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How Long After Gluten Free Diet?


frustratedpenguin

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frustratedpenguin Rookie

This is my 6th pregnancy. My first two are miscarriages, the 3rd my son was born, 4th was miscarriage, and 5th my daughter was born. Now I am on my 6th and noticed that I am likely miscarrying again. :(

 

I accidentally noticed that I feel better on a gluten free diet. My husband has health issues, so we put him on a gluten free diet and so naturally, I began eating gluten free (easier to cook that way). After a while of eating gluten free, I noticed that every Sunday I would get that gross carsick feeling and terrible headaches. I couldn't figure it out for a long time; until I realized that every Sunday I ate gluten (potluck at church). I started bringing my own meal (for just myself) to church, and the problem went away (I also noticed that coffee gives me the same symptoms; but I was able to test each one and confirm that it makes me feel ill; weird).

 

I didn't bother going to the doctor about it because it's about a 1 to 2 year wait to see a gastroenterologist. And then even after you see them, it takes another 6 months or so to get tested for Celiac. And then after you're tested, it's another several months for the biopsy results to come in. My husband went back on eating gluten for that specific purpose and then tested... so we know about the waits. :(

 

So my question is, how long after being gluten free will it improve fertility? I have been gluten free for almost a year now. I was so sure this pregnancy would turn out well. :( :( :(


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GFAnnie Explorer

I'm so sorry for what you're going through right now.  I don't know the answer to your question, but I once read a study (Sweedish, I think?) about pregnancy and celiacs, and in the study the women followed a strict gluten free diet for two years before getting pregnant to study pregnancy outcomes vs women who did not follow a gluten free diet. So perhaps there is some belief that two years is the reccomended time frame to allow your body to fully recover?  I would assume that is what the Sweedish scientists believed anyway. 

Blueberry Newbie

I am so sorry for your loss. :( I had been gluten-free (also self diagnosed in 2002, I know it makes me sick, so I stay gluten-free) for about 6 years before I met my now husband (married 4 years now!). We knew quite early on that we wanted to be together (I was 28, he was 31), so we didn't prevent anything. I did not get pregnant until we had been together for 7 months. I had started giving up by then, thinking I wouldn't be able to have kids. What I noticed though, after I got pregnant was that I had been taking a vitamin B6 supplement for 2 months when I got pregnant! So I looked it up, and apparently, vitamin B6 is linked with better pregnancy outcomes!  Then 6 months after my daughter was born, I got pregnant again, but it was a surprise. I started taking the B6 again (as I hadn't been taking it) as I suspected pregnancy, but I unfortunately lost that pregnancy. My next pregnancy was planned and I made sure I was taking the B6 again, and have a beautiful daughter. I got pregnant again when my daughter was 8 months old, but I had been taking the B6 supplement incase something happened again, and have a wonderful son! (So 4 pregnancies, 3 babies, and 1 loss.) For me I swear it was the B6 that made the difference, and helped. I also kept taking the B6 until the pregnancy was further along in case something might happen if I stopped taking it. I don't know if this will help or not, but it can't hurt to try!

  • 1 month later...
KLandry Newbie

I am really sorry. But don't worry eveything will be fine.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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