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Getting "glutened"


Mylesmommy

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Mylesmommy Rookie

My 2yo son hasnit officially been diagnosed, blood and endo both negative, but the GI still thinks he has it. I feel like I struggle with this because, he looks so good off gluten I forget about him waking all night screaming, big belly, and loose stools! It's like I think it was all in my head.

Anyway, once in a blue moon he would get gluten accidentally and be up at night again or have diarrhea. Yesterday he took a bute of regular bread off someone else's plate. He didn't wake up or have diarrhea. He did seem super tired the next day.

Do symptoms change once you have been gluten free for a while? Do kids always severely react?

His lack of symptoms have me wondering if I am crazy with the whole celiac thing. (Even though GI said she thinks he has it)


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LauraTX Rising Star

Not everyone severely reacts, and symptoms vary widely.  Some people don't get GI symptoms at all, and may get fatigue, brain fog, and neurological symptoms.  Each person has their own set of symptoms, and over the years they can change either increasing or decreasing in severity.  So, no, you aren't crazy. :)

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    • trents
      Yes, if you are convinced gluten is causing you problems then it would seem to come down to NCGS but you may also have other intolerances.
    • Scott Adams
      There are huge categories of gluten-free foods, are there any particular types of foods that you are trying to find?
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      Ended up demanding HLA and I’m negative for both. So assuming this is NCGs now? PCP seems unsure and GI is referring to genetics which I don’t get.  about to lose my mind
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      suggest me best gluten free food thank you
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      You are definitely not alone aftertastes and denser interiors are really common with gluten-free baking. Oat and tigernut flours are great choices, and tweaks like extra egg or adjusting hydration are exactly the kind of trial and error that usually leads to better texture over time.
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