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Glutened But Not Feeling Glutened

veryami1

By veryami1
in Coping with Celiac Disease

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veryami1 Apprentice
veryami1
Posted

Hi,

I've been eating gluten-free for just over three weeks. Last week, I had japanese food including sticky rice and imitation crab. I had no idea these had gluten! I found out today. However, I was fine last week when I ate them.  Is it possible that I glutened myself but did not outwardly feel glutened? Like maybe I just did slight internal damage without getting my normal side effects? I might have had some slight gas, but that's all I remember. 

 

Thanks for any help!

 

Ami

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kareng Grand Master
kareng
Posted

Are you diagnosed with Celiac?

veryami1 Apprentice
veryami1
Posted
  • Author

I have positive for celiac blood work and an incompetent GI who said I was negative for celiac. (the DNA test was negative, but positive antibodies and EMA) Waiting for my appointment with another GI. Decided to go gluten-free anyways, have been feeling better for about a week.

nvsmom Community Regular
nvsmom
Posted

Yes, we don't all react immediately or the same. There are some celiacs out there who have no obvious symptoms at all. It really varies person to person.

kareng Grand Master
kareng
Posted

Assuming you have Celiac - Its only been 3 weeks.  You probably haven't been completely gluten-free.  There is a learning curve and it sounds like you are eating food you haven't prepared.  Meaning- you might not be getting a reaction because you haven't stopped making antibodies.  Even if you had been completely gluten-free, antibodies can take a while to go down and may even go up for a few weeks.

124chicksinger Apprentice
124chicksinger
Posted

So my 2cents likely has nothing to do with gluten, but also I didn't know the fake crab contained it either at the time. Fake crab is a horrible product that no one should eat.   Before I was gluten-free (am only 4 weeks so now) I ate lunch at a buffet and one of the items was small shrimp, peas, carrots, and a white sauce (think thin white lobster sauce in a chinese restaurant) and fake crab.  This was about a year ago.  When I returned to work, I was itchy, I had a hive on my neck and one on my cheek, and the bottoms of my feet were hot and "burning" and when I removed my shoes and socks, literally the bottoms of my feet were red. My coworker said - "what did you eat?" and I've eaten there before, but never that fake crab, so I assumed that was it.  I drank a lot of water, took a benydril, and wet some paper towels to put cool water under my feet. Never again.

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