Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Doing The Right Thing?


ColtonBarnes

Recommended Posts

ColtonBarnes Rookie

Ok so i am 19, and have had anxiet/depression pretty much all my life (seems to get worse with age). I have tried pretty much every drug for anxiety/depression on the market. But i have done a lot of research lately and i seem to have most physical symptoms of celiac disease, along with my mental ones. On top of that, about 10 min after i eat something with gluten in it, i get anxiety attacks and my heart feels weird, and i get these weird cramps in my side.

 

I got a blood test about 3 weeks ago and it said that i didnt have celiac disease, but i continued to feel terrible after eating gluten so i decided to just stop eating it anyway.

 

i have been gluten free for about 2 weeks and i am feeling better some days but somedays im feeling worse. im having really bad mood swings. The physical symptoms have not gone away, but i am more worried about the psycological symptoms.

 

so i got a bunch of gluten free foods but sometimes after i eat i still feel kind of a reaction (usually like half of the reaction i would get before going gluten free). some things ive had bad reactions to after eating: gluten free chips, gluten free waffles, pork chops, pop corn, and other things.

 

Is this just part of the gluten withdrawal? and if i am gluten intolerant, how long do i have to wait before i will see improvements in my anxiety and mood? do you guys think this could be the answer or am i just waisting my time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Hi and Welcome!

 

I don't know if you have Celiac or not but if you're going to try going gluten-free I would suggest laying off the processed stuff for awhile.  It can be really hard to digest and if you do in fact have Celiac your body can't heal and deal with that stuff too.  Stick to whole, natural food.  Meat, veggies, fruits.  Also, you may have other food intolerances or allergies going on so it may be a good idea to keep a food journal so you can track what else might be triggering your symptoms.

(Also... 2 weeks isn't very long for symptoms to really go away.  Give it some time.)

 

Good luck!

Cara in Boston Enthusiast

Both my son (6 at the time) and I went gluten free together.  He transitioned fine, no problem.  I had terrible "withdrawal" symptoms . . . sometime they were as bad or worse than my gluten symptoms.  It lasted a little over a week and then gradually (very gradually) got better.  It was such a wonderful surprise when I had to actually stop and think about when I last felt weird.  My GI symptoms were the first to disappear.  Then the fatigue and brain fog, then, over time, the anxiety.  It was two or three months before I could confidently say I no longer felt anxious . . .

 

Just be patient.

 

I would also steer clear of the processed, gluten free foods while you are healing.  They are great as a treat, but not as a main part of your diet.  Stick with real, naturally gluten-free foods like meat, fresh vegetables, fruit and nuts.  It might even be helpful to read a few Paleo cookbooks . . . they are grain free, which I found to be even more helpful in the beginning.  I've never felt healthier or more energetic then when I was completely grain free.

cap6 Enthusiast

Paleo is an excellent diet to follow.  My fav book is Practical Paleo by Diane Sanfilippo.  I started out a no cook (a serious no-cook!) and her easy to follow, simple to use recipes are great.  Plus she has some simple easy to follow 30 meal plans. 

 

When you replace processed gluten  foods with processed gluten free foods you will probably have trouble because of all of the ingredients that are needed to create that food.  Eating simple foods is the best way to heal.  Roast some veggies and a piece of chicken and you are off! 

 

A note ~ pop corn is very very hard to digest especially if you are still healing.  It was a year before I could eat it.  In the beginning after eating a handful I felt like I had been glutened.  So keep in mind that it isn't just the gluten you have to watch for but all of those ingredients in processed foods.

 

Two weeks isn't very long and although you are young and your body will heal fairly quickly, it takes time. 

Sounds like you are on the right track.  I would give it time.  Watch your foods, maybe make a food diary so you can track what food you react to as you may have some other hidden intolerances as well.   As long as you keep feeling better overall, aside from some little glitches, I would say keep up the good work!

ColtonBarnes Rookie

Thanks for the replys guys! I will look into that Paleo diet. I think i am going to just cut out processed foods overall, and start getting only natural foods. But what about things like milk, peanut butter and salad dressing? i really like salad but dont think i could eat it without dressing.

bartfull Rising Star

Vinegar and oil. You could use rice vinegar (it's really good) and olive oil.

 

Peanut butter? I don't know. Never touch the stuff because I have never (even as a kid) liked it. But if you do like it, try organic.

 

Milk? Well some folks have trouble with it and some don't. It sounds to me like your best bet would be an elimination diet. Start with whole foods like meat, veggies, and fruit. After about three weeks, and if you're feeling better, try adding something like milk and after three days if you're still feeling OK, put milk on the safe list and trial something else.

 

Elimination diets take a long time, but as far as I know they are the only way to really figure out what is safe for you and what isn't.

Cara in Boston Enthusiast

I always look for products with few ingredients (Teddy Peanut butter is great and readily available in most stores) or I make my own.  We usually just use olive oil, balsamic vinegar and salt on a salad, but in the summer I will make a bottle of "dressing" early in the week and use it daily.  Check out pinterest for lots of good dressing recipes.  It takes a few more minutes, but in the long run it is better for you (even if you were not gluten free) and in most cases, tastes better.

 

I still use things like W-sauce, gluten-free Tamari (instead of soy sauce), mayo, mustard, etc.  Just check the labels to make sure.

 

Once you figure it all out, it becomes habit.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
cap6 Enthusiast

I second the "take it easy with milk" and any dairy products.  It is quite common for a celiac to be lactose intolerant as well.  Many times after several months that will go away and you can then enjoy your dairy stuff again.  Took me about 8 months before I could handle yogurts, cheese or ice cream, but again... time is a healer!

GFinDC Veteran

Welcome Colton! :)

 

Two weeks is just the rough beginning of the gluten-free diet.  For some people withdrawal symptoms can go on for a couple weeks.  For many it seems like 6 months to get basically healed is about right, but it can take years for some.  It helps during healing to eat a simple diet, without lots of hot spicy stuff.  The less irritation of the gut the better.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy if it causes symptoms.
Avoid sugars and starchy foods. They can cause bloating.
Avoid alcohol.
Watch out for cross contamination.

Helpful threads:

FAQ Celiac com
https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
https://www.celiac.com/forums/topic/91878-newbie-info-101/

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,962
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.