Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Doing The Right Thing?


ColtonBarnes

Recommended Posts

ColtonBarnes Rookie

Ok so i am 19, and have had anxiet/depression pretty much all my life (seems to get worse with age). I have tried pretty much every drug for anxiety/depression on the market. But i have done a lot of research lately and i seem to have most physical symptoms of celiac disease, along with my mental ones. On top of that, about 10 min after i eat something with gluten in it, i get anxiety attacks and my heart feels weird, and i get these weird cramps in my side.

 

I got a blood test about 3 weeks ago and it said that i didnt have celiac disease, but i continued to feel terrible after eating gluten so i decided to just stop eating it anyway.

 

i have been gluten free for about 2 weeks and i am feeling better some days but somedays im feeling worse. im having really bad mood swings. The physical symptoms have not gone away, but i am more worried about the psycological symptoms.

 

so i got a bunch of gluten free foods but sometimes after i eat i still feel kind of a reaction (usually like half of the reaction i would get before going gluten free). some things ive had bad reactions to after eating: gluten free chips, gluten free waffles, pork chops, pop corn, and other things.

 

Is this just part of the gluten withdrawal? and if i am gluten intolerant, how long do i have to wait before i will see improvements in my anxiety and mood? do you guys think this could be the answer or am i just waisting my time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Hi and Welcome!

 

I don't know if you have Celiac or not but if you're going to try going gluten-free I would suggest laying off the processed stuff for awhile.  It can be really hard to digest and if you do in fact have Celiac your body can't heal and deal with that stuff too.  Stick to whole, natural food.  Meat, veggies, fruits.  Also, you may have other food intolerances or allergies going on so it may be a good idea to keep a food journal so you can track what else might be triggering your symptoms.

(Also... 2 weeks isn't very long for symptoms to really go away.  Give it some time.)

 

Good luck!

Cara in Boston Enthusiast

Both my son (6 at the time) and I went gluten free together.  He transitioned fine, no problem.  I had terrible "withdrawal" symptoms . . . sometime they were as bad or worse than my gluten symptoms.  It lasted a little over a week and then gradually (very gradually) got better.  It was such a wonderful surprise when I had to actually stop and think about when I last felt weird.  My GI symptoms were the first to disappear.  Then the fatigue and brain fog, then, over time, the anxiety.  It was two or three months before I could confidently say I no longer felt anxious . . .

 

Just be patient.

 

I would also steer clear of the processed, gluten free foods while you are healing.  They are great as a treat, but not as a main part of your diet.  Stick with real, naturally gluten-free foods like meat, fresh vegetables, fruit and nuts.  It might even be helpful to read a few Paleo cookbooks . . . they are grain free, which I found to be even more helpful in the beginning.  I've never felt healthier or more energetic then when I was completely grain free.

cap6 Enthusiast

Paleo is an excellent diet to follow.  My fav book is Practical Paleo by Diane Sanfilippo.  I started out a no cook (a serious no-cook!) and her easy to follow, simple to use recipes are great.  Plus she has some simple easy to follow 30 meal plans. 

 

When you replace processed gluten  foods with processed gluten free foods you will probably have trouble because of all of the ingredients that are needed to create that food.  Eating simple foods is the best way to heal.  Roast some veggies and a piece of chicken and you are off! 

 

A note ~ pop corn is very very hard to digest especially if you are still healing.  It was a year before I could eat it.  In the beginning after eating a handful I felt like I had been glutened.  So keep in mind that it isn't just the gluten you have to watch for but all of those ingredients in processed foods.

 

Two weeks isn't very long and although you are young and your body will heal fairly quickly, it takes time. 

Sounds like you are on the right track.  I would give it time.  Watch your foods, maybe make a food diary so you can track what food you react to as you may have some other hidden intolerances as well.   As long as you keep feeling better overall, aside from some little glitches, I would say keep up the good work!

ColtonBarnes Rookie

Thanks for the replys guys! I will look into that Paleo diet. I think i am going to just cut out processed foods overall, and start getting only natural foods. But what about things like milk, peanut butter and salad dressing? i really like salad but dont think i could eat it without dressing.

bartfull Rising Star

Vinegar and oil. You could use rice vinegar (it's really good) and olive oil.

 

Peanut butter? I don't know. Never touch the stuff because I have never (even as a kid) liked it. But if you do like it, try organic.

 

Milk? Well some folks have trouble with it and some don't. It sounds to me like your best bet would be an elimination diet. Start with whole foods like meat, veggies, and fruit. After about three weeks, and if you're feeling better, try adding something like milk and after three days if you're still feeling OK, put milk on the safe list and trial something else.

 

Elimination diets take a long time, but as far as I know they are the only way to really figure out what is safe for you and what isn't.

Cara in Boston Enthusiast

I always look for products with few ingredients (Teddy Peanut butter is great and readily available in most stores) or I make my own.  We usually just use olive oil, balsamic vinegar and salt on a salad, but in the summer I will make a bottle of "dressing" early in the week and use it daily.  Check out pinterest for lots of good dressing recipes.  It takes a few more minutes, but in the long run it is better for you (even if you were not gluten free) and in most cases, tastes better.

 

I still use things like W-sauce, gluten-free Tamari (instead of soy sauce), mayo, mustard, etc.  Just check the labels to make sure.

 

Once you figure it all out, it becomes habit.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
cap6 Enthusiast

I second the "take it easy with milk" and any dairy products.  It is quite common for a celiac to be lactose intolerant as well.  Many times after several months that will go away and you can then enjoy your dairy stuff again.  Took me about 8 months before I could handle yogurts, cheese or ice cream, but again... time is a healer!

GFinDC Veteran

Welcome Colton! :)

 

Two weeks is just the rough beginning of the gluten-free diet.  For some people withdrawal symptoms can go on for a couple weeks.  For many it seems like 6 months to get basically healed is about right, but it can take years for some.  It helps during healing to eat a simple diet, without lots of hot spicy stuff.  The less irritation of the gut the better.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy if it causes symptoms.
Avoid sugars and starchy foods. They can cause bloating.
Avoid alcohol.
Watch out for cross contamination.

Helpful threads:

FAQ Celiac com
https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
https://www.celiac.com/forums/topic/91878-newbie-info-101/

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.