Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Endoscopy Or Not To Endoscopy?

0range

Recommended Posts

0range Apprentice
0range
Posted

Hi everyone!

 

I did my second TTG-IgA test in 12 months, and it was overwhelmingly negative. Thyroid levels are going ok too, maybe a bit on the higher side but I am wary of increasing my dose due to an overmedication episode last year (when I was overmedicated, my FT4 was at 19 so am way too sensitive to even a slightly higher FT4 level). So the TTG-IgA came back negative, and my doctor told me it is an exceptionally sensitive blood test so I probably do not have celiac. A link to my results: Open Original Shared Link

 

The TTG-IgA cost around $60 (but I ended up only having to pay $12 thanks to school insurance) but I am not sure if ordering other celiac tests would be worth it. Canadians: Is it possible to order the other tests without ordering the TTG-IgA again? Is it worth pushing for an endoscopy? I doubt it would provide any answers. I have had tarry black stool, so the doctor told me to do another stool test (that's about 4 in a year which is always fun to collect haha) but an August colonoscopy only revealed mild inflammation at the terminal ileum.

 

I feel horrible but I've come to accept this IBS/SIBO/Hashi's existence at the moment. Joint pain, crippling anxiety, chronic diarrhea has been the name of the game for at least a year. I have given up wheat for a few weeks but I always come back to it, and even when I'm not eating wheat, I don't give too much thought to cross-contamination. I just feel so upset about all of this. The answers are not very simple, I'm afraid.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fenrir Community Regular
Fenrir
Posted

If you have not had one, I'd consider it. If you want answers, you need to look under every rock. 

I had 2 EGDs, a colonoscopy, MRI, CT, Ultrasound, and tons of blood tests before I was DX'd.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,726
    • Most Online (within 30 mins)
      7,748
    J.P. Linder
    Newest Member
    J.P. Linder
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Idnam
      Ectopic heartbeats - any relation to digestive issues?

      By Idnam · Posted

      They do work for me. I am feeling much better now that I am watching my histamine intake and only take the DAO once  a day.   I had acid reflux for 12 years and was prescribed PPI's.  which I refused to take. Ranitidine was prescribed as an option that I did use only as and when I had chest pain. They were prescribed for me to reduce the acid in my body.
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      This is difficult for me to deal with.  B complex is what stands between me and migraines.  Whenever I stop B for just a few days, I get a migraine.  All my adult life I would get a violent migraine for 3 days like clockwork until a doctor told me to try B complex and it worked.  The only time I get a migraine is when I've run out of B.  This has worked for me for over 15 years.  I am soon to be 79.   My cardiologist has me stop all vitamins for about 3 days and I always have a migraine when I go in for the bloodwork.   D level is nearly at optimal.  I don't take A, I get enough from food.   What a dilemma!
    • Scott Adams
      What apps or tech tools help you manage celiac disease?

      By Scott Adams · Posted

      I think the best approach is to lean how to read product labels, especially the allergen warnings, and these lists might be helpful:      
    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      It looks like you are referring to this product: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Their site says: "Made with gluten-free wheat starch to give baked goods incredible taste and texture, it’s ideal for classic yeasted recipes like artisan boules, bagels, cinnamon rolls, and burger buns", and it is true that Codex quality wheat starch is gluten-free, and does make better baked goods. However, it also contains very low levels of gluten (under 20ppm), and some celiacs do react to this level, so if you are super sensitive it's best to avoid it. They also make this very similar product, which doesn't include any wheat ingredient, and is certified gluten-free: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Although labeling products in the USA as "gluten-free" that contain such wheat starch is relatively new, it has been offered in Europe for decades. You can read more about studies on it here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies.  It tests the intracellular levels of the nutrients, not blood levels.  When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests.  I have a genetic inability to process Vitamin D, B12 and antioxidants, so I am on high doses of those for life.  The rest of the initial deficiencies resolved within 6 months to a year and a good multi vitamin is sufficient to address those.  My husband has historically had high homocysteine levels and his low folate, B 12 and B6  levels are because of his MTHFR gene mutation.  Always good to get to the root cause!
×
×
  • Create New...