Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Painful Glands - So Over It


IWantCookies

Recommended Posts

IWantCookies Newbie

My name is Danielle. I am 24 and live in New York City - and I can't eat gluten and I love to eat - Starting to see the problem?

I'm not certified by a doctor but it all started in January  - I went from normal human adult to someone I didn't recognize. I had a major sinus infection. It lasted for weeks - now I'm use to having a stuffy nose as I suffer from hay fever from birth - but nothing like this, It was scary. I had major stomach pains and even went to ER because I was nauseated and couldn't keep anything down - along with major constipation. I was sent home with a slap on the wrist and pills - it did nothing. My cold did go away along with the stomach problems - but it got worse before better - for about two months I dealt with on again off again sinus pressure ( It felt like an elephant was on head - everyday!) twitching muscles - nerve pain - joint pain -a popping jaw - wrist and feet pain (it felt like needles!) - a clogged ear a painful throat - a swollen tongue - painful swollen lymph nodes - always tired -headaches everyday and gum pain. Seriously if you put this into Web MD it would say your dead. I thought that I was falling apart. At times I even cried because I thought that this was my life and it would be a tumor or cancer. I got anxious and depressed. It turned into hypochondria. The youthful girl who loved to eat and laugh was no more and it happened in a mere few months. I was in constant pain and was prepared to live my life like this.

 

Until one day I was reading Fitness Magazine and it had an article about being tired. I read through it and just like it was written for me. It was an article on Gluten Intolerance. Now I heard of it, as I had a friend from work who could not eat it either - but I didn't believe it. I was 24, why now would my stomach decide to not accept carbs anymore. But just as my thigh twitching right now I knew something was wrong with me. Followed by rashes and the doctor telling me I was anemic I had developed a food allergy against my bread and butter(literately!).

 

All symptoms are pretty much gone except these glands mostly behind my ears and my neck hurt on and off everyday but they are not swollen. Is this withdrawal? Its been a full week with absolutely no cheating and im still in pain - should I be patient?

 

Any advice is loved and welcomed 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.

IWantCookies Newbie

I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.

Im in the process of that as I am seeing an allergist but when I eat it I feel worse - I ate a hot dog bun last week and had to take a nap and woke up to ringing in my ears. I work at Starbucks and when I eat anything out the pasty case its hell - once my tongue even ached after I ate banana bread so something is bothering me - but thanks for the reply 

kareng Grand Master

Celiac disease isn't an allergy but an allergist could certainly order the tests. But for the tests to be accurate, you need to be eating gluten.

NatureChick Rookie

Gluten withdrawal has nothing to do with allergies or intolerances and would happen to anyone who quit consuming gluten. You could expect to be really tired, lethargic, have a headache and cravings, sleep more than normal and have brain fog. That is because gluten is an opiod, fitting into the same sensors in your brain as opiates, and having similar withdrawal symptoms. This would be one of the reasons people "love" bread products - because it literally gives them a high. Withdrawal normally takes a week or two but is mainly bad the first couple days.

Swollen glands is not a symptom of withdrawal from gluten, but could be part of a reaction to gluten ... or a reaction to other invaders such as catching a virus. If you do have a gluten intolerance and this was part of your autoimmune response, yes, it could take longer than just one week in order to get over the autoimmune reactions like that.

But you appear to be really early in the process of figuring things out. If you are feeling that much better by not consuming gluten, I'd say stick with it, but also do a lot more research into celiac and wheat allergies, what the differences are, and seriously consider doing a gluten challenge in the future so that you can get the correct tests done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.