Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Explaining The Need To Be Careful If You Don't Have Violent Reactions


BlessedMommy

Recommended Posts

BlessedMommy Rising Star

I've been gluten-free for over 4 years. Overall I've tried to be quite careful with my diet since the day I committed to it, but I've learned even more from this forum about preventing cross contamination.

 

At high levels of gluten, I get severe reactions. However, at low levels I do not. The most I get at low levels of gluten (say if I ate a bean tostada at Taco Bell that got CC'ed) is the start of an itchy skin rash or my skin burns and flames to the touch. (I don't eat at Taco Bell ever anymore, FTR)

 

Due to my history and symptoms, I think that it's highly likely that I have Dermetitis Herpetiformis, though unfortunately my dermatologist never thought to run a biopsy for DH.

 

My family and friends are overall quite supportive, but how should I approach them if I'm feeling the need to be more careful than before, though I've not gotten visibly ill from minute amounts of CC?

 

I was thinking something like this:

 

"You know, I didn't really know what I was doing when I started eating gluten-free. This whole process has been a learning experience. And I've recently learned that in order to prevent complications like villi damage and nutritional deficiencies I need to be even more careful than I've been. Even if my outward reaction isn't violent, the internal damage can still be done. So would it be okay with you if I leave a set of dedicated kitchen utensils at your house?"

 

(this would be directed to my MIL)

 

What do you think of this approach of explaining my new information that I've learned?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FruitEnthusiast Enthusiast

Sounds like you have a good plan already. I might leave out the villi part and stick to something more general like internal damage or nutritional deficiencies. You can explain further if asked, but I don't think you have to unless you want to. Maybe your MIL is the nosy type I don't know.

 

I would say as little as possible. Something like, I found out that gluten exposure even in small amounts can cause internal damage, so I'm going to be more careful from now on about cc.

 

I don't think you should have to mention symptoms at all. You don't have to prove what you know to be true to anyone. If you want more back-up you can say it was your doctors idea to be more careful.

 

Good for you for taking such good care of yourself, and being so cautious about gluten. You're setting a good example :)

nvsmom Community Regular

"You know, I didn't really know what I was doing when I started eating gluten-free. This whole process has been a learning experience. And I've recently learned that in order to prevent complications like villi damage and nutritional deficiencies I need to be even more careful than I've been. Even if my outward reaction isn't violent, the internal damage can still be done. So would it be okay with you if I leave a set of dedicated kitchen utensils at your house?"

 

 

I think that all sounds really good except I don't see the need to leave a set of dedicated kitchen utensils at her home.  As long as utensils have been cleaned, there should be no issue at all.  If you are worried that she can't safely prepare food for you, it might be best just to bring your own food, or be there when she prepares the food so you can protect your food in a manner that you are sure is safe.  The second option has the added bonus that she will see /learn how to prepare food for you.

 

Good luck.. :)

BlessedMommy Rising Star

Though I'm sure that she's tried to be careful to wash things when making food for me, I'm sure that she's done stuff like use wooden utensils and use a cast iron pan for both gluten free and regular food.

 

And when I was dining when them at a church function, she was trying some of the gluten free lasagna that I had brought and stuck her glutenous fork into it to get a last bite. So I know that she's not as aware of CC as I would like. For now, I've been taking charge and preparing things myself. Lately the family gatherings (birthday parties) have been at my house and I've asked my inlaws to bring pretty generic things to them (like asking them to bring whole tomatoes and I will slice them myself on my dedicated cutting board).

 

My birthday party is on Sunday and we are having a pizza party. I've asked the IL's to bring gluten pizza and I'm making all the gluten-free myself.

NoGlutenCooties Contributor

Happy Birthday!

 

It sounds to me like you have a really good plan.  When they bring the gluten pizza I would have a separate table - or a separate end of the table - for it and even say to them as they walk in the door... Please put that over here in the gluten area so that we don't cross-contaminate the gluten-free.  If they want to know what cross-contaminate means they'll ask - which will present a good opportunity for you to tell them about it.

FruitEnthusiast Enthusiast

Happy Birthday!

 

Ditto! :)

nvsmom Community Regular

Happy Birthday.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Thank you!

 

The birthday party went fairly well although I think that I looked a little paranoid when I asked people to remember to use the tongs for the chips. Next time I'll just portion out mine ahead of time and forget reminding people to use tongs.

 

My MIL told me that at the next birthday party, it will be a grilling party and they have an extra grill to use for gluten free only items. And I can put down aluminum foil on it to ensure that we're not CC'ed. Yay! 

FruitEnthusiast Enthusiast

Glad to hear it went well, that's great!

 

I keep trying to learn new ways to fine tune how I cope with my dietary issues too to make it easier for myself. It sure makes a difference. :)

CaliSparrow Collaborator

I'm so glad you found success with your MIL. So did I :). Happy Birthday!! (Love the gluten traffic cop story!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748

    Terra33
    Newest Member
    Terra33
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.