Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive/urinary Problems

Francis

Recommended Posts

Francis Newbie
Francis
Posted

Hi everyone, I have a few questions. Been sick for two years now. It started with unexplained weight loss, poor digestion, lots of abdominal gurgling. I also noticed at that time that my urine was more concentrated. It has not been colourless since. My appetite became poor and has remained so. I've had all sorts of blood tests, scans, egd endoscope which was negative for celiac. I have pain under my bottom left rib and down my flank. Stools have gone from constipated two years back to mushy. The urine thing is the weirdest thing. So do any of you with celiac disease have that? Also have tinnitus 24/7.

Any help warmly appreciated. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Did you begin taking any vitamins?  Vitamin B colors the urine more yellow.  I know this from personal experience and speaking with a doctor about it.  Have you been tested for celiac?  There are over 300 symptoms and some of yours may be a fit.

 

Welcome!

 

Dee

JamieRmusic Explorer
JamieRmusic
Posted

It sounds very much like celiacs.  How much water do you drink daily?

I used to have constant tinnitus, constant pains in my bottom abdominal left side, problems with urination (feeling of always having to pee... for years).

The tests can show as negative even though they are positive, but after going through so many tests I am a bit uncertain how to approach it.

In my opinion check:

SCDLifestyle site
Gluten Summit

Thyroid Sessions

These guys have some knowledge and I know for a fact they have talked about which tests to take and which not to take, because they are expensive and some yield better results and have a higher score to find celiacs.

If you ever need someone to talk to about this feel free to contact me. Like so many other on this forum I've gone through this for closer to 15 years and I know the pains... It helps to talk about it and get it out of your mind.

Good luck my friend.

GF Lover Rising Star
GF Lover
Posted

Hi Francis and Welcome to the Forum.

 

I just wanted to comment on urine color.  It would be very UNusual for it to be colorless.  Many things will affect the color of urine.  You will also find that the more water you drink the lighter in color it will be.   Foods will also affect the color of urine.  Have you ever eaten asparagus?  Yes, it turns a light shade of green.  I would also caution you about getting information from sources that are also selling their products.  

 

Good luck to you.

 

Colleen

Francis Newbie
Francis
Posted
  • Author

Thank you all so much for the replies and the warm welcomes.

To be clear on the urine thing....old normal for first 45 years pee sometimesyellow and concentrated....sometimes more dilute and much clearer. It matters not how hydrated I am. It sounds weird until it happens to you, then it's scary. It's not down to vits, food or water. The thyroid idea is interesting as I've been packing on weight of late despite poor appetite. Tests always normal tho....tsh and frees in top quartile.

Keep it coming folks. Frank

Francis Newbie
Francis
Posted
  • Author

To add....the pee is now concentrated all the time no matter how hydrated I am. I can't find much on celiac and if it affects the kidneys like this....

nvsmom Community Regular
nvsmom
Posted

I have not seen other people complain about too concentrated of urine with relation to celiac disease before. My guess is that you are dehydrated, but it could be a medical condition causing that or just not enough water.  If you are concerned, you should see your doctor - kidney problems are not something to ignore.

 

Open Original Shared Link

 

Open Original Shared Link

 

Open Original Shared Link

 

Best wishes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Questore Rookie
Questore
Posted

Did you begin taking any vitamins?  Vitamin B colors the urine more yellow.  I know this from personal experience and speaking with a doctor about it.  Have you been tested for celiac?  There are over 300 symptoms and some of yours may be a fit.

 

Welcome!

 

Dee

 

Dee,

I've been trying to find a list of the 300 symptoms, but can't get more than the obvious, standard ten or so list.

Can you tell me where to get the list?

Thanks,

Q

kareng Grand Master
kareng
Posted

I didn't actually count them but they claim 300:

Open Original Shared Link

These are the basic and most common:

Open Original Shared Link

This has info on who should be tested based on other factors, like Downs, etc:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748
    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.