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Getting "glutened"

Mylesmommy

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Mylesmommy Rookie
Mylesmommy
Posted

My 2yo son hasnit officially been diagnosed, blood and endo both negative, but the GI still thinks he has it. I feel like I struggle with this because, he looks so good off gluten I forget about him waking all night screaming, big belly, and loose stools! It's like I think it was all in my head.

Anyway, once in a blue moon he would get gluten accidentally and be up at night again or have diarrhea. Yesterday he took a bute of regular bread off someone else's plate. He didn't wake up or have diarrhea. He did seem super tired the next day.

Do symptoms change once you have been gluten free for a while? Do kids always severely react?

His lack of symptoms have me wondering if I am crazy with the whole celiac thing. (Even though GI said she thinks he has it)

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LauraTX Rising Star
LauraTX
Posted

Not everyone severely reacts, and symptoms vary widely.  Some people don't get GI symptoms at all, and may get fatigue, brain fog, and neurological symptoms.  Each person has their own set of symptoms, and over the years they can change either increasing or decreasing in severity.  So, no, you aren't crazy. :)

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    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
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