Please Help With New Questions Re:lab Work

[julie5914]

Hi guys,

I am sure I have been gluten free, religiously. I've checked hair and skin products, I clean pots and toasters, etc.

I just got my lab results back from a re-check after 3 months gluten free. Here they are:

Reticulin IGG <1:10 - normal

Reticulin !GA <1:10 - normal

Gliadin AGG >100 out of range - normal is <11

Tissue Transglutamin 20 - out of range - normal is <5

I have started having more symptoms of classic celiac (lots of floating stool) even more than when I was eating gluten. I am now on the SCD diet to make sure there is NO gluten, and I still get these symptoms.

My questions: What in the world would still be making these numbers so high? My doctor says it would take a lot of cheating to keep them so high. I am not cheating!

Can caesin cause the numbers to be out of range by my body mistaking caesin for gluten? That would also cause the symptoms and that would also explain why I still get them on the SCD - I still have cheese.

Thanks for your thoughts.

[aikiducky]

I think trying casein-free for a couple weeks might be a good idea.

Pauliina

[KaitiUSA]

What were your original #'s? Are they lower than the first time?

3 months may not be enough time to get rid of symptoms...and if your levels were really high it can take time for #'s to go back down and heal.

[julie5914]

Well, my originals were done by a different lab, so it's hard to compare. They were:

Gliadin IGG 61.2 (normal is <25)

Gliadin IGA 106.3 (normal is <25)

Endomysl IGA 1:1280 (normal is 1:4 I think, but that is not listed - it just says Positive for my number and expected value is Negative)