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Rash Show Up After Eliminating Gluten?

cmc811

By cmc811
in Dermatitis Herpetiformis

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cmc811 Apprentice
cmc811
Posted

I was recently diagnosed with Celiac (based on low positive ttg and marsh I biopsy) and about a week after cutting out gluten I developed a rash on my elbows. Very itchy and now painful.

 

I've been generally itchy off and on for a while but this is the first time I've had anything that actually resembled a rash to go along with the itch. Is is likely to be DH? Why would it show after cutting gluten?

 

Also, since I've already been diagnosed and am gluten-free is there any point to going to the dermatologist?

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squirmingitch Veteran
squirmingitch
Posted

No, there is no point in going to the derm. You have already been dx'd with celiac disease so unless you want to go on Dapsone for dh then don't waste your time with the derm. 

There could be a couple reasons you are turning up with the rash now. 1) You've only been gluten-free for a week --- that's really early in the gluten-free game --- you may have been right on the verge of presenting with the rash anyway & it's sort of like trying to stop a speeding car, it takes a little while after you put on the brakes for it to stop. With dh, the antibodies are deposited under the skin & it takes time for them to go away. 2) You are still getting gluten even if in minute amounts... i.e.: getting cc'd. DH is terribly sensitive to the tiniest amount of gluten. It's imperative that you be pristine in your diet.

 

Oh wait. I went back & re-read your post. I had mis-read & thought you had been gluten-free for only a week but you said you developed the rash about a week after going gluten-free. Ok, so how long have you been gluten-free?

cmc811 Apprentice
cmc811
Posted
  • Author

No, there is no point in going to the derm. You have already been dx'd with celiac disease so unless you want to go on Dapsone for dh then don't waste your time with the derm. 

There could be a couple reasons you are turning up with the rash now. 1) You've only been gluten-free for a week --- that's really early in the gluten-free game --- you may have been right on the verge of presenting with the rash anyway & it's sort of like trying to stop a speeding car, it takes a little while after you put on the brakes for it to stop. With dh, the antibodies are deposited under the skin & it takes time for them to go away. 2) You are still getting gluten even if in minute amounts... i.e.: getting cc'd. DH is terribly sensitive to the tiniest amount of gluten. It's imperative that you be pristine in your diet.

 

Oh wait. I went back & re-read your post. I had mis-read & thought you had been gluten-free for only a week but you said you developed the rash about a week after going gluten-free. Ok, so how long have you been gluten-free?

 

I have only been gluten-free for 3 weeks so you weren't far off.

 

My rash isn't severe at all so I don't plan on trying to get dapsone so I guess I'll just try and ride it out. I do know I am probably getting a bit of cc right now. My kids haven't been tested yet (in the process) so we're not completely gluten-free in the house yet. We will be soon, but I have to still get a bit of gluten in them everyday for now.

squirmingitch Veteran
squirmingitch
Posted

Well, try your darndest to keep from getting cc'd! Once the rash presents, it can go bonkers on you real quickly. 

cmc811 Apprentice
cmc811
Posted
  • Author

Well, try your darndest to keep from getting cc'd! Once the rash presents, it can go bonkers on you real quickly. 

 

I think overall, we're doing well....my 5 yr old gets his daily gluten via prepackaged crackers, granola bars, etc that I send to school with him. The 3 yr old is a little trickier but we are trying to be very diligent about keeping crumbs and such isolated to his spot at the table and then promptly cleaned up. My hope is we will get their test results back today or tomorrow and we can move forward with eliminating all gluten.

squirmingitch Veteran
squirmingitch
Posted

Good! Sounds like a plan.

1desperateladysaved Proficient
1desperateladysaved
Posted

I seem to get some type of a rash after removing products which I don't tolerate.  I take any reaction as a good reaction and figure that my body is at work!

 

D

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