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Could It Be Celiac?

Lovelivedance

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Lovelivedance Newbie
Lovelivedance
Posted

Hi,

I have recently been having stomachaches after eating almost everything. I was wondering what was wrong so I went to the doctor today. I gave my doctor a food diary and she seemed to think it may be dairy and she said possibly Celiac but probably not because I had no symptoms after eating plain white rice. According to her white rice has gluten and that Is not true,right. Anyways so she ordered an x ray for me to check for constipation. I thought this was crazy because I have never had trouble "going". Surprisingly the x-Ray showed that there was a little backup. I know that constipation can also be a symptom of celiac so that also leads me to think its celiac. Anyways the doctor also ordered blood tests for celiac among many other things and I was told to stay off dairy until I get my test results. I think my issues with dairy may have to do with the damage celiac has done to my intestines. Anyways I'm jut looking for what you guys think of all this.

Thanks,

Stephanie

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moosemalibu Collaborator
moosemalibu
Posted

Hey Stephanie,

 

Your doctor is a bit confused about 'glutinous rice.' The name of the rice is misleading. It is just meant to be defined with the glutinous reference to being sticky. Rice absolutely doesn't have the gluten that Celiac's react to. Wheat, barley rye and oats are what trigger Celiac symptoms. Yes, you are right about lactose intolerance and constipation as possible symptoms of Celiac. Hopefully your doctor ordered the appropriate tests for screening for Celiac. Request all the results so you can share with us (only if you want to) to see if it was indeed a proper and thorough screening.

 

Until you get your test results back I would wait to cut gluten from your diet. It is much harder to eat it after you've been gluten free if you are in fact intolerant or Celiac. Many don't do well on the gluten challenge and many doctors need you to eat gluten for quite some time before biopsy or serology.

Lovelivedance Newbie
Lovelivedance
Posted
  • Author

Okay,thank you I will definatley post the results. I remember being tested for celiac a few years ago and it being negative so I'm leaning more torwards being intolerant than having celiac.

GFinDC Veteran
GFinDC
Posted

The dr may have been checking for diverticulitis with the x-ray, or some other kind of damage to the gut that would explain the symptoms.  Celiac disease can start at any time in life, so a test from 2 years ago dosen't prove anything except what was happening 2 years ago.  Today could be very different.

  • 1 month later...
Patti J Rookie
Patti J
Posted

Hi,

I have recently been having stomachaches after eating almost everything. I was wondering what was wrong so I went to the doctor today. I gave my doctor a food diary and she seemed to think it may be dairy and she said possibly Celiac but probably not because I had no symptoms after eating plain white rice. According to her white rice has gluten and that Is not true,right. Anyways so she ordered an x ray for me to check for constipation. I thought this was crazy because I have never had trouble "going". Surprisingly the x-Ray showed that there was a little backup. I know that constipation can also be a symptom of celiac so that also leads me to think its celiac. Anyways the doctor also ordered blood tests for celiac among many other things and I was told to stay off dairy until I get my test results. I think my issues with dairy may have to do with the damage celiac has done to my intestines. Anyways I'm jut looking for what you guys think of all this.

Thanks,

Stephanie

Please keep close look on this. I had the same thing happen 2 years ago and I had a partial blockage/ twisted intestines. They tested me for Celiac back then also and I was told I did not have it. My new doctor yesterday, a brilliant man, showed me the error in  2 doctors findings..one of them being Mayo Clinic.  

Fenrir Community Regular
Fenrir
Posted

Could be Celiac or it could be any number of other issues that have similar symptoms. When the tests come back you should have a little more to go on.

  • 4 weeks later...
Lovelivedance Newbie
Lovelivedance
Posted
  • Author

Sorry that I forgot about this forum but I wanted to let you know that everything came back negative and they found nothin wrong they just told me to stay off dairy and they never did anything else but my symptoms still aren't gone

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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