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Please Help Me, I Attended A Class Today That Said That Autism Has No Relation To gluten-free Eating, Hmm


3bears2

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3bears2 Explorer

I attended a teacher training today and the trainer said that there is no research that supports autism and the gluten-free diet. So help me out. What do you think and know? Oh how I'd love to send her some information to debunk her teaching. I know of several kids that have benefited from eating gluten-free, my own. But I need information pertaining just to autism. If you have any websites for me to send to this presenter, I'd really appreciate it. She belongs to a CA autism organization and teaches this information all over the state so I'd really like to set her straight. Please help me do so. :)


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kareng Grand Master
The link to that article seems to have messed up. The point was, there was a study that found no link. Maybe google " autism and celiac"

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LauraTX Rising Star

Karen, If you can take out that link altogether, it took me to a malware site.  Don't want anyone downloading anything crazy.

 

3bears, No research has shown a link, but that doesn't mean a link is disproved or does not exist.  Celiac and Non-Celiac Gluten Intolerance are both not heavily researched, the latter more so.  Many children with various conditions benefit from dietary changes but anecdotal evidence is not enough for science.  I, too, would suggest just doing a google search for articles but do pay attention to the date and if you are going to hand over the article to an expert print out the entire article for her.  I would avoid websites without clear sources because on the internet you get a lot of unsupported claims and downright pseudoscience going on, and that would hurt your case.

 

Now, although anecdotal evidence is not enough to establish a scientific link, that doesn't mean people who are desperate for some type of improvement should not try dietary changes.  It is not like giving them an experimental drug, it is just diet.  So if you feel like it may or does benefit your child, then go for it. 

powerofpositivethinking Community Regular

I agree with Laura, if it works for your child, go with it!

 

The following two links include prominent doctors, Dr. Green and Dr. Fasano, in the world of celiac research, and here's what I'm gathering from reading these abstracts...although autism and celiac disease do not seem to have a link, it does appear that in some with autism the body responds abnormally to the gluten protein.  "A subset of children with autism displays increased immune reactivity to gluten, the mechanism of which appears to be distinct from that in celiac disease."

 

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Open Original Shared Link

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kareng Grand Master

Karen, If you can take out that link altogether, it took me to a malware site.  Don't want anyone downloading anything crazy.

 

3

 

 

The link went to an article/thread on our site.  The link to the article seems to no longer be good.  This happens with "news articles" sometimes.  The articles aren't active forever.

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    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
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      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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