. I didn't know that about Hep B. I wonder why that is then? It's interesting also generally because on the UK website it seems as though they are insinuating that a celiacs immunity IS compromised therefore we need to protect against via vaccination.

I guess all of my colds/flu could just be because I have caught them off my 7yr old boy?! Thanks again :-)

Actually, Celiac's have an over active immune system and the whole point of the gluten-free diet is to calm that down. I think it an advantage when you are sick because your immune system may over respond to invaders and, hopefully, kill off the virus sooner. On the rare occasion when I do get a cold, it seems to last only about 3 days.

I got all my vaccinations as a child but have not gotten any more as an adult. I never have had the flu shot but am in a very low risk group.....no kids. I do not take the pneumonia vaccine because I have never had it so why mess with a good thing? I think it all depends on the situation and your health issues. If you have lung problems, I probably would get the pneumonia vaccine. Doctors always try and scare people into having them but I know many people who do not take vaccines and live healthy lives. With young children in the house, most people have more colds or flu. And you know how deadly those kid germs are.......adults always suffer harder with the same germs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
designerstubble Enthusiast

Thanks Gemini... Yes I think you're right. Fortunately I don't catch every germ my son has, just the nasty ones... And probably because we are very close!

I like the fact that you said celiacs have an over active immunity... My recent 'flu' lasted only 5 days ( the worst of it) and I felt much better (before catching another infection!)... Everyone said it wasn't flu as I had gotten over it so quickly! But I'm sure it was, I had every symptom, chills, shivers, cough headache etc, bedridden for 3 days!

Well, fingers crossed that there's no more illness, I'm sick of being sick!!! Thanks my lovelies

Gemini Experienced

Yup...I swear I recover faster when on the rare occasion I do get sick because our immune systems are on higher alert than many others without Celiac.  It's good to give it something real to attack once in a while...... ;)

designerstubble Enthusiast

Gemini, I've been wanting to ask for 'your' celiac story for ages! You seem so well informed, and healthy now. I hope you don't mind me asking, but how did you get diagnosed, and what foods do you eat now? Do you have any intolerances or did you have any problems post dx? Hope you don't mind me asking :)

1desperateladysaved Proficient

Make sure to ask there is a paper in each vaccine batch.  Make sure there is nothing that you object to in your vaccine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.