Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prescription Based Pancreatic Enzyme Recommendations


powerofpositivethinking

Recommended Posts

powerofpositivethinking Community Regular

although I am still waiting to visually see the results, I got a call from the GI doctor's office the other day telling me my pancreatic elastase testing came back with abnormally low numbers indicating pancreatic insufficiency.  I am also malabsorbing neutral and total fats.

 

I keep seeing the prescription med Creon coming up in my searches, but are there any other prescription based enzymes that any of you have taken?  Also my doctor said these may or may not be covered by insurance.  Any experience with that?  Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

My son takes Pancreaze enzymes.  It is covered by my insurance, but I pay a co-pay of 25 dollars for 100 capsules.  My youth son takes 3 a day, 1 with each meal.  More information from the label.  It says pancrelipase.  Each capsule contains  lipase 4,200, amylase 17.500, protease 10,000 usp units.   They say they are Delayed-Release Capsules.  I looked them up on the internet before, so you can probably find more information there if you need it.

powerofpositivethinking Community Regular

that makes me very happy to hear your insurance covers it!  is this the one he takes?  Open Original Shared Link  does he notice a big difference with it?

 

 

My son takes Pancreaze enzymes.  It is covered by my insurance, but I pay a co-pay of 25 dollars for 100 capsules.  My youth son takes 3 a day, 1 with each meal.  More information from the label.  It says pancrelipase.  Each capsule contains  lipase 4,200, amylase 17.500, protease 10,000 usp units.   They say they are Delayed-Release Capsules.  I looked them up on the internet before, so you can probably find more information there if you need it.

lrmilas Rookie

It was so nice to see your post because I am in exactly the same place, except that I recently had some big lapses on my gluten free diet.  In the last few months I have lost 20 pounds, and feeling very shaky and weak. My GI doc also said I need pancreatic enzymes (Creon) for "pancreatic insufficiency"... but I am wondering if the pancreas will resume normally on a gluten-free diet.  It appears you have been gluten free for a year.  So... maybe these are not connected? 

1desperateladysaved Proficient

 It appears to be the same ingredient.  My son was about 9 when he began taking these enzymes with meals.  He had failed to grow at the expected rapid rate for his background.  We eventually did a stool test and discovered that his enzyme levels were very low.  Just after he began the enzymes I noted that his too small jaw began to increase at a surprising rate.  In fact when I pointed this out to the doctor, he showed his excitment about it.  My son  began to grow and put on more weight.  We came nearly to the end of his prescription and I stopped his taking it to see if we could get by  He felt no bloating or ill effects.  However, his growth and weight gain came nearly to a stand still.  We had him retested and discovered his enzyme level was zero!  He is back on them.

 

I noticed his sister had small jaw and teeth crowding.  I gave her some of my non-prescription enzymes.  She had teeth loose in her mouth that the dentist claimed would never fall out because her jaw was too small.  About 3 days later she lost one of these teeth and within 3 more days, she lost 3 of them.

 

I think enzymes work WHEN there is a need for them.  The doctor told me insurance will cover if there is a demonstrated need for them.  He considered the fact that my son began growing after starting them as reasonable proof.  The recent stool test (while not taking the enzymes) with 0 registering pancreatic enzymes could be used as a factor too.

 

The functional medicine nurse I see told me that in a damaged small intestine the villi damage can cause them to fail to do their job of telling the pancreas to fire.  The enzymes can help to break down the food while the villi heal.  For me (in celiac) that means that I may not need them forever.

 

The doctor that originally prescribed these for my son is trained in osteopathic and functional medicine.  I also remember my MD telling me to take enzymes when she diagnosed me.

 

This appears to be the exact product in my bottle.  Open Original Shared Link

powerofpositivethinking Community Regular

thank you!  the studies that I've read say the enzymes will help with growth and weight gain, but the weight gain is certainly something I do not need because I'm already slightly overweight  :lol:

 

 

 

 It appears to be the same ingredient.  My son was about 9 when he began taking these enzymes with meals.  He had failed to grow at the expected rapid rate for his background.  We eventually did a stool test and discovered that his enzyme levels were very low.  Just after he began the enzymes I noted that his too small jaw began to increase at a surprising rate.  In fact when I pointed this out to the doctor, he showed his excitment about it.  My son  began to grow and put on more weight.  We came nearly to the end of his prescription and I stopped his taking it to see if we could get by  He felt no bloating or ill effects.  However, his growth and weight gain came nearly to a stand still.  We had him retested and discovered his enzyme level was zero!  He is back on them.

 

I noticed his sister had small jaw and teeth crowding.  I gave her some of my non-prescription enzymes.  She had teeth loose in her mouth that the dentist claimed would never fall out because her jaw was too small.  About 3 days later she lost one of these teeth and within 3 more days, she lost 3 of them.

 

I think enzymes work WHEN there is a need for them.  The doctor told me insurance will cover if there is a demonstrated need for them.  He considered the fact that my son began growing after starting them as reasonable proof.  The recent stool test (while not taking the enzymes) with 0 registering pancreatic enzymes could be used as a factor too.

 

The functional medicine nurse I see told me that in a damaged small intestine the villi damage can cause them to fail to do their job of telling the pancreas to fire.  The enzymes can help to break down the food while the villi heal.  For me (in celiac) that means that I may not need them forever.

 

The doctor that originally prescribed these for my son is trained in osteopathic and functional medicine.  I also remember my MD telling me to take enzymes when she diagnosed me.

 

This appears to be the exact product in my bottle.  Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - oscarbolduc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Advice while waiting for testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748

    Nicole King
    Newest Member
    Nicole King
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • oscarbolduc
      Hello, I'm relatively new to this, so I'm hoping to get some advice. I went gluten-free for most of April and felt the best I've ever felt. I’ve been experiencing strange symptoms since last August, but they all disappeared when I eliminated gluten. However, to get accurate blood test results, I’m back on gluten for a month (all of May), and I’m honestly feeling miserable. I’ve been dealing with joint pain, bloating, diarrhea, and just overall discomfort. Does anyone have tips on how to manage these symptoms during this month? What has helped you with joint pain? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.