Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash Show Up After Eliminating Gluten?


cmc811

Recommended Posts

cmc811 Apprentice

I was recently diagnosed with Celiac (based on low positive ttg and marsh I biopsy) and about a week after cutting out gluten I developed a rash on my elbows. Very itchy and now painful.

 

I've been generally itchy off and on for a while but this is the first time I've had anything that actually resembled a rash to go along with the itch. Is is likely to be DH? Why would it show after cutting gluten?

 

Also, since I've already been diagnosed and am gluten-free is there any point to going to the dermatologist?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

No, there is no point in going to the derm. You have already been dx'd with celiac disease so unless you want to go on Dapsone for dh then don't waste your time with the derm. 

There could be a couple reasons you are turning up with the rash now. 1) You've only been gluten-free for a week --- that's really early in the gluten-free game --- you may have been right on the verge of presenting with the rash anyway & it's sort of like trying to stop a speeding car, it takes a little while after you put on the brakes for it to stop. With dh, the antibodies are deposited under the skin & it takes time for them to go away. 2) You are still getting gluten even if in minute amounts... i.e.: getting cc'd. DH is terribly sensitive to the tiniest amount of gluten. It's imperative that you be pristine in your diet.

 

Oh wait. I went back & re-read your post. I had mis-read & thought you had been gluten-free for only a week but you said you developed the rash about a week after going gluten-free. Ok, so how long have you been gluten-free?

cmc811 Apprentice

No, there is no point in going to the derm. You have already been dx'd with celiac disease so unless you want to go on Dapsone for dh then don't waste your time with the derm. 

There could be a couple reasons you are turning up with the rash now. 1) You've only been gluten-free for a week --- that's really early in the gluten-free game --- you may have been right on the verge of presenting with the rash anyway & it's sort of like trying to stop a speeding car, it takes a little while after you put on the brakes for it to stop. With dh, the antibodies are deposited under the skin & it takes time for them to go away. 2) You are still getting gluten even if in minute amounts... i.e.: getting cc'd. DH is terribly sensitive to the tiniest amount of gluten. It's imperative that you be pristine in your diet.

 

Oh wait. I went back & re-read your post. I had mis-read & thought you had been gluten-free for only a week but you said you developed the rash about a week after going gluten-free. Ok, so how long have you been gluten-free?

 

I have only been gluten-free for 3 weeks so you weren't far off.

 

My rash isn't severe at all so I don't plan on trying to get dapsone so I guess I'll just try and ride it out. I do know I am probably getting a bit of cc right now. My kids haven't been tested yet (in the process) so we're not completely gluten-free in the house yet. We will be soon, but I have to still get a bit of gluten in them everyday for now.

squirmingitch Veteran

Well, try your darndest to keep from getting cc'd! Once the rash presents, it can go bonkers on you real quickly. 

cmc811 Apprentice

Well, try your darndest to keep from getting cc'd! Once the rash presents, it can go bonkers on you real quickly. 

 

I think overall, we're doing well....my 5 yr old gets his daily gluten via prepackaged crackers, granola bars, etc that I send to school with him. The 3 yr old is a little trickier but we are trying to be very diligent about keeping crumbs and such isolated to his spot at the table and then promptly cleaned up. My hope is we will get their test results back today or tomorrow and we can move forward with eliminating all gluten.

squirmingitch Veteran

Good! Sounds like a plan.

1desperateladysaved Proficient

I seem to get some type of a rash after removing products which I don't tolerate.  I take any reaction as a good reaction and figure that my body is at work!

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.