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5 Days Into Gluten Free Diet

shirleytx

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shirleytx Newbie
shirleytx
Posted

I have a long history of digestive issues, gerd, esophageal regurgitation, and have EDS type 3. I started a gluten free diet 5 days ago. The first 48 hours my lower gut seemed less bloated and I felt less foggy but now I feel pretty rough to be honest. I have a pounding headach in my forehead, and have been having more trouble sleeping. Is this in the realm of normal detoxing as it were coming off gluten?

I can do this and cope with most things if I know there is light at the end of the tunnel.

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bartfull Rising Star
bartfull
Posted

Yes, you are going through gluten withdrawal. Headaches, mood swings, constant hunger are common. It only lasts two to three weeks. Hang in there! :)

moosemalibu Collaborator
moosemalibu
Posted

What bartfull has said... ditto! Gluten withdrawal is real and it sucks! You will feel very sluggish and have a feeling like you cannot ever be full but it will pass. Keep it up - there is light at the end of the tunnel.

Fenrir Community Regular
Fenrir
Posted

Good to know, I had no idea you could have withdrawal from gluten.

moosemalibu Collaborator
moosemalibu
Posted

Good to know, I had no idea you could have withdrawal from gluten.

 

Yes - and the mood swings for me were almost as bad as the mood swings when I get glutened. I get celiac angry.. it's incredible the change in personality. It's a funny thing.

Fenrir Community Regular
Fenrir
Posted

Yes - and the mood swings for me were almost as bad as the mood swings when I get glutened. I get celiac angry.. it's incredible the change in personality. It's a funny thing.

 

Yeah, now that we know it is likely celiac my wife says that now that she thinks of it I do get gumpy when I eat too many carbs. She thought maybe I was getting diabetic or something but it probably just happened that a lot of those carbs had gluten in them. :)

shirleytx Newbie
shirleytx
Posted
  • Author

Typically how long does this withdrawal period last?

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notme Experienced
notme
Posted

Typically how long does this withdrawal period last?

2-3 weeks.  feels like the Angry Flu, lolz.  then you will start feeling better each day better than the last :)

notme Experienced
notme
Posted

ps - you may have a problem digesting lactose in the beginning so you may want to skip the dairy, as well, and add it back in later.  i stopped for about 6 months and then i was healed enough to tolerate it.

124chicksinger Apprentice
124chicksinger
Posted

I sort of "jumpstarted" the gluten elimination the day before the scopings (both ends).  I haven't consumed gluten since, and perhaps the Movi-Prep drink to empty the colon did something to detox my system?   I didn't have a bm for 6 days after the scopings, and my glucose readings were high (for no reason, except I think the Movi-Prep), but I'm becoming more "regular" and my glucose readings are returning to "normal" for me.  I hope to get them lower.

 

I have no cravings. That, and becoming more "regular" are what I notice the most.  

 

I wonder if anyone else gave up the gluten in the same fashion, and if having "Elvis leave the building" via Movi-Prep eased withdrawal?

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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