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Supplementation

AmandaD

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AmandaD Community Regular
AmandaD
Posted

Hi there - got my blood test results back and found out I have a very mild Vitamin D deficiency; also had my bone scan and had a normal reading.

I'm wondering how you all get your extra vitamin D -- I'm not a big milk drinker. My doc wrote on my report that I should take 2 400IU tablets of D a day...any recommendation on a brand..?

And, did any of you have D deficiencies?

Thanks so much, again!

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Lisa Mentor
Lisa
Posted

Me... Dr. said low in D, daugher (chemist) says go out and get some sunshine -- full of vit. D. Try a cal. suppliment with V-D. That might help. Caltrate with D, I THINK is gluten-free, or Centrum with D is gluten-free. ---will have to check on that, with the Delfi Product List....but I do think it's ok. But, please verify.

Rachel--24 Collaborator
Rachel--24
Posted

I don't know if I was deficient or not because my HMO doesnt test for these types of things....they are the worst and also employ the worst doctors around. I was seeing an ND for awhile....she asked me if I felt better when I'm in the sun. I was amazed she was asking me this and I told her I did...I told her I always felt tons better immediately after going outside. I asked her how she knew this. :huh:

She told me I probably had vitamin deficiencies (based on my symptoms) and improvement of symptoms in the sunlight indicates Vit D deficiency. I never knew that...but if I stayed indoors all day I felt tons worse...I *needed* the sunlight.

Carriefaith Enthusiast
Carriefaith
Posted
I'm wondering how you all get your extra vitamin D
I take a multivitamin plus I drink blueberry smoothies made with soy milk.
jpsych Newbie
jpsych
Posted

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

AmandaD Community Regular
AmandaD
Posted
  • Author

Thanks for all of your suggestions - I'm going to check and see if Oscal is gluten-free. RACHEL- it's absurd that your doctor does not check for vitamin deficiencies - that practice should totally be ashamed of themselves!!!! HMO's, I've heard, can really be crappy!!!

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

<{POST_SNAPBACK}>

Rachel--24 Collaborator
Rachel--24
Posted
  HMO's, I've heard, can really be crappy!!!

<{POST_SNAPBACK}>

Yes, I learned the hard way. :(

I'm going to switch plans when it comes up in November. I need to find a good doctor though. If anyone knows of a good doc in Bay Area CA....let me know. :)

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tarnalberry Community Regular
tarnalberry
Posted

I get my vit D through:

* fortified beverages (soy milk/orange juice)

* vitamin supplement (Rainbow Light Food Based Calcium - 100IU D3 (25% of DV, and D3 is the more absorbably form, 500mg calcium (50% DV), 250mg magnesium (63% DV, the appropriate ratio with calcium for better absorption, and one of the minerals that often lacking in celiacs when it comes to bone health)

* daily, unprotected sun exposure (no sunblock for the 10-15 minutes (summer, length varies on skin color))

* a varied, healthy diet

WRowland Newbie
WRowland
Posted

In general, food based is best, with supplementation as needed. It may be more than Calcium/Vitamin D.

Check out www.nutritiondata.com. Start with ND Quick Start and go from there.

I was already taking supplements for my bones, but realized that I was doing well for some things, but really needed a vitamin E supplement after using this site.

Jenn2005 Contributor
Jenn2005
Posted

CarrieFaith

Would you mind sharing your Blueberry Smoothie recipie? I would like to try something like that for my husband. He is also casein intolerant so when you said you used soy milk it got me thinking.

Thanks,

Jennifer

Siobhan Rookie
Siobhan
Posted

My Dr suggested Ostelin 1-2 a day to boost my low Vit D levels.

kevsmom Contributor
kevsmom
Posted

Currently I am taking Spring Valley Natural Calcium with Vitamin D. The dosage I take is only 125 I.U. I don't know if they make a higher dosage, or maybe they have just Vitamin D in a higher dosage without Calcium. If not you could make a whole meal out of it to get 800 I.U. :D That sure sounds like a lot of Vitamin D!

Before that I was taking CVS brand. I don't remember what the dosage was.

lizzy Apprentice
lizzy
Posted

hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

elisabet Contributor
elisabet
Posted
hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

<{POST_SNAPBACK}>

Hi Liz,

What type of vit b12 do you take?

lizzy Apprentice
lizzy
Posted

hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

Jnkmnky Collaborator
Jnkmnky
Posted

Sunlight. Get out more. It's great. Also, there's been some studies linking MS to vitamin D defs. They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D. Get out and bask in the sunlight. Now you can justify it as medically necessary!

lgleeson Newbie
lgleeson
Posted
hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

<{POST_SNAPBACK}>

lgleeson Newbie
lgleeson
Posted

I am taking B-12 by Country Life and they say on the label they are gluten-free. Right now I am taking 3000 mcg sublingually (under the tongue for better absorption). I am taking a high dose, because I, too, have neurological symptoms. It has helped immensely. You can't take too much Vitamin B-12. You will just pee out the extra. (not the case with all vitamins).

tarnalberry Community Regular
tarnalberry
Posted
Sunlight.  Get out more.  It's great.  Also, there's been some studies linking MS to vitamin D defs.  They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D.  Get out and bask in the sunlight.  Now you can justify it as medically necessary!

<{POST_SNAPBACK}>

I definitely agree with that one! (Though, now that I moved somewhere where there isn't enough light to do this for a number of months out of the year, I can't 'practice what I preach' year round. :-( ) Sunlight, without sunblock, for a short time every day is good for many reasons, and D is just one of them. It's more problematic in winter, in the northern hemisphere, since many latitudes don't get enough sunlight for sufficient D production, but that's all the more reason to get in your sun-time during the summer! (D is stored in the body.)

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      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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