Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changing Reaction, Normal?


CajunChic

Recommended Posts

CajunChic Explorer

I've been gluten-free for almost 10 months now. When I get glutened, symptoms appear after 2 days, the 3rd day being the worst. Then I feel "off" for about a week.

I was glutened about 2 weeks ago at a Mexican restaurant. I hardly had a reaction. Barely bloated, hardly noticed my symptoms. Is that normal? It was quite a bit of gluten as I didn't know the chips were mixed corn and wheat. I even questioned my dx.

Fast forward to last week. Tried my hardest at a different Mexican restaurant. Everything seemed great. Ate grilled shrimp and rice. This time, 3 days later so sick I can't pick my head up. I've never had dizziness so bad before. I slept almost an entire day and laid down the whole next day. I didn't bloat as big as I usually do, but felt 10x's worse. It's 5 days later now and I'm still tired and nauseated, but can function. I also felt like I was starving, but everything made me sick.

Do reactions change? Did I overdo it in a short amount of time? Why didn't I react the first time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I don't know all of the answers.  From personal experience, though, I can say that my reactions have changed over time.  Also, I wonder if anyone else at the restaurant got sick.  You may of got some food poisoning.  My body has become more and more sensitive, but my health providers are still hoping that my body will relax about it after it is healed up.

NatureChick Rookie

My reactions have changed over time.

Right after going gluten-free, my reaction to minute amounts seemed to be much stronger. But that seemed to have gone away after I got good at staying gluten-free and my immune system was less amped up. I still have one or two tell-tale symptoms that let me know that something was contaminated but nothing that disrupts my life.

I've only had one full-dose glutening since going gluten-free and my whole body hurt for weeks, a reaction I had never had before going gluten-free. It did come with a few other gluten-related symptoms, which is what made me realize that I had consumed a gluten-filled meal accidentally, and those did take a full three to four days to cycle through, the symptoms on day one being different than on day three.

So to minute amounts, my reaction seems to have lessened, but to full doses, much, much worse and both different from before gluten-free, and different from early gluten-free. 

I wouldn't trust a restaurant simply because their kitchens are contaminated. 

BlessedMommy Rising Star

I don't think that I've ever consumed a full dose of gluten accidentally since I went gluten-free in 2010. I have noticed what I considered to be a changing reaction recently. Usually my sign of accidental gluten is skin related, flaming face, or start of rash on my neck. However, recently when I kissed my husband when he hadn't brushed his teeth after eating a whole dinner full of pizza, the next day I had a low grade fever and a headache the whole day.

 

Considering that daily headaches were my portion a few days into my gluten trial, I wonder if my body has become more sensitive and will now generate headaches due to smaller amounts of gluten. 

CajunChic Explorer

I don't know all of the answers.  From personal experience, though, I can say that my reactions have changed over time.  Also, I wonder if anyone else at the restaurant got sick.  You may of got some food poisoning.  My body has become more and more sensitive, but my health providers are still hoping that my body will relax about it after it is healed up.

It was a faculty dinner, and as far as I know, no one else was sick. Thank you for your replies. This gluten-free journey sure has been a learning experience, and I'm sure will continue to be,. Case and point- no more Mexican food : /

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,196
    • Most Online (within 30 mins)
      7,748

    Joanne01
    Newest Member
    Joanne01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.