Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Explaining The Need To Be Careful If You Don't Have Violent Reactions


BlessedMommy

Recommended Posts

BlessedMommy Rising Star

I've been gluten-free for over 4 years. Overall I've tried to be quite careful with my diet since the day I committed to it, but I've learned even more from this forum about preventing cross contamination.

 

At high levels of gluten, I get severe reactions. However, at low levels I do not. The most I get at low levels of gluten (say if I ate a bean tostada at Taco Bell that got CC'ed) is the start of an itchy skin rash or my skin burns and flames to the touch. (I don't eat at Taco Bell ever anymore, FTR)

 

Due to my history and symptoms, I think that it's highly likely that I have Dermetitis Herpetiformis, though unfortunately my dermatologist never thought to run a biopsy for DH.

 

My family and friends are overall quite supportive, but how should I approach them if I'm feeling the need to be more careful than before, though I've not gotten visibly ill from minute amounts of CC?

 

I was thinking something like this:

 

"You know, I didn't really know what I was doing when I started eating gluten-free. This whole process has been a learning experience. And I've recently learned that in order to prevent complications like villi damage and nutritional deficiencies I need to be even more careful than I've been. Even if my outward reaction isn't violent, the internal damage can still be done. So would it be okay with you if I leave a set of dedicated kitchen utensils at your house?"

 

(this would be directed to my MIL)

 

What do you think of this approach of explaining my new information that I've learned?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FruitEnthusiast Enthusiast

Sounds like you have a good plan already. I might leave out the villi part and stick to something more general like internal damage or nutritional deficiencies. You can explain further if asked, but I don't think you have to unless you want to. Maybe your MIL is the nosy type I don't know.

 

I would say as little as possible. Something like, I found out that gluten exposure even in small amounts can cause internal damage, so I'm going to be more careful from now on about cc.

 

I don't think you should have to mention symptoms at all. You don't have to prove what you know to be true to anyone. If you want more back-up you can say it was your doctors idea to be more careful.

 

Good for you for taking such good care of yourself, and being so cautious about gluten. You're setting a good example :)

nvsmom Community Regular

"You know, I didn't really know what I was doing when I started eating gluten-free. This whole process has been a learning experience. And I've recently learned that in order to prevent complications like villi damage and nutritional deficiencies I need to be even more careful than I've been. Even if my outward reaction isn't violent, the internal damage can still be done. So would it be okay with you if I leave a set of dedicated kitchen utensils at your house?"

 

 

I think that all sounds really good except I don't see the need to leave a set of dedicated kitchen utensils at her home.  As long as utensils have been cleaned, there should be no issue at all.  If you are worried that she can't safely prepare food for you, it might be best just to bring your own food, or be there when she prepares the food so you can protect your food in a manner that you are sure is safe.  The second option has the added bonus that she will see /learn how to prepare food for you.

 

Good luck.. :)

BlessedMommy Rising Star

Though I'm sure that she's tried to be careful to wash things when making food for me, I'm sure that she's done stuff like use wooden utensils and use a cast iron pan for both gluten free and regular food.

 

And when I was dining when them at a church function, she was trying some of the gluten free lasagna that I had brought and stuck her glutenous fork into it to get a last bite. So I know that she's not as aware of CC as I would like. For now, I've been taking charge and preparing things myself. Lately the family gatherings (birthday parties) have been at my house and I've asked my inlaws to bring pretty generic things to them (like asking them to bring whole tomatoes and I will slice them myself on my dedicated cutting board).

 

My birthday party is on Sunday and we are having a pizza party. I've asked the IL's to bring gluten pizza and I'm making all the gluten-free myself.

NoGlutenCooties Contributor

Happy Birthday!

 

It sounds to me like you have a really good plan.  When they bring the gluten pizza I would have a separate table - or a separate end of the table - for it and even say to them as they walk in the door... Please put that over here in the gluten area so that we don't cross-contaminate the gluten-free.  If they want to know what cross-contaminate means they'll ask - which will present a good opportunity for you to tell them about it.

FruitEnthusiast Enthusiast

Happy Birthday!

 

Ditto! :)

nvsmom Community Regular

Happy Birthday.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Thank you!

 

The birthday party went fairly well although I think that I looked a little paranoid when I asked people to remember to use the tongs for the chips. Next time I'll just portion out mine ahead of time and forget reminding people to use tongs.

 

My MIL told me that at the next birthday party, it will be a grilling party and they have an extra grill to use for gluten free only items. And I can put down aluminum foil on it to ensure that we're not CC'ed. Yay! 

FruitEnthusiast Enthusiast

Glad to hear it went well, that's great!

 

I keep trying to learn new ways to fine tune how I cope with my dietary issues too to make it easier for myself. It sure makes a difference. :)

CaliSparrow Collaborator

I'm so glad you found success with your MIL. So did I :). Happy Birthday!! (Love the gluten traffic cop story!)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,889
    • Most Online (within 30 mins)
      7,748

    glutenhater11
    Newest Member
    glutenhater11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
    • trents
      This topic has come up before on this forum and has been researched. No GMO wheat, barley and rye are commercially available in the USA. Any modifications are from hybridization, not laboratory genetic modification. Better toleration of wheat, barley and rye products in other countries is thought to be due to use of heirloom varieties of these cereal grains as opposed to the hybrids used in the USA which contain much larger amounts of gluten.
    • Scott Adams
      Welcome to the forum @Ceekay! If you have celiac disease then you can't eat wheat in other countries because it would still contain gliadin, the harmful part of the grain. Have you been diagnosed with celiac disease?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.